tiff1496

Forum Replies Created

Viewing 15 posts - 196 through 210 (of 277 total)
  • Author
    Posts
  • in reply to: always worring about my chemo #58927
    tiff1496
    Member

    Tom- I wish Ben (and you) all the luck at MD Anderson. Maybe you will see Dr. Javle, he is awesome!! Please report back to us! I hope everything is working and the tumors are going down.
    I’m trying less to worry. And have started taking a little Ativan when I start feeling sad / worried.

    in reply to: Unusual Cholangio Guy – Survivor Against the Odds #59173
    tiff1496
    Member

    Hi Jeff! Glad you found us, sorry you had to.
    Did you post on the CC facebook page a few days ago? If so, I sent you a friend request. I haven’t heard back from you! =P

    in reply to: Husbands cc #59134
    tiff1496
    Member

    Teresa-
    Welcome! Sorry you had to find us. We started to go to Nashville for treatment. Where are yall from? We live in Huntsville AL.
    We are here for you! If you ever want to chat my email is tiffanyschwantes@gmail.com

    tiff1496
    Member

    Pam-
    You know Kim, she loves to help. I’m sure she wouldn’t mind talking to you about it. Dr. Javle said he wants to get the most mileage out of the current chemo I’m on before moving on to something new. I’m ok with that, as long as the chemo is working.
    I don’t think the Y90 will effect how she will feel. I know my friend that had it, felt down a few days but other than that she was back to her normal self very soon. But she did have problems the second time she had it. She had some bleeding they had a hard time controlling. She had to stay over night in the hospital because of it.
    I was going to ask you–I know she has been having problems with her counts, have you asked the doctor about a neulasta shot? I really think these are helping my counts stay good.

    in reply to: Enlive #59127
    tiff1496
    Member

    Thanks Gavin! I always forget about the search! I hope they get here fast, I feel so weak.

    in reply to: More chemo needed for new liver tumor #59086
    tiff1496
    Member

    Lisa!
    I wish you all the best with the new chemo. I know you feel better with your Dr. talking to Dr. Javle. I just love him!! He is in it to win it!!

    tiff1496
    Member

    Pam– Kim also had Y90, you might want to send her a message on facebook.

    tiff1496
    Member

    Erin- What hospital is Tim having his Y90 at?

    in reply to: Mom recently diagnosed with CC #58484
    tiff1496
    Member

    I’m so sorry to hear about you Mom. I’m glad you have found us. We also see Dr. Javle @ MDA. He is a wonderful doctor, and will do everything he can to help your mother.

    in reply to: Lumpectomy was negative #59098
    tiff1496
    Member

    Yay!! So glad it was cancer free!!! Now, those liver tumors better watch out!

    tiff1496
    Member

    Pam-
    I hope to have Y90 soon too!
    I have a friend (Liza) who has liver cancer. She has had it 2 times. First time everything went good, second time she had lots of problems. She had bleeding that they had a hard time getting control of. Plus the second time didn’t really help her. The first time did!

    in reply to: Is skin rashes a sign that chemo is working? #59000
    tiff1496
    Member

    Is she on Tarceva? If so, I would say yes!!! Is it on her face too?

    in reply to: Phase I Clinical Trial Working for me #58791
    tiff1496
    Member

    Thanks for the info!!

    Are you having a face rash due to Traceva? I do, and I can’t get it under control!

    in reply to: Is skin rashes a sign that chemo is working? #58998
    tiff1496
    Member

    No way!
    In fact, when I seen Dr. Javle, the first thing he said to me is that he “loves seeing my face rash”. I think its from Tarceva.

    in reply to: always worring about my chemo #58925
    tiff1496
    Member

    Lainy- Feel free to send me your list. I will gladly worry over it for you. :)

    Pam- I do have some Ativan. 1 mg. Dr. Javle gave to to me to help with sleep. It didn’t really work, so now I take Ambien. So I might try to take one next time I start to worry too much.

Viewing 15 posts - 196 through 210 (of 277 total)