tiff1496

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  • February 24, 2012 at 10:07 pm in reply to: Hey Percy, could you please give us your expertise? #58138
    tiff1496
    Member

    Maybe ask about erlotinib? I take it, and Dr. Javle thinks its helping me. Its very easy….just 1 pill a day. Side effects are very little (face rash).

    February 24, 2012 at 7:07 pm in reply to: port for chemo #58158
    tiff1496
    Member

    I have a power port, and love it! No problems yet. I do use cream to numb it before I go in for my treatments. It really helps, I don’t feel anything.

    February 23, 2012 at 1:44 pm in reply to: Big day! #58102
    tiff1496
    Member

    LeeAnn- I haven’t had a resection yet. I haven’t even talked to a surgeon.

    February 23, 2012 at 4:25 am in reply to: Big day! #58099
    tiff1496
    Member

    I will Derin!!Thanks for the info!

    I wonder why does Dr. Javle tell everyone they need chemo? I’m confused why he said I can’t have surgery…I need a cure, not chemo. =/ I do believe he is a good doctor, but I REALLY want surgery!

    February 23, 2012 at 4:05 am in reply to: Big day! #58095
    tiff1496
    Member

    LOL Derin…I didn’t.

    He really is a nice guy. I love talking to him.

    February 23, 2012 at 3:53 am in reply to: Big day! #58093
    tiff1496
    Member

    LOL….I’m not sure, but it sounds like something I would say while doing laundry! ;)

    Dr. Javle is awesome though…I gave this site a shout out to him. ;) And put the tri fold brochures every where. I think around 50 of them!

    February 18, 2012 at 2:09 am in reply to: Tumors are shirnking! #57853
    tiff1496
    Member

    Thanks everyone! We are very happy, and are praying the chemo will keep working.

    February 16, 2012 at 6:18 pm in reply to: what a great February! #57732
    tiff1496
    Member

    It has been a great month! Here’s to hoping for more good news!

    February 9, 2012 at 6:01 pm in reply to: Radio Show Living with Cancer #54437
    tiff1496
    Member

    Ok…so did I do ok? haha 😎

    February 7, 2012 at 9:25 pm in reply to: looking for advice 2nd opinion #56908
    tiff1496
    Member

    Sally- I’m on tarceva. I take 150mg every day. It is approved for lung and pancreatic cancer, but not CC. We had to fight to get my insurance to pay for it. My doctor (Dr. Javle) had to send a letter to the insurance telling them why I needed it and stuff like that. It is about $5,000.00 a month, so I hope they will pay for your sister.

    February 7, 2012 at 10:53 am in reply to: It’s not a cure, but stable is good. #57472
    tiff1496
    Member

    Yes!! Stable is good!!
    I hope the trial keeps going well for your husband.

    February 7, 2012 at 10:51 am in reply to: looking for advice 2nd opinion #56905
    tiff1496
    Member

    Yes LeeAnne- Try mjavle@mdanderson.org
    I emailed him yesterday and he replied in minutes. Good luck!

    February 6, 2012 at 4:05 pm in reply to: Dr. Javle Email address #57467
    tiff1496
    Member

    Dr. Javle is my doctor! He is a very nice man, and I’m sure will get back with you. We are also far away from TX, but we are willing to travel all over to get the best help. We will be there next week for more scans. Depending on what they say I might try Mayo and will also be sending my scans to Dr. Kato.

    I will say, I do love his nurses. I email them when I have a problem or question and they get back to me within an hour. Good Luck!

    February 6, 2012 at 1:22 am in reply to: ? I’ve never seen this asked on this board ??? #57180
    tiff1496
    Member

    No clue.
    I went to the ER a few months before we learned it was cancer. The ER doctor told me “no need for a CT scan, we give more people cancer with CT scans than find cancer.” He said it was a UTI. Now I know, it was cancer.

    HELLO doc! My pains where upper abdominal….and I even told him I had lost weight and not been eating good. This was about 4 months before we learned it is cancer.

    February 5, 2012 at 11:30 pm in reply to: Anyone going to be at MD Anderson Feb 14-16th??? #56877
    tiff1496
    Member

    I will see him Derin, and will mention your name. ;) He really is a good guy. So you work with space stuff? We live just a few minutes from Huntsville, AL (NASA). :)

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