tiff1496
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I do this.
I get my treatments here in Alabama, but I go to md Anderson for scans and to have my treatment plan managed. It has been working out good this far.Thanks Marion. I just hate this wait. We got to keep it going! My kids need their mommy around for a long long time.
Hi there! Sorry you had to find us, but with your mother having cc, I’m glad you did. This is the right place to be, everyone is so helpful.
First off, let me say, we are seeing that ages don’t have much to do with someone getting cc. I’m only 30, and we have had a few people younger than me with it.
I know it must be hard to be away from your mom during this time. But for her to have the best outcome, she needs to get to a major cancer center. I believe this I’d very important, as most doctors don’t know how to treat us. I go from Alabama to Texas to see my doctor every 3 months. I’m able to get chemo here at home though.
Please keep us updated, and feel free to ask questions. Hang in there, it’s a crazy ride.
Blessing,
TiffanyI have been on it for 9 months. Seems to be keeping me going too!
Thank goodness my insurance will pay for it, because the bill is for 5K every month.
One thing I love about it, is there really isn’t that many side effects, other than face rash. I would love to hear of more cc patients taking it.Thanks Susie!
I sent dr. Javle an email, and he said that the increase could very well be from the shots. Thank goodness! I just don’t think it would go up like that in a week. He said look for it to come down in a few weeks. I’m just not sure if I need to take it anymore if it’s going to cause this type of problems.Hi! I learned oct of last year I have ICC. I was 29 at the time. I’m 30 now.
I’m so sorry you lost your daughter so fast. It breaks my heart. I have two young babies, and they keep me going. I live for them, and my husband.
Praying for your family.
TiffanyYour right! There is hope! I go next month for my scan, and to talk about maybe a transplant at MDA. If not, on to the next doctor…your hero! I’m going to get my cure.
Yes, it was a hard week with the loss of our dear friend, but I know she is with us.
Love you Cathy!I’m so sorry you lost your husband to this monster cancer. I will be praying for your family. I wish I had better words, but I dont. I hate this cancer.
Pam, I’m on remron. It’s a very good one. The thing I like about it is you take it at night. They say it can help you sleep, but it doesn’t me. I can tell a difference since I have been on it. I have also tried other drugs, but didn’t like them for the same reasons as you. Maybe ask your doctor about remron?
Pam….the only thing I worry about is 5fu and xeloda being the same thing. MDA let me choose between the two, saying that theatre the same drug. Please ask your doctor about it!
