wallsm1
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I had radiation and took Xeloda twice a day. No side effects from the Xeloda, that I know of, but radiation made me really ill. I guess I can’t say for certain the Xeloda did not give me side effects since I never had it without radiation, but I am fairly confident it was the radiation and not the Xeloda. I believe this because the vomiting lasted for about 2 wks after the radiation stopped. I haven’t heard of anyone getting radiation twice a day for weeks at a time. I had it once a day, 5 days a week for 6 weeks. They did say if I missed a session, I could possibly get 2 in one day.
I think a lot of my vomiting was caused by acid reflux and maybe an ulcer/gastritis from the radiation. I would suggest your mom talk to the Dr about going on a proton pump inhibitor. It helped me greatly and they are usually well tolerated.
Please let me know if you want more details or have any other questions.
I finished radiation the end of November. I was sick for the last 2weeks of radiation and for about 2 weeks after it stopped, but I did feel better after that.Best wishes,
SusieHi Kris,
I hope chemo goes well for you and I’m sorry you’ve been through so much lately. Hang in there.
Susie
Thanks for all the positive thoughts!
Marion,
I was born and raised in the Pittsburgh area and the husband and I were looking for a change in scenery, one which involved better skiing.
So, Portland is where my husband got the best job, so here we are.take care!
Susie
Have you tried Miralax? It is pretty gentle and I was told doesn’t cause dependency issues.
Eat some prunes everyday. Prunes are our friends!Take care!
SusieLisa,
I know of Dr Fung, though not personally. He was the head of our transplant department for a short while when I started and then went to Cleveland clinic. I know he is a fantastic surgeon, so is Bijan if you ever see him. He was also at UPMC when I worked there.
Take care!
SusieJanet,
Welcome to the site and I am also sorry you had to join us. I don’t think I’ve ever herd of siblings both having cholangiocarcinoma. Good luck with your treatment and keep us posted.
Susie
Jim,
I’m so sorry to hear it was cc, but it’s great it was removed! Hang in there. You are in my prayers.
Susie
UPMC can do laparoscopic liver resections in some cases. I think that is what they meant when they said they are only one of 2 hospitals that do the surgery.
http://www.upmc.com/Services/liver-cancer-center/treatments/surgical-resection/Pages/minimal-invasive.aspxI had a hepatectomy at UPMC by David Geller, but it was not laparoscopic. He is excellent. So is Dr Marsh. I do not know Dr Pingpank.
Please let me know if you have any questions.
Best of luck!Susie
When was your last scan? Maybe they would repeat the scan, but just because your Ca 19-9 didn’t drop, doesn’t mean it isn’t working.
Take care and it is ok to worry!! We all worry!
Susie
