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Hi Sandtdad. Welcome to the site and sorry you had to join us. Thank you so very much for posting your treatment. I haven’t heard of this combo yet, and I think it is so very helpful to learn what treatments other people are receiving and why that treatment was chosen. Best of luck to you and please keep us posted!!
Susie
Wow, Byron. That is quite the story. I am glad you are recovering and wish you the best.
Take care!
SusieBest of luck with the new treatment plan! I have just finished 6wks of radiation and am waiting for my superhuman powers to show themselves! Radiation was very hard on me, way worse than chemo. For the last 2 wks, I threw up 1-3 times/day and lost a lot of weight. This week I went in the outpatient clinic everyday for iv fluids so I don’t get dehydrated. I would tell your sister if she notices any changes at all, that may not seem like a big deal, to let her oncologist know right away. For me it started with acid reflux and progressed to nausea/vomiting. The quicker they find out what meds work for you the better it is for everyone.
Mutant powers would be cool. I’m not sure who I’d want to be but it would involve some type of flying power.
Does your sister have a port? I have one and it makes chemo much easier.
Best of luck with the upcoming treatment!Susie
Funny you should mention, but my oncologist did offer me a medial marijuana card. (We live in Oregon) She said “Marijuana, now is the time to try!” And gave 2 thumbs up. I have given it a go. I don’t like the “smokey” aspect of it or the way it tastes but I bought a vaporizer that helps remove all the smoke. I must say it helps a lot. It makes me very sleepy but at least I’m able to keep down my dinner. I have also tried ginger, but I’ve eaten so much ginger flavored things recently, the mere thought of ginger going in my mouth makes me want to puke. I am down to the “boost” portion of my treatment. 5 treatments to go and then hopefully the nausea will decrease. My sister asked my about the boost. I said it is when they change it from “original recipe” to “extra crispy”. We laughed. Don’t mind my horrible sense of humor, it’s the only way to get me through the day!
Take care!!
SusieI’ve been waiting all day for this post!!! I knew her MRI was yesterday. Glad to hear it shrunk. That is great news!!!! Tell her to stay strong and we are all thinking of her!
Best wishes,
Susie
Great link, thank you!!
I think it is a mental thing, but the better I look, the better I feel. Everyday before radiation I make sure I do my hair, put on makeup wear my heels or cool boots or whatever the heck I feel is necessary. I don’t know why but it makes me feel better. The radiation techs are so nice and always comment how pretty and stylish I look. I joke with them that by my last day of radiation they will probably be shoving me in that machine in my wedding dress. Whatever makes me feel better!!Take care!
SusiePam,
I am so glad you joined and look forward to reading about Lauren’s updates. I agree, this website has been so very helpful to me. It’s so nice to read other’s experiences and talk to people who actually understand what your going through.Take care!
SusieBest of luck, Grover! And I agree, we are all on the worst reality TV show ever created.
Take Care!
SusiePam,
I don’t know if this advice will help or not, I think it’s different for everyone. I don’t get very nervous about my scans, I kind of look forward to them. For me, it’s the not knowing part that gets me more nervous than anything. So, when I get scanned I know I’m going to get results and know what’s going on and for me that’s a lot better than not knowing what is going on in my body. Good or bad news I’d rather just find out so I can deal with it.
Best of luck and keep us posted. I look forward to a post coming from you describing a wonderful response and lots of shrinkage!!
Take care!
SusieJohanna,
I’m not really sure. I was assuming ascites until you said your US showed very little fluid. Have you had surgery in the past?
Take care!
SusieGavin!!!! You are my new hero!
I spoke with my radiation oncologist about the possibility of me heading over to the hyperbaric chamber after radiation. He said it’s not something he is familiar with and has never referred a patient to hyperbaric treatment. It is not something that is available at OHSU, the hospital I get treatment at. But, he also said just because it isn’t something he does, doesn’t mean it isn’t worth considering. The do have a hyperbaric chamber at a different nearby hospital where I live, so I think I will look into it at some point. I also plan to speak to my oncologist about it to see if she has any experience with it. Maybe even email the folks at Mayo to get their thoughts. I do have some concerns, though. I was recently on cisplatin, since it is the chemo of choice for us CC people, and I will also get a few more doses when I finish radiation. I wonder why it is contraindicated?? Also, I have concerns that if there are cancer cells left in my body are they going to feed of off this intense supply of oxygen?? I saw that was also mentioned in one of the links. It is interesting about the regeneration of biliary cells. My biggest fear with radiation is it will cause a biliary stricture and I will need a stent. If the hyperbaric treatment could prevent that, it would really be worth looking in to.
Things to think about!! (Like we didn’t have enough to think about)
Take care!!
Susie
