Monthly Scientific Update – March 2022

Carl Scheitrum spent more than 1,000 volunteer hours in 2021 updating the International Cholangiocarcinoma Patient Registry.

Carl's information technology experience played a crucial role in this project. He helped the CCF team explore the best approaches to make this registry platform more patient-friendly. He also focused on improving the registry output, so researchers can use de-identified patient data to understand the natural history of cholangiocarcinoma that will help find a cure for this disease.