Posts by Allison Deragon

Join us in welcoming 2024! It is going to be an extraordinary year. The Foundation accomplished some remarkable achievements with the help of this community.

As 2023 comes to a close, we reflect on a year of resilience, unity, and progress at the Cholangiocarcinoma Foundation.

Gratitude has the power to heal! Did you know that studies have shown that expressing gratitude can boost emotional well-being, reduce stress, and enhance resilience?

As we enter the holiday season, we reflect on the incredible journey we’ve shared throughout the year. We are deeply appreciative of your support of the Cholangiocarcinoma Foundation.

National Family Caregivers Month (NFCM) is an annual observance dedicated to recognizing and honoring the selfless individuals who provide essential care and support to their loved ones.

The power of coming together as a community cannot be overstated in the face of rare cancers like cholangiocarcinoma.

October is Liver Cancer Awareness Month, giving the Cholangiocarcinoma Foundation (CCF) an additional opportunity to educate the public.

September 30th is Rare Cancer Day – an annual awareness event devoted to shining a light on rare cancers and the issues people living with them face.

Moving for the Cure holds a special place in our hearts at CCF. It’s not just a walk, run, or fundraiser

CCF swag is a great and simple way to raise cholangiocarcinoma awareness.

Each month, we recognize those whose contributions inspire us and who demonstrate excellence with their service to others.

Did you know that CCF records all of the Educational Webinars and uploads them to our YouTube Channel?

In many cases, they can save lives. Finding the right clinical trial for YOU may seem complicated, but CCF is armed with education, tools, and medical experts to help you find the right clinical trial. This week we’d like to share five resources to help you find the right clinical trial!

For cancer survivors, fear of cancer coming back after treatment, often referred to as “fear of recurrence” can be a common experience.

Did you know the CCF website has language, translation and accessibility options available? Recite Me offers digital inclusivity to our entire community.

The generosity of donors has assisted us in advancing research in impactful ways and supporting patients and their families on this journey.

The American Society of Clinical Oncology (ASCO) meeting took place in Chicago the first week of June. The Foundation provided an information booth in the Advocacy Pavillion and participated in premier scientific events for oncology professionals, patient advocates, industry representatives, and major worldwide media outlets.

Home / Blog / 🤚🏻 Five for Friday – Five reasons to participate in Moving for the Cure Get ready to lace up your sneakers, stretch those muscles, and join us for an exhilarating event like no other: Moving for the Cure! Participants in any area, of any age, and of any athletic ability come…

Home / Blog / 🤚🏻 Five for Friday – Five Pages to Review in the Strategic Plan The Foundation’s Strategic Plan was unveiled at the 10th Annual Cholangiocarcinoma Foundation Conference. Over the next few months, we will be ensuring you are kept apprised of all that the plan entails so you remain informed of our goals and…

Home / Blog / 🤚🏻 Five for Friday – 5 reasons to thank a Nurse during #NationalNursesWeek As we celebrate National Nurse Appreciation Week, we want to take a moment to recognize and thank each and every one of our nurses who care for patients with cholangiocarcinoma. Consider thanking a nurse in your life for…

Home / Blog / 🤚🏻 Five for Friday – 5 ways to get involved with Campaign for the Cure Cholangiocarcinoma Foundation’s Campaign for the Cure 2023 has kicked off and runs the entire month of May. With your support, we can continue championing research that leads to new treatments and a cure. Join us as we work to…

Home / Blog / 🤚🏻 Five for Friday – 5 Annual Conference Recordings to Watch The 10th Annual Cholangiocarcinoma Foundation Conference was a tremendous success! With 500 in-person and 500 virtual attendees, we built on existing collaboration and forged new partnerships. As always, hope and new friendships were abundant. The conference session recordings are now available on…

Home / Blog / 🤚🏻 Five (+2) for Friday – 7 Upcoming Community Fundraisers Spring is an excellent time to support the Cholangiocarcinoma Foundation, get involved in your community, and have fun! There are a variety of upcoming Community Fundraising events that offer unique and entertaining ways to get involved and support the cholangiocarcinoma community.…

Home / Blog / 🙌 Ten for Friday – 10 ways to get involved at the 10th Annual Conference The 10th Annual Cholangiocarcinoma Foundation Conference starts Wednesday, April 12, 2023. The virtual platform opens at 8:00 a.m. (MDT) on Monday, April 10th and is available to in-person and virtual attendees. Here are ten ways you…

Home / Blog / 🤚🏻 Five for Friday – 5 resources to learn how volunteers make a difference April is National Volunteer Appreciation Month. Join the Foundation in celebrating the work of CCF volunteers and consider how you can get involved. Become inspired by April’s Volunteer of the Month Spotlight Enjoy this special video about CholangioConnect…

Home / Blog / 🤚🏻 Five for Friday – 5 Ways to Prepare for the 10th Annual Conference CCF’s 10th Annual Conference is less than a month away! The Foundation looks forward to uniting with our community, which is fearlessly working to find a cure for cholangiocarcinoma. Here are five ways you can prepare for the conference.…

Home / Blog / 🤚🏻 Five for Friday – 5 Nutrition Resources Happy National Nutrition Month! “As a cholangiocarcinoma cancer patient myself, I know how curious and eager our patients are to learn about nutrition in relation to disease and treatments. I am committed to helping newly diagnosed patients get the information they need to…

Home / Blog / 🤚🏻 Five for Friday – 5 TeamCCF Stories TeamCCF began in 2016 as a way to raise money through athletic events for the Cholangiocarcinoma Foundation. Bibs for this year’s 2023 Bank of America Chicago Marathon are available now. Hear five stories from community members and learn more about why they decided…

Home / Blog / 🤚🏻 Five for Friday – 5 takeaways from GI ASCO 2023 The American Society of Clinical Oncology Gastrointestinal Cancers Symposium The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) is an annual global symposium that delivers the latest and most innovative science, research, and multidisciplinary educational content in the…

Home / Blog / 🤚🏻 Five for Friday – 5 Awareness Month Testimonials Thank you to all who have supported Cholangiocarcinoma Awareness Month so far. Yesterday, February 16th, was World Cholangiocarcinoma Day. There were several green lights around the globe in support of #GREENforCCA. Please enjoy stories from five members of the cholangiocarcinoma community on why…

Home / Blog / 🤚🏻 Five for Friday – 5 pages to review in the CCF Annual Report CCF is pleased to share the 2022 Fiscal Year Annual Report highlighting the many accomplishments of CCF and this community. Thank you for your continuing support of this important work. CCF looks forward to even more success…

Home / Blog / 🤚🏻 Five for Friday – Social Media February is Cholangiocarcinoma Awareness Month. Please be sure to like, comment and share CCF’s posts to keep us popping up in your newsfeeds throughout February. Each day CCF will share your CCA stories, important facts, news and ways our community is spreading awareness. Here…

During February, the Foundation invites everyone to participate in Cholangiocarcinoma Awareness Month, a campaign established to raise much-needed awareness of cholangiocarcinoma, with February 16th marking World Cholangiocarcinoma Day. 

Did you know that cholangiocarcinoma shares mutations with other cancers, such as Breast Cancer, Lung, Skin, Colon and Pancreatic Cancer?

Home / Blog / 🤚🏻 Five for Friday – January is National Mentoring Month The Foundation hopes you are having a Happy New Year! January is National Mentoring Month, and we would like to honor the mentors who serve as volunteers and thank them for their service. Here are five CholangioConnect stories from mentors and mentees. Fred…

Join us in welcoming 2023! It is going to be an extraordinary year. The Foundation accomplished some remarkable achievements with the help of this community. Every project, partnership, and initiative the Foundation is involved with centers around patients.

Home / Blog / 🤚🏻 Five for Friday – Happy Holidays As 2022 comes to a close, the Foundation celebrates the significant progress this year brought us. After accepting poor outcomes for far too long, the Foundation welcomed a new standard of care – the first in the last decade. The Durvalumab approval is a…

Cancer can take away a lot of things but never hope. The Foundation honors survivors and recognizes several friends who have been willing to share their stories of how they are living with #CCAHope.

Home / Blog / 🤚🏻 Five for Friday – Share Gratitude and Give Back As the holiday season approaches, we invite you to look for ways to show gratitude and give back to the CCF community. Here are five opportunities you may consider: Keep a gratitude journal Learn about how expressing gratitude makes you happier…

Home / Blog / 🤚🏻 Five for Friday – Candles for the Cure 2022 The tradition continues with 2022 Candles for the Cure. This holiday season, Cholangiocarcinoma Foundation invites everyone to take part in our annual year-end holiday campaign called #CandlesForTheCure by lighting a virtual candle in honor or memory of friends or family who have…

Home / Blog / 🤚🏻 Five for Friday – 5 Ways to Give As 2022 comes to a close, there are a number of opportunities to support the Foundation. Your year-end giving makes an impact in the lives of those we serve. This week, we’d like to share five impactful ways you can make a year-end…

Home / Blog / 🤚🏻 Five for Friday – National Children’s Grief Awareness Day Yesterday, November 17, was National Children’s Grief Awareness Day. The Cholangiocarcinoma Foundation recognizes the children of many of our patients who may also be experiencing a wide range of emotions due to their family member’s diagnosis. Click these links to learn…

Home / Blog / 🤚🏻 Five for Friday – Five Caregiver Perspectives November is National Family Caregiver Month (NFCM)! The Cholangiocarcinoma Foundation recognizes NFCM as a time to celebrate the contributions of caregivers. We are pleased to share five Caregiver stories this week: Caregiver Perspective – Jill Neubauer Caregiver Perspective – Laura Lee Caregiver Perspective…

Home / Blog / 🤚🏻 Five for Friday – Meet Five CCA Physicians The Cholangiocarcinoma Foundation realizes that the fastest way to advance research is by working together. As the leading advocate for patients, the Foundation is uniquely positioned to bring together world-renowned clinicians, researchers, and physicians to achieve a common goal: finding a cure.…

Home / Blog / 🤚🏻 Five for Friday – Meet 5 CCA Scientists Finding a cure for a disease as rare and complex as cholangiocarcinoma demands creative solutions. When clinicians, scientists, and researchers collaborate, their experience and knowledge advance research. Meet five cholangiocarcinoma scientists: Sumera I. Ilyas, M.B.B.S. Lewis Roberts, Ph.D Lipika Goyal, M.D. Juan…

Home / Blog / 🤚🏻 Five for Friday – 5 CholangioConnect Resources Through peer-to-peer mentorship with a fellow patient or caregiver, CholangioConnect is creating a community of hope. Please consider becoming a mentor and making a new friend. Here are five resources for your consideration: Learn more about what mentors do Discover how CholangioConnect changed Jessica’s life…

Home / Blog / 🤚🏻 Five(+3) for Friday – 8 New Biomarker Stories Biomarker testing opens doors to personalized treatment options, including clinical trials, for cancer patients. The Foundation is proud to present eight patient stories for whom biomarker testing positively impacted their cancer journeys. Julie Thole Ben Lazcano Sharon Hockenberry Hadley Recor John Pierce Ivy Elkins…

Home / Blog / 🤚🏻 Five for Friday – 5 Recent Articles of Interest The Cholangiocarcinoma Foundation is sharing news and research updates with the community to inspire hope. Here are five recent articles of interest: Zymeworks Reports Last Patient Enrolled in Pivotal Study of Zanidatamab The International Cholangiocarcinoma Research Network Initiatives Oncologist Stories: Lincoln…

Home / Blog / 🤚🏻 Five for Friday – 5 ways you can participate in Campaign for the Cure Here are five ways you can participate in the Campaign for the Cure: Learn More Campaign for the Cure (#C4C2022) launched this week and runs for the entire month of May. You can learn more about the campaign…

Home / Blog / Five for Friday – Highlighting 5 Volunteer Fundraisers April is National Volunteer Appreciation Month. CCF honors volunteers who are making significant contributions by donating their time and talents to raise money for research. In commemoration of Appreciation Month, consider supporting the following volunteer-organized events: 3rd Annual Quack Out Cholangio Racing for Hope…

Home / Blog / Five for Friday – Surveys that impact research Providing answers to a few research questions helps the Cholangiocarcinoma Foundation further research. There are four short surveys attached to this email that patients or their caregivers can take to help the research community better understand the natural history of this disease. Your…

Home / Blog / Five for Friday – 5 ways volunteers lead the change It’s time to celebrate how volunteers serve with #ccahope. The Foundation is thankful to all of the incredible volunteers who inspire us and work so hard day in and day out to support patients. In the past year, volunteers donated more…

Home / Blog / Five for Friday – 5 ways to use nutrition to fight cancer Happy National Nutrition Month! “Nutrition is an important thing to consider when you’re getting cancer treatment. Eating healthy foods before, during, and after treatment can help you feel better and stay stronger. But cancer and its treatment can sometimes…

Home / Blog / Five for Friday – 5 Annual Conference Sessions The 9th Annual Cholangiocarcinoma Foundation Conference was a tremendous success! Attendees helped to assemble 1,500 care kits for newly diagnosed patients, 200+ people joined CCF’s Light it Green for CCA Walk, 250 participants joined the conference in-person, and 900+ joined virtually. Session recordings from the…

Home / Blog / Five for Friday – 5 pages to review in the CCF Annual Report Thanks to your support, the Cholangiocarcinoma Foundation community has continued to grow with its core value of putting patients first. Here are five (5) pages in the 2020-2021 Annual Report you may find of interest. Spotlight on research Spotlight on…

Home / Blog / Five for Friday – 5 ways you can put your advocacy to work for World CCA Day World CCA Day is an international effort to raise much-needed awareness of bile duct cancer. Cholangiocarcinoma is increasing globally and the Foundation is acting with urgency with a concerted effort to support patients and…

Home / Blog / Five for Friday – 5 Cholangiocarcinoma Educational Videos Happy Cholangiocarcinoma Awareness Month! The Foundation co-founded the steering committee of the Global Cholangiocarcinoma Alliance to establish a global voice for cholangiocarcinoma. This alliance works to improve prevention, survival, and the quality of life of patients around the world. Here are five (5)…

Home / Blog / Five for Friday – 5 ways you can get involved in Cholangiocarcinoma Awareness Month In February, the Foundation invites everyone to participate in Cholangiocarcinoma Awareness Month, with February 12th marking World Cholangiocarcinoma Day, also known as World CCA Day. As part of February’s events, the Foundation will continue the Light It…

Home / Blog / Five for Friday – 5 events to add to your calendar The Foundation hopes you are having a Happy New Year! This year, exciting opportunities are happening, including the 9th Annual Cholangiocarcinolma Foundation Conference and more. Here are five (5) events to add to your calendar as the new year begins.…

Home / Blog / Five for Friday – Happy Holidays As 2021 comes to a close, the Foundation recognizes it has come through a year filled with both unique challenges and positive developments. It has been reassuring to know that CCF can count on all of you regardless of what faces us. CCF celebrates the…

Home / Blog / Five for Friday – 5 groups that support the CCF mission Collaboration is a core value of the Cholangiocarcinoma Foundation and is fundamental to its growth and ability to provide high-quality programs and services to the cholangiocarcinoma community. The Foundation dedicates its efforts in cooperation with other organizations to supporting patients…

Home / Blog / Seven for Friday – 7 Cholangiocarcinoma Survivor Stories Cancer can take away a lot of things but never hope. There are so many positive, ongoing developments in cholangiocarcinoma research. Whether you are a patient or know a patient, there is more reason than ever to spread hope in the CCA community.…

Home / Blog / Five for Friday – 5 industry projects that support our CCA community The Foundation’s core values are patients first, collaboration, innovation, and urgency. We want to share a few projects our industry partners are working on to support our entire community: Elevation Oncology – Podcast on biomarkers, new tests and new…