Why 21 Miles of Hope?

Jonathan Whiting - Family Photo

How I met Lori and Life up to Diagnosis I was playing music in a club at a happening nightspot, when one of my very best friends named, Debbie, brought out a group of friends to see me. They were all my friends but there was someone in the group I had never met. That…

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Webinar: Personalizing cancer treatments with the PARIS® Test for cholangiocarcinoma patients

Subscribe to our YouTube Channel Title: Personalizing cancer treatments with the PARIS® Test for cholangiocarcinoma patients Recorded: Thurs., Sept. 23, 2021 4:00pm (Eastern) Presented by: SEngine Rare and aggressive cancers, such as Biliary Tract Cancers (BTCs), have a significant unmet need that current approved therapeutics do not meet. Conventional clinical trial-based approaches have been ineffective…

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Shaun Hope: ‘It Could Be Worse’

Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun was a geek at heart. Even while struggling with fatigue and pain, he worked as long as he was able to. He built an arcade, purchased a 3-D printer to…

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Team Sarah Newton

Sarah Newton of Galena, Illinois has been dealing with bile duct cancer since her diagnosis in July 2020. She has endured four-plus months of chemo, two procedures involving implanting Y90 in both lobes of her liver and is currently taking gene therapy medication.

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2nd Annual Moving for the Cure Recap

TeamCCF sponsored its 2nd Annual Moving for the Cure, July 18 – 24. Families and individuals accepted the challenge to raise at least $200 and perform any physical movement during that week in July. In the end, the Moving for the Cure participants and sponsors raised more than $96,000!

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Bidding for the Cure

Help fund research that will move us closer to a cure. To celebrate the Cholangiocarcinoma Foundation’s 15th Anniversary, and to support our volunteer committee’s pledge to raise $150,000 to fund critical research into cholangiocarcinoma, we are holding our first-ever virtual silent auction – Bidding for the Cure. We are auctioning off a variety of items,…

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Whispers Over My Shoulder

Excerpt from the ASCO Post, by Mairéad Geraldine McNamara, MB, PhD.  When I interviewed for my current post as a first-time consultant in medical oncology in the United Kingdom, I was asked about my 5-year career plan. I remember some detail of my reply, but I don’t think it even remotely encompassed the depth of insight…

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Journey of Hope: Day 41

Well, here I am on the eve of the conclusion of my 15,000 mile Journey of Hope. I’ve checked off all the boxes of the milestones I originally set out to achieve. At least I thought I had…

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Journey of Hope: Day 34

“Toto, I have a feeling we’re not in Kansas anymore!” I had been waiting to say that through the first 41 states I visited. Now that I’m in NE., it’s officially stated!

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Journey of Hope: Day 32

Today, I made my way through two more towns named Hope; one in OH., and one in IN. I came to the realization that I’ve been in five small towns named Hope over the past four Sunday’s.

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Journey of Hope: Day 31

As I get into the last 5,000 miles of my Journey of Hope, I’m excited to see what lies ahead. This includes visits with warriors, caregivers, doctors, spontaneous encounters with the “unknowing”, and continuing to experience the vastness of our country.

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Journey of Hope: Day 30

Happy, Happy Valley! This is my second visit to Happy Valley in the past four weeks. The difference is the first time was in OR., and tonight I’m in PA; about 2,670 miles away.

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Journey of Hope: Day 29

Headed east from Weston, WV, to Sparta, NJ, for a night of rest before starting the final 1/3 of my journey Friday afternoon. It was another beautiful day traveling through WV, western MD, PA, and back into NJ.

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Journey of Hope: Day 27

“Pushing a rock, pushing a rock”. As part of my journey I’m leaving a trail of Hope rocks that Linda painted across the country; in each of the 48 states, and in towns named Hope.

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Journey of Hope: Day 23

Anyone know where the tallest cast iron statue in the U.S. is located, and what its’ name is? As I approached my first meeting location of the day, in Birmingham, AL, I observed a significant statue on a pedestal on a high point in the city.

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Journey of Hope: Day 22

Have you ever had one of those days when you realize how finely tuned our lives are? That is until a few minor quirks get in the way. Today was one of those days for me.

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Journey of Hope: Day 21

As it’s the 15th anniversary of the Cholangiocarcinoma Foundation, many people now know that I’ve incorporated the number 15 into my journey in a variety of ways.

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Journey of Hope: Day 17

After a two-minute visit to the beach for a quick photo of the Atlantic Ocean, I left Ogunquit, ME @ 6:30 a.m., and headed two hours south to Holliston, MA, and the home of Kim Balkus.

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Journey of Hope: Day 15

I don’t want to jinx myself, however, the Journey just keeps getting more meaningful to me by the day! Now I’m starting to think how can it be possible that I only have 9,375 miles to go?!

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Journey of Hope: Day 14

Remember the movie Cast Away starring Tom Hanks and his companion Wilson, the soccer ball? Well, I had one of those episodes today, when Mike O’Langio my Mutations Matter photo bud seemed to have disappeared.

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Journey of Hope: Day 13

What an inspiring day! My first stop this morning was in Akron, OH, where I was met by a “sea of green” at the home of Lisa (warrior and mentor) and David Craine.

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Journey of Hope: Day 12

I have to admit, this was a long day. As I planned the journey, I knew that was going to be the case, however, I didn’t plan on the hotel story at the end of the day.

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Journey of Hope: Day 11

Wow, another eventful day! The day started with me dropping Linda off at O’Hare Airport for her journey home to NJ, so as to be with our grandson, Austin, this week for “bus duty”.

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Journey of Hope: Day 10

It was a beautiful, cool, cloudless morning when Linda and I departed Rochester, MN, today. Our first official stop was about 275 miles away, fairly close to Milwaukee.

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Journey of Hope: Day 9

Departing from Watertown, SD, we headed in a southeasterly direction to Hope, MN., over a variety of roads, including interstates, two-lane state and county roads, plus an added bonus of dirt! It’s amazing what supposed shortcuts GPS will produce at times!

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Journey of Hope: Day 8

As we departed Dickinson, ND, this morning, we were greeted with a windy 35°, and snow showers! Quite a difference for those in New England talking about how hot it is at 90°. Driving east on I-94 our first stop was to see Salem Sue, the world’s largest Holstein cow!

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Journey of Hope: Day 7

We started our A.M. drive in Livingston, MT, and proceeded to Billings, MT. to pick up Melinda Bacchini, a CC Warrior who is also on the staff of the foundation. Melinda is Director of Patient Advocacy and an 11½ year survivor.

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Journey of Hope: Day 6

We saw a lot of gorgeous scenery today, including Sandpoint and Hope, ID, as well as East Hope, and believe it or not, an area known as Beyond Hope! The beauty continued into MT. with diverse scenery and weather conditions along MT Route 200 and I-90 eastbound before the pouring rain started in Anaconda, MT.

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Journey of Hope: Day 5

This morning, Linda and I had the opportunity for a meet-up outside the Fred Hutch Cancer Center in Seattle. Our mission was to thank doctors who are improving the lives and finding a cure, for cholangiocarcinoma patients, now and in the future.

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Journey of Hope: Day 4

This morning Linda and I had the opportunity to meet in the Vancouver, WA area, with one of my ex-colleagues, his wife, and daughter, Sara. Two years ago, Sara was a recipient of the Sarah Fleischer Bennett memorial scholarship.

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Journey of Hope: Day 3

Day three of the JoH was another day full of fulfilling visits, beautiful scenery and variations in weather, including rain, heavy fog on the curvy roads of the Cascades, then sunshine.

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Journey of Hope: Day 2

Day two of our journey had Linda and I heading west from Twin Falls to Boise, ID for a scheduled meet up with Cindy Thomas of the Cholangiocarcinoma Foundation staff, and Steven Banks, a local cholangiocarcinoma warrior.

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Journey of Hope: Day 1

After a great send off from Ken Garff Honda, Orem, UT, Linda and I began our 15,000 mile journey. With the foundation celebrating its’ 15th anniversary, our first duty was to commence the drive on I-15 northbound.

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Cheer Dave On!

May 20th was an exhilarating day for CCF. Friends, family, and other locals gathered together with signs and balloons as Dave Fleischer left on his 15,000 mile Journey of Hope in honor of their daughter Sarah.

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Bundles of Hope

Dear Friends, This year CCF is celebrating 15 years of providing love, comfort, and hope to the cholangiocarcinoma community. We are honored to serve as Co-Chairs of the 15th Anniversary Steering committee. We hope you have been enjoying the monthly “What’s Your 15?” opportunities to remember, reflect and give back to this community we have…

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