Blog Post
Five for Friday – 5 CholangioConnect Updates
The Foundation recently celebrated its 500th mentor/mentee relationship with the CholangioConnect program. This week we are sharing a more in-depth look into the CholangioConnect Program.
Read MoreCholangioConnect Update – Patty Maxin
Just shy of the fourth anniversary of CholangioConnect, there was a celebratory enthusiasm as the administrative entry registered its 500th connection through the Foundation’s mentoring platform.
Read MoreCholangiocarcinoma Foundation commends FDA approval of new therapy for cholangiocarcinoma patients
CCF provided patient insights into Servier’s development of TIBSOVO® as a treatment for individuals with IDH1-mutated cholangiocarcinoma.
Read MoreCholangioConnect Mentee Testimonials – Jessica Thomas
CholangioConnect was my mooring in a hurricane. Life seemed impossibly full of information and emotions, and I was so grateful for my mentor.
Read MoreShaun Hope: ‘It Could Be Worse’
Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun was a geek at heart. Even while struggling with fatigue and pain, he worked as long as he was able to. He built an arcade, purchased a 3-D printer to…
Read MoreCholangioConnect Mentee Testimonials – Rob Howard
Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.
Read MoreFive for Friday – 5 CCA Survivor Stories
In anticipation of our upcoming Newly Diagnosed program, we would like to recognize several friends of the Foundation who have been willing to share their survivor stories.
Read MoreTeam Sarah Newton
Sarah Newton of Galena, Illinois has been dealing with bile duct cancer since her diagnosis in July 2020. She has endured four-plus months of chemo, two procedures involving implanting Y90 in both lobes of her liver and is currently taking gene therapy medication.
Read More2nd Annual Moving for the Cure Recap
TeamCCF sponsored its 2nd Annual Moving for the Cure, July 18 – 24. Families and individuals accepted the challenge to raise at least $200 and perform any physical movement during that week in July. In the end, the Moving for the Cure participants and sponsors raised more than $96,000!
Read MoreCholangiocarcinoma Foundation raises more than $76,000 in 2nd Annual Moving for the Cure
The Cholangiocarcinoma Foundation (CCF) and TeamCCF sponsored its second athletic event, Moving for the Cure. The virtual fundraiser invited participants from around the world, of any age, and of any physical ability to raise money through an athletic event of their choosing.
Read More2022 Annual Conference T-Shirt Design Contest!
CCF is excited to announce the 2022 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.
Read MoreFive for Friday – 5 Clinical Trial Categories
A cholangiocarcinoma (CCA) diagnosis can be overwhelming when you have the burden of figuring out what treatment options are best for you.
Read MoreBidding for the Cure
Thanks to everyone that participated! Help fund research that will move us closer to a cure. To celebrate the Cholangiocarcinoma Foundation’s 15th Anniversary, and to support our volunteer committee’s pledge to raise $150,000 to fund critical research into cholangiocarcinoma, we are holding our first-ever virtual silent auction – Bidding for the Cure. We are auctioning…
Read MoreFive for Friday – 5 Webinars You Can Watch Online
Did you know that all educational webinars are recorded and added to CCF’s YouTube Channel?
Read MoreFive for Friday – 5 Ways You Can Support CholangioConnect
It’s time to celebrate! July 2021 marks the creation of the 500th mentor/mentee relationship with CholangioConnect since its beginning in July of 2017.
Read MoreWhispers Over My Shoulder
Excerpt from the ASCO Post, by Mairéad Geraldine McNamara, MB, PhD. When I interviewed for my current post as a first-time consultant in medical oncology in the United Kingdom, I was asked about my 5-year career plan. I remember some detail of my reply, but I don’t think it even remotely encompassed the depth of insight…
Read MoreFive for Friday – 5 Recent News Articles
Keeping you informed and educated about cholangiocarcinoma is a priority for us at the foundation.
Read MoreFive for Friday – 5 ways to get ‘Moving for the Cure’
Join CCF’s 2nd Annual Moving for the Cure! Enjoy any activity, anywhere, and raise money for the Foundation. All ages and athletic abilities can participate.
Read MoreFive for Friday – Five events that the cholangiocarcinoma community has put together
This week, we are featuring five (5) events that the cholangiocarcinoma community has put together to engage with others, be proactive in facilitating awareness, and raise money for the Cholangiocarcinoma Foundation.
Read MoreJourney of Hope: Day 42
On May 19th when Linda and I were flying to Salt Lake City to begin the Journey of Hope, I wrote a note to myself wondering what lay ahead for the next six weeks.
Read MoreJourney of Hope: Day 41
Well, here I am on the eve of the conclusion of my 15,000 mile Journey of Hope. I’ve checked off all the boxes of the milestones I originally set out to achieve. At least I thought I had…
Read MoreJourney of Hope: Day 40
Another milestone hit today: 48 states visited, and on schedule! 198 more miles to hit the commemorative 15,000 mark, and about 565 to the endpoint.
Read MoreJourney of Hope: Day 39
Leaving Barstow, CA, my first scheduled meet up was about 250 miles away in Paso Robles, CA.
Read MoreJourney of Hope: Day 38
I can now “check the box” for visits to towns named Hope, and also admit a blunder along the way.
Read MoreJourney of Hope: Day 37
It’s amazing what you can see and learn, on a single day, as part of a 40-day journey up, down, and across the country.
Read MoreFive for Friday – Five ways to get involved in the Journey of Hope
It is with extreme pleasure that we announce Dave Fleischer is near the end of his 15,000-mile Journey of Hope. On Wednesday, June 30th, he will make his way back to Utah and be greeted with a welcome back party at Ken Garff Honda Orem.
Read MoreJohn Blonder Memorial Ride
John and Jill Blonder were married for 34 years. They were preparing for retirement at their home in Dandridge, Tennessee when John discovered he had cholangiocarcinoma.
Read MoreJourney of Hope: Day 36
In my mind, today’s component of The Journey of Hope has to be marked as Close Encounters of the Third Kind.
Read MoreJourney of Hope: Day 35
This afternoon I had the opportunity to meet up with Tina Andera and Mindy Cooper (Warriors) at the Welcome Center in Cheyenne, WY.
Read MoreJourney of Hope: Day 34
“Toto, I have a feeling we’re not in Kansas anymore!” I had been waiting to say that through the first 41 states I visited. Now that I’m in NE., it’s officially stated!
Read MoreJourney of Hope: Day 33
A Tale of Two Cities: It’s interesting to see how different towns try to stay relevant and welcoming, especially when they are off an interstate highway.
Read MoreJourney of Hope: Day 32
Today, I made my way through two more towns named Hope; one in OH., and one in IN. I came to the realization that I’ve been in five small towns named Hope over the past four Sunday’s.
Read MoreJourney of Hope: Day 31
As I get into the last 5,000 miles of my Journey of Hope, I’m excited to see what lies ahead. This includes visits with warriors, caregivers, doctors, spontaneous encounters with the “unknowing”, and continuing to experience the vastness of our country.
Read MoreJourney of Hope: Day 30
Happy, Happy Valley! This is my second visit to Happy Valley in the past four weeks. The difference is the first time was in OR., and tonight I’m in PA; about 2,670 miles away.
Read MoreFive for Friday – 5 clinical trials presented at ASCO
The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) recognizes the important role clinical trials play in cancer advancements, especially GI cancers.
Read MoreJourney of Hope: Day 29
Headed east from Weston, WV, to Sparta, NJ, for a night of rest before starting the final 1/3 of my journey Friday afternoon. It was another beautiful day traveling through WV, western MD, PA, and back into NJ.
Read MoreJourney of Hope: Day 28
Have you ever thought about what the word obscure means? One definition is that it’s a state of being unknown, inconspicuous, or unimportant.
Read MoreJourney of Hope: Day 27
“Pushing a rock, pushing a rock”. As part of my journey I’m leaving a trail of Hope rocks that Linda painted across the country; in each of the 48 states, and in towns named Hope.
Read MoreJourney of Hope: Day 26
Tonight, I’d like to share two stories that continue to make my Journey of Hope one of the most meaningful experiences of my life.
Read MoreJourney of Hope: Day 25
Today was yet another eventful day on the Journey that went from A to Z; both literally and figuratively.
Read MoreJourney of Hope: Day 24
My scheduled visit today, was at the home of Heidi Garringer Rhea (warrior) in Mandeville, LA.
Read MoreJourney of Hope: Day 23
Anyone know where the tallest cast iron statue in the U.S. is located, and what its’ name is? As I approached my first meeting location of the day, in Birmingham, AL, I observed a significant statue on a pedestal on a high point in the city.
Read MoreFive for Friday – 5 Ways You Can Share Awareness
Cholangiocarcinoma Awareness Matters! This year nearly 10,000 people in the United States and many more across the world will be diagnosed with CCA, many in a late stage.
Read MoreJourney of Hope: Day 22
Have you ever had one of those days when you realize how finely tuned our lives are? That is until a few minor quirks get in the way. Today was one of those days for me.
Read MoreJourney of Hope: Day 21
As it’s the 15th anniversary of the Cholangiocarcinoma Foundation, many people now know that I’ve incorporated the number 15 into my journey in a variety of ways.
Read MoreJourney of Hope: Day 20
Another day of amazing moments, and a great way to mark the halfway point on the Journey, at least for # of states visited.
Read MoreJourney of Hope: Day 19
In driving terms, today’s schedule was a short one, as I was in the car for less than two hours.
Read MoreJourney of Hope: Day 18
To date, the Journey of Hope has been memorable in many ways that will be with me forever. Today, however, was a milestone event that rises to the top.
Read MoreJourney of Hope: Day 17
After a two-minute visit to the beach for a quick photo of the Atlantic Ocean, I left Ogunquit, ME @ 6:30 a.m., and headed two hours south to Holliston, MA, and the home of Kim Balkus.
Read MoreJourney of Hope: Day 16
Today was to be a day of rest, including a walk on the beach, here in Maine. Hah! Never happened.
Read MoreFive for Friday – 5 survivor stories
In anticipation of National Cancer Survivors Day on June 6th, we would like to recognize several friends of the foundation who have been willing to share their survivor stories.
Read MoreJourney of Hope: Day 15
I don’t want to jinx myself, however, the Journey just keeps getting more meaningful to me by the day! Now I’m starting to think how can it be possible that I only have 9,375 miles to go?!
Read MoreJourney of Hope: Day 14
Remember the movie Cast Away starring Tom Hanks and his companion Wilson, the soccer ball? Well, I had one of those episodes today, when Mike O’Langio my Mutations Matter photo bud seemed to have disappeared.
Read MoreJoin the Cholangiocarcinoma Foundation’s 2nd Annual Moving for the Cure!
TeamCCF would like to take this opportunity to engage those who want to fundraise for the Foundation in a fun and positive way with a fitness component.
Read MoreJourney of Hope: Day 13
What an inspiring day! My first stop this morning was in Akron, OH, where I was met by a “sea of green” at the home of Lisa (warrior and mentor) and David Craine.
Read MoreJourney of Hope: Day 12
I have to admit, this was a long day. As I planned the journey, I knew that was going to be the case, however, I didn’t plan on the hotel story at the end of the day.
Read MoreJourney of Hope: Day 11
Wow, another eventful day! The day started with me dropping Linda off at O’Hare Airport for her journey home to NJ, so as to be with our grandson, Austin, this week for “bus duty”.
Read MoreJourney of Hope: Day 10
It was a beautiful, cool, cloudless morning when Linda and I departed Rochester, MN, today. Our first official stop was about 275 miles away, fairly close to Milwaukee.
Read MoreJourney of Hope: Day 9
Departing from Watertown, SD, we headed in a southeasterly direction to Hope, MN., over a variety of roads, including interstates, two-lane state and county roads, plus an added bonus of dirt! It’s amazing what supposed shortcuts GPS will produce at times!
Read MoreCCF Celebrates FDA Approval of TRUSELTIQ™ for Cholangiocarcinoma Patients Developed by BridgeBio Pharma Affiliate QED Therapeutics
This is an important milestone for this community and specifically for patients with CCA harboring an FGFR2-fusion.
Read MoreFive for Friday – 5 social media platforms that you can follow us on
Our social media platforms allow us to tell your stories. Messages can help increase awareness, promote programs and initiatives and spread the word about our mission.
Read MoreJourney of Hope: Day 8
As we departed Dickinson, ND, this morning, we were greeted with a windy 35°, and snow showers! Quite a difference for those in New England talking about how hot it is at 90°. Driving east on I-94 our first stop was to see Salem Sue, the world’s largest Holstein cow!
Read MoreJourney of Hope: Day 7
We started our A.M. drive in Livingston, MT, and proceeded to Billings, MT. to pick up Melinda Bacchini, a CC Warrior who is also on the staff of the foundation. Melinda is Director of Patient Advocacy and an 11½ year survivor.
Read MoreJourney of Hope: Day 6
We saw a lot of gorgeous scenery today, including Sandpoint and Hope, ID, as well as East Hope, and believe it or not, an area known as Beyond Hope! The beauty continued into MT. with diverse scenery and weather conditions along MT Route 200 and I-90 eastbound before the pouring rain started in Anaconda, MT.
Read MoreJourney of Hope: Day 5
This morning, Linda and I had the opportunity for a meet-up outside the Fred Hutch Cancer Center in Seattle. Our mission was to thank doctors who are improving the lives and finding a cure, for cholangiocarcinoma patients, now and in the future.
Read MoreWebinar: Patient Centered Partnerships
Have you ever wondered about how CCF engages with Industry Partners? Join our webinar on May 27th to learn about the partnerships and collaboration we have with industry.
Read MoreJourney of Hope: Day 4
This morning Linda and I had the opportunity to meet in the Vancouver, WA area, with one of my ex-colleagues, his wife, and daughter, Sara. Two years ago, Sara was a recipient of the Sarah Fleischer Bennett memorial scholarship.
Read MoreJourney of Hope: Day 3
Day three of the JoH was another day full of fulfilling visits, beautiful scenery and variations in weather, including rain, heavy fog on the curvy roads of the Cascades, then sunshine.
Read MoreJourney of Hope: Day 2
Day two of our journey had Linda and I heading west from Twin Falls to Boise, ID for a scheduled meet up with Cindy Thomas of the Cholangiocarcinoma Foundation staff, and Steven Banks, a local cholangiocarcinoma warrior.
Read MoreFive for Friday – 5 events you might have missed
Each week we bring you the latest information and updates relevant to the CCF community through our live webinars and other events.
Read MoreJourney of Hope: Day 1
After a great send off from Ken Garff Honda, Orem, UT, Linda and I began our 15,000 mile journey. With the foundation celebrating its’ 15th anniversary, our first duty was to commence the drive on I-15 northbound.
Read MoreCheer Dave On!
May 20th was an exhilarating day for CCF. Friends, family, and other locals gathered together with signs and balloons as Dave Fleischer left on his 15,000 mile Journey of Hope in honor of their daughter Sarah.
Read MoreThe Second Annual Quack Out Cholangio 5K Run/Walk to Crush Bile Duct Cancer
The perfect race day weather in Delaware welcomed Cholangiocarcinoma Warriors, friends, and family from across the United
States.
Five for Friday – 5 ways you can get involved with the Journey of Hope
Dave and Linda Fleischer plan to spend 6 weeks driving across the United States on a 15,000 mile Journey of Hope in memory of their daughter, Sarah Bennett.
Read MoreLoving Parents Plan a 15,000 mile Journey of Hope in Memory of their Daughter
Dave and Linda Fleischer will Raise Awareness and Money for Research for Cholangiocarcinoma through a Road trip Across the United States.
Read MoreFive for Friday – 5 ways you can participate in Campaign for the Cure
Join a vibrant community of donors helping to find a cure for cholangiocarcinoma and improving the lives of patients and families.
Read MoreCCF Celebrates FDA’s Filing Acceptance and Priority Review of TIBSOVO® for the Treatment of IDH1-mutations in CCA
This is an important milestone for this community and specifically for patients with an IDH1 mutation.
Read More15,000 Mile Journey of Hope
I’m planning a 15,000 mile Journey of Hope; a road trip up, down and across the 48 contiguous United States.
Read MoreFive for Friday – 5 impacts of volunteers and ways to get involved
While April is set aside to focus gratitude for volunteers, we recognize and appreciate their contribution every day.
Read MoreFirst Inaugural Quack Out Cholangio 5k to Crush Bile Duct Cancer 2020
Home / Blog / First Inaugural Quack Out Cholangio 5k to Crush Bile Duct Cancer 2020 Ever since Janice Meyer’s diagnosis in 2018, she has been passionate in her commitment to raise funds and awareness of cholangiocarcinoma. Jan’s passion led to Delaware becoming the first state to declare February 12 as World Cholangiocarcinoma day in…
Read MoreFive for Friday – 5 presentation highlights from our Annual Conference
Annual Conference sessions are now available on our YouTube channel and website.
Read More15th Anniversary Auction
Our 15th Anniversary volunteer committee has pledged to raise $150,000 to help fund critical research into this deadly disease.
Read MoreBundles of Hope
Dear Friends, This year CCF is celebrating 15 years of providing love, comfort, and hope to the cholangiocarcinoma community. We are honored to serve as Co-Chairs of the 15th Anniversary Steering committee. We hope you have been enjoying the monthly “What’s Your 15?” opportunities to remember, reflect and give back to this community we have…
Read MoreFive for Friday – 5 ways you can get involved with CCF’s 15th Anniversary
Join us as we explore our roots and applaud the many individuals and organizations who have contributed to our growth and impact.
Read MoreFive for Friday – 5 surveys that you can participate in
If you haven’t taken the surveys, please take a few moments to complete them. These surveys are very important in our planning for the conference.
Read MoreCCF Awards $300,000 in Research Grants to Fund Early Career Investigators at Renowned Institutions
CCF has awarded the 6th cycle of funding for its Research Fellowship Program.
Read MoreCCF Presents First-Ever Poster Awards
The Cholangiocarcinoma Foundation (CCF) announced the inaugural 2021 Poster Abstract Awards at its virtual annual conference.
Read MoreCCF is pleased to award the 2021 Mark R. Clements Award to Renuka Iyer and Lisa Craine
The Cholangiocarcinoma Foundation (CCF) announced the 2021 Mark R. Clements honorees at its virtual annual conference.
Read MoreEmory-CCF-Ciitizen Quality of Life Survey
We are writing to request your participation in a research study. The study is being conducted through the Winship Cancer Institute at Emory University in collaboration with the Cholangiocarcinoma Foundation and Ciitizen.
Read MoreFive for Friday – 5 tutorial videos to help you learn your way around the platform
We encourage you to login before the conference starts to familiarize yourself with the platform. This week we are sharing 5 tutorial videos to help you learn your way around the platform.
Read MoreFive for Friday – 5 hashtags that you can use to help people learn about our Annual Conference and raise awareness of cholangiocarcinoma
CCF’s 8th Annual Conference is around the corner! We encourage you to use hashtags to help friends, family and colleagues know what is happening at this conference.
Read MoreFive for Friday – Here are 5 ways to prepare for the Annual Conference
CCF’s 8th Annual Conference is 19 days away! Join more than 1,000 patients, caregivers, scientists, researchers, and healthcare providers from around the globe.
Read MoreFive for Friday – 5 highlights from Awareness Month
Awareness Month 2021 has been the most impactful yet! Thank you to all those that participated in shining a light on cholangiocarcinoma this year.
Read MoreCholangiocarcinoma Foundation Hails Milestone in Effort to Advance new Treatment for IDH1-positive Cholangiocarcinoma Patients as Agios Announces New FDA Filing for TIBSOVO®
“This is an important milestone for this community and specifically for patients with an IDH1 mutation.”
Read MoreFive for Friday – 5 ways you can join Annual Conference fun
Our conference is jam-packed with fun games, trivia and more. We’ve created several ways for you to feel involved and connect with other CCF friends.
Read MoreCholangiocarcinoma Foundation partners with Japan Cholangiocarcinoma Association to Increase Global Advocacy for Bile Duct Cancer
CCF has partnered with the newly formed Japan Cholangiocarcinoma Association to serve patients, raise awareness, fund and create a network for research and healthcare providers in Japan and throughout Asia.
Read MoreFive for Friday – 5 patient-friendly videos
We teamed up with Mill Pond Communications, with support from QED Theraputics and Bayer to create several patient-friendly videos explaining important topics about CCA.
Read More‘I Can’t Believe Your Gone’: The Story Behind the Song
Josh Bloomfield was a top blues drummer and vocalist who contributed so much to his 41 years of life. Although short in stature, his large personality and musical talents made a splash in the Capital Region.
Read MoreFive for Friday – 5 ways that you can participate in World Cholangiocarcinoma Day
World Cholangiocarcinoma (CCA) Day is an international effort to raise much-needed awareness of CCA. This disease is increasing in incidence globally and we believe collaboration is crucial to move forward towards a cure.
Read MoreFive for Friday – 5 ways you can get involved in Awareness Month
This month, we invite everyone to participate in Cholangiocarcinoma Awareness Month. Let’s work together to raise much-needed awareness by shining a light on CCA throughout the world.
Read MoreMusic Video/Lip Sync for the 2021 Annual Conference
CCF plans to have some fun during the conference! We are excited to announce our second annual Music Video Contest and this year’s winning song.
Read MoreFive for Friday – 5 clinical trials presented at GI ASCO
The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) recognizes the important role clinical trials play in cancer advancements, especially GI cancers.
Read MoreCholangiocarcinoma Foundation Celebrates 15th Anniversary Milestone
In 2021, the organization will celebrate its rich history and the many individuals and organizations who have contributed to the organization’s growth and the impact it has made in the cancer community.
Read MoreFive for Friday – 5 takeaways from GI ASCO
GI ASCO is a global symposium that delivers the latest and most innovative science, research, and multidisciplinary educational content in the GI cancers field.
Read MoreCholangiocarcinoma Foundation Launches Trusted Partners Program
Collaboration is a core value at CCF and is fundamental to the Foundation’s growth and ability to provide high-quality programs and services to the CCA community.
Read MoreFive for Friday – 5 reasons why you should participate in research with Ciitizen
You are the future of research, and we want you to know that your validated data matters. When you request your health records and share your data with Ciitizen, you are helping us find a cure for cholangiocarcinoma (CCA).
Read MoreFive for Friday – 5 events to add to your calendar as we begin the new year
We hope you had a Happy New Year! Exciting things are happening at Cholangiocarcinoma Foundation (CCF) this year, including celebrating our 15th Anniversary and more.
Read MoreLight It Green for Cholangiocarcinoma
Please help us participate in CCF’s Light It Green For CC project! We are excited to grow this campaign in 2021.
Read MorePatient Highlight – Bekki Slater
I am a 40 year old mother of two, Grace (9) and Connor (7). I am incredibly lucky to be married to my best friend and love of my life Jason, who is the pillar of our family.
Read MoreEat to Beat Disease
“Let food by thy medicine and let medicine be thy food”. Hippocrates is thought to be the source of this quote, but Dr. William Li, world-renowned physician, scientist, and author, reiterated this concept during his keynote speech at the Cholangiocarcinoma Foundation’s Annual Conference on August 4, 2020. Dr. Li authored a recently published book entitled,…
Read MoreLongterm Patient Highlight – Matt Reidy
Matt Reidy was diagnosed in 2013 with stage II perihilar CC. Matt is from Richmond, VA, is married with 4 children ages 12-25. Matt is a retired IT Executive and enjoys wood. working, sailing, water sports.
Read MoreFive for Friday – 5 impactful ways you can make a year-end gift
As 2020 comes to a close, there are a number of opportunities to support the work of the Cholangiocarcinoma Foundation. Your Year-End Giving can make a long-term impact.
Read MoreCholangiocarcinoma Foundation Receives a $500,000 Gift, the Largest in its History, from the Scott Family in Memory of Andrea Scott
The Cholangiocarcinoma Foundation (CCF) received a gift of $500,000, the largest in its history, from The Scott Family, in memory of wife and mother, Andrea (Breuhan) Scott, who lost her courageous 18-month battle with the disease in 2014.
Read MoreLongterm Patient Highlight – Tom Leitzke
My name is Tom Leitzke. I was born and raised in Sandusky, Ohio, and was living as an expatriate in Japan, managing global operations for a publicly-traded robotics company when I was diagnosed with perihilar cholangiocarcinoma (stage 3B) in 2007. I was 58.
Read MoreFive for Friday – 5 ways you can get involved with the 2021 Annual Conference
There is a lot of planning that goes on behind the scenes and we are working hard to make it the best conference yet. This week we are sharing 5 ways you can get involved with the 2021 Annual Conference now.
Read More2021 Annual Conference T-Shirt Design Contest!
CCF is excited to announce the 2021 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.
Read MoreCholangiocarcinoma Foundation celebrates FDA’s Breakthrough Therapy Designation for Zanidatamab in Patients with Biliary Tract Cancer
The Cholangiocarcinoma Foundation (CCF) celebrates the November 30, 2020 FDA breakthrough therapy designation for Zanidatamab in patients with previously-treated HER2 gene-amplified biliary tract cancer. A HER-2 or Human Epidermal Growth Factor Receptor 2 mutation occurs when cancer causes the HER-2 cell to produce too much protein, resulting in cells dividing and growing too fast. HER-2…
Read MoreAlie Plouff and Candles for the Cure
My name is Alie Plouff, and I am a volunteer and former caregiver with the Cholangiocarcinoma Foundation. I first discovered the Cholangiocarcinoma Foundation when my parents returned home from the Annual Conference in Salt Lake City in 2016.
Read MoreSurvey Opportunity – Patient experiences of living with CCA
Researchers at Emory University are studying quality of life among patients with cholangiocarcinoma (CCA). Please consider taking this brief survey to help them better understand patient experiences for those living with CCA.
Read MoreFive for Friday – 5 ways you can get involved in Candles for the Cure
This holiday season, we are asking everyone to take part in our annual year-end holiday campaign called #CandlesForTheCure by lighting a virtual candle in honor or memory of friends or family who have been affected by cholangiocarcinoma.
Read MoreYour Year-End Giving Can Make A Long-Term Impact
Three impactful ways you can make a year-end gift As 2020 comes to a close, there are a number of opportunities to support the work of the Cholangiocarcinoma Foundation. One good thing to come out of the COVID Pandemic is the CARES Act (Coronavirus Aid, Relief, and Economic Security Act) provisions for charitable giving. The…
Read MoreCholangiocarcinoma Foundation celebrates FDA’s Acceptance Of New Drug Application For Infigratinib For The Treatment Of Cholangiocarcinoma
On behalf of patients and families impacted by cholangiocarcinoma, the Cholangiocarcinoma Foundation (CCF) celebrates the December 1, 2020 FDA acceptance of Infigratinib. QED Therapeutics, is a subsidiary of BridgeBio, which is focused on precision medicine for FGFR-driven cancers. Infigratinib is an oral FGFR1-3 selective inhibitor, for individuals with cholangiocarcinoma, or cancer of the bile ducts.…
Read MoreWe’re planning the 2021 Annual Conference and we need your feedback!
Home / Blog / We’re planning the 2021 Annual Conference and we need your feedback! We are hard at work planning our virtual Annual Conference, to be held March 31—April 2, 2021. One of the key components of the Conference is Patient Day, where we seek to provide our community with information, support and a…
Read MoreSurvivor Highlight: Libby Wolfe
My name is Libby Wolfe. I live in Pewaukee, Wisconsin. I grew up in Connecticut, went to college in Virginia, and moved to Chicago in the 1970s. In Chicago, I worked as a property manager for a Real Estate firm.
Read MorePatient Support Group
Each week we present the latest information and updates relevant to the CCF community. Support Groups will be held the 1st (Patient) and 3rd (Caregiver) week of every month and Educational Webinars will be held on the 2nd and 4th week of each month. Please join us the first Thursday of the month for a…
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