Video Presentations
Webinar: The RELEASE trial and the technology behind
This webinar is intended for patients with inoperable extrahepatic cholangiocarcinoma (CCA) who consider enrolment into a clinical trial.
Read MoreFB Live: Living with Cholangiocarcinoma – Journey to Diagnosis & Beyond
Facebook Live event, “Living with Cholangiocarcinoma – Journey to Diagnosis & Beyond.” We hope you tune in to hear from those in the #cholangiocarcinoma community!
Read MoreWebinar: Clinical Trial Finder
CCF and Ciitizen launch first of it’s kind Clinical Trial matching powered by a patient’s complete medical history, automatically.
Read MoreWebinar: Modified Immune Cells and a Vaccine After High-Dose External Beam Radiation
The Mayo Clinic presents Modified Immune Cells (Autologous Dendritic Cells) and a Vaccine (Prevnar) After High-Dose External Beam Radiation.
Read MoreWebinar: “Should I get a second opinion?”
The first diagnosis isn’t always correct or complete. According to a study by the Mayo Clinic, 88% of original diagnoses were changed or refined by a second opinion.
Read MoreWebinar: Virtual Ciitizen Onboarding Party
Join us for a virtual onboarding event with our partners at Ciitizen to learn how you can use Ciitizen’s platform to take control of your medical data and contribute to important medical research for cholangiocarcinoma.
Read MoreWebinar: Patient Health Data Rights & Privacy
Subscribe to our YouTube Channel Do you have questions about your health data privacy and your rights to access your own medical records? Join us for an educational webinar with health privacy and security expert Deven McGraw, who is Ciitizen’s Chief Regulatory Officer. Deven previously directed U.S. health privacy and security as Deputy Director, Health…
Read MoreWebinar: Clinical Trials 101
Subscribe to our YouTube Channel The Cholangiocarcinoma Foundation is here for you! We’ve loved connecting with you each week and hope you’ll continue to do so. Our Weekly Webinars provide our CCF community with the latest information and updates pertaining to CCA. Our hope is to continue to connect, inspire and educate. Our Clinical Trials…
Read More#MapItForward & the Real World Genomics Study Launch!
Subscribe to our YouTube Channel Register Here What is #MapItForward & the Real World Genomics Study Recent medical advances support the need for all cholangiocarcinoma patients to receive biomarker testing as part of their treatment, however the rate at which patients are actually receiving this testing in the real world is unknown. Real-world evidence is…
Read MoreWebinar: CCF & Ciitizen-Take Control of Your Health Data
On August 12, the Cholangiocarcinoma Foundation announced a partnership with Ciitizen. This partnership is formed around the belief that you should have full access to your health data. Cholangiocarcinoma patients have immediate access to the Ciitizen platform, which enables you to gather your medical records and leverage this platform to control your health data. When…
Read More2019 Annual Conference Videos
All of the presentations at our 2019 Annual Conference are online and waiting to be viewed! Visit our Conference in Review page for photos, a recap video and videos from many of the presentations, or if you prefer, visit our YouTube Channel, where we have all of the Conference Videos arranged into a playlist.
Read MoreKeynote Presentation from the 2019 CCF Annual Conference
Advancing technologies and the tipping point for Medicine Vivek Wadhwa, Keynote Speaker
Read MoreFree Webinar: TAS 120 Clinical Trial in Cholangiocarcinoma Updates
This free webinar provided updates on the TAS 120 clinical trial and also served as a question and answer forum for patients and caregivers.
Read More2018 Annual Conference Videos
All of the presentations at our 2018 Annual Conference are online and waiting to be viewed! Visit our Conference in Review page for photos, a recap video and videos from many of the presentations. 2018 Annual Conference in Review
Read More2017 Annual Conference Videos
Most presentations at our 2017 Annual Conference are online and waiting to be viewed! Visit our Conference in Review page for photos, a recap video and videos from many of the presentations. 2017 Annual Conference in Review
Read MoreWebinar: Role of CEACAM6 as a Biomarker in Cholangiocarcinoma
Presenter: Flavio Rocha, MD Title of Presentation: Targeting BAP1 Mutations in Intrahepatic Cholangiocarcinoma Summary of Presentation: There are no good biomarkers for the early diagnosis of cholangiocarcinoma. CEACAM6 is an extracellular protein involved in cell signaling. When overexpressed in gastrointestinal malignancies such as pancreas and colon cancer, it is associated with worse prognosis. Therefore we hypothesized…
Read MoreWebinars: Targeting BAP1 Mutations & Development of a Mouse Model
Presenter: Milind Javle, MD Title of Presentation: Targeting BAP1 Mutations in Intrahepatic Cholangiocarcinoma Summary of Presentation: The purpose of this study is to identify molecular subgroups of cholangiocarcinoma by estimating the frequency of BAP1 mutations in patients with intrahepatic cholangiocarcinoma, examining BAP1 and other genes in cholangiocarcinoma to link with diagnosis and patient outcomes, and…
Read More2016 Annual Conference Videos
Most presentations at our 2016 Annual Conference are online and waiting to be viewed! Visit our Conference in Review page for photos, a recap video and videos from many of the presentations. 2016 Annual Conference in Review
Read MoreCCF Grantee Webinar Series II
Determining the Cellular Origins of Cholangiocarcinoma Allyson Merrell, University of Pennsylvania (Powerpoint Slides) A Balancing Act: Dysregulated Differentiation and Proliferation as a Novel Mechanism of Cholangiocarcinoma Formation Chad Walesky, Brigham and Women’s Hospital (Powerpoint Slides)
Read MoreCCF Grantee Webinar Series I
Part 1 Implementation of Precision Medicine Approaches in Intrahepatic Cholangiocarcinoma Daniela Sia, Icahn School of Medicine at Mount Sinai (Powerpoint Slides) Part 2 Fibroblast Growth Factor Receptor FGFR Family Gene Aberrations in Cholangiocarcinoma Katsuyuki Miyabe, Mayo Clinic (Powerpoint Slides)
Read MoreWhat Patients Need to Know About Hilar Cholangiocarcinoma and Liver Transplant
On Tuesday, Aug. 11 at Noon CT, Mayo Clinic hosted an interactive webinar on hilar cholangiocarcinoma (cancer of the bile ducts). Julie Heimbach, MD, Liver Transplant Program Surgical Director, and Sumera Rizvi, MBBS, Gastroenterology and Hematology Fellow, discussed hilar cholangiocarcinoma symptoms, diagnosis, and treatment options, including liver transplantation. A live question and answer session followed…
Read MoreRecent Advances in Adjuvant Therapy for Cholangiocarcinoma
Description: Filmed on location in New York during the Great Debates and Updates in GI Malignancies 2015, this webcast is part of a series that provides educational discussions on controversial areas in the management of gastrointestinal malignancies. Join us as nationally-recognized thought leaders take opposing sides on topics of clinical interest, and present updates in…
Read MoreWebinar: Using “Spacers” for Safer Delivery of High Dose Radiation Therapy
Webinar: Using “Spacers” for Safer Delivery of High Dose Radiation Therapy High dose radiation therapy is effective in the treatment of liver tumors. However, the greatest limitation in the use of radiation is not the liver itself, but rather adjacent organs like the stomach or intestines, which do not tolerate high doses of radiation therapy.…
Read MoreWebinar: The Emerging Role of Radiation for Intrahepatic Cholangiocarcinoma: Higher Doses Lead to Improved Survival
This presentation focused on the non-operative treatment of intrahepatic cholangiocarcinoma. Over the past 5 years, new technology has allowed much higher doses of radiation to be given safely. These doses are capable of ablating the tumor and preventing it from causing liver failure and death, leading to much longer survival and a realistic chance for…
Read MoreWebinar: Photodynamic Therapy, A Ray of Light in Cholangiocarcinoma: The OPUS Trial
“Photodynamic Therapy, A Ray of Light in Cholangiocarcinoma: The OPUS Trial” presented by Dr. David E. Loren, Associate Director of Endoscopy and Co-Director of the Pancreaticobiliary Section at Thomas Jefferson University Hospital. Cholangiocarcinoma is a disease that often leaves patients and their physicians feeling that they have few options for treatment. This presentation discusses an emerging…
Read MoreThe Three Types of Cholangiocarcinoma and How to Treat Them
Sumera H. Rizvi, MBBS, a fellow in the division of Gastroenterology and Hepatology at Mayo Clinic, Rochester, discusses the three types of cholangiocarcinoma (bile duct cancer) and some treatments that are available.
Read MoreSurgical Management of Cholangiocarcinoma – State of the Art and Beyond
Title: Surgical Management of Cholangiocarcinoma – State of the Art and Beyond When:Thursday, Nov 13, 2014, 3:00 PM – 4:00 PM EST Presented by: Dr. Tomoaki Kato, Chief of the Division of Abdominal Organ Transplantation at New York-Presbyterian Hospital/Columbia University Medical Center Description: This webinar will feature Dr. Tomoaki Kato, a renowned expert in liver and intestinal…
Read MoreUsing Patients’ Own Immune System to Knock-out Cancer: Adoptive Cell Therapy
Click here to download the presentation (.pdf) Topic: Using Patients’ Own Immune System to Knock-out Cancer: Adoptive Cell Therapy Presenters: Steven A. Rosenberg, M.D., Ph.D., National Cancer Institute Eric Tran, Ph.D., National Institutes of Health Surgery Branch, Tumor Immunology Section Melinda Bachini, CCF Patient Advocate and NIH Research Study Participant Overview: Join Dr. Steven A. Rosenberg (National Cancer Institute)…
Read MoreVideo: My Toughest Marathon-A Runner’s Perspective on Cancer
On September 29, CCF held its first web chat with guest speaker Bill Merriam. Bill recently created a new video for the Foundation to share his perspective on cancer. Participants were able to submit questions in advance and join the web chat to hear directly from Bill. Bill is the father of 6 and grandfather…
Read MoreWebinar: Palliative Surgery for Patients with Cholangiocarcinoma
Some people with cholangiocarcinoma are unable to be cured because their tumor is either inoperable or has spread. These patients can develop blockages of the bile ducts or intestines causing jaundice, severe itching, nausea and/or vomiting. Palliative surgery or endoscopic procedures may be able to provide relief of symptoms. We will be discussing the role…
Read MoreWebinar: Update on Cholangiocarcinoma – What we have learned from the International Hepatobiliary Neoplasia Biorepository
Topic: “Update on Cholangiocarcinoma: What we have learned from the International Hepatobiliary Neoplasia Biorepository” Presenter: Dr. Roongruedee Chaiteerakij, Mayo Clinic, MN Purpose: Educate patients so they better understand how Mayo Clinic is using the information and bio-specimens they provide to improve care all for cholangiocarcinoma patients. Download the Powerpoint Presentation
Read MoreModeling Cholangiocarcinoma
Modeling Cholangiocarcinoma Webinar from Cholangiocarcinoma Foundation on Vimeo. “Like all cancers, cholangiocarcinoma is a genetic disease. I will present our effort to comprehensively characterize the genetic landscape of cholangiocarcinoma and to use this information to develop genetically representative models of this disease that will serve as instrumental tools in our search for novel therapies. ” –…
Read MoreUnderstanding Cancer in the Age of Genomics
Understanding Cancer in the Age of Genomics from Cholangiocarcinoma Foundation on Vimeo. Presented by Dr. C. Jimmy Lin MD, PhD, MHS. About Dr. Lin and his work in genomics.
Read MoreNew Intrahepatic Cholangiocarcinoma Clinical Trial
New Intrahepatic Cholangiocarcinoma Clinical Trial from Cholangiocarcinoma Foundation on Vimeo. Intrahepatic cholangiocarcinoma affect approximately 2000 people a year in the US. Many patients are not able to have an operation to remove the bile duct cancer. We are preparing to enroll patients in a clinical trial which includes patients who can have an operation and…
Read MoreFeeling Guilty for Having Cancer
Feeling Guilty for Having Cancer from Cholangiocarcinoma Foundation on Vimeo. No one asks for cancer, but when the diagnosis is confirmed some patients feel guilty for being sick! In this informative webinar, Dr. Geret Giles discusses the phenomena of Patient Guilt and what we can do about it–for ourselves and for the ones we love.
Read MoreGrant Recipient Reports on Research Progress
Grant Recipient Reports on Research Progress from Cholangiocarcinoma Foundation on Vimeo. Surbpong Tanasanvimon received a LIFe recipient grant from The Cholangiocarcinoma Foundation in 2012 this grant was awarded through the Conquer Cancer Foundation (which is the non-profit arm of ASCO). He recently had the opportunity to present his research at the 2013 GI Symposium.
Read MoreCEACAM6 as a Biological Marker and Prognostic Factor for Biliary Malignancy
In 2011, The Cholangiocarcinoma Foundation funded two grants through the Conquer Cancer Foundation: the Young Investigator Award and the Long Term International Fellowship Award. The Young Investigator Award was presented to Dr. Flavio Rocha.
Read MoreCaregivers and the emotions of caring for a patient with a terminal illness
Does caring for your loved one leave you feeling overwhelmed with stress, anxiety, depression, and fear… (there are a few hiccups during the first 10-15 seconds, they do not persist through the entire video. we apologize for the inconvenience.)
Read MorePatient Registry
Dr. Lewis Roberts from The Mayo Clinical will highlight details about the patient registry at The Mayo Clinic, and how this registry can assist with efforts in advancing research of bile duct cancer.
Read MorePhase II Study Of Intrahepatic Arterial Injection of 90-Y Glass Microspheres As First-Line Treatment
This is a trial using intra-arterial injection of radioactive glass microspheres as first-line treatment for intrahepatic cholangiocarcinoma…
Read MoreBiliary Tract Diseases
The Cholangiocarcinoma Foundation, in partnership with the Primary Schlerosing Cholangitis Foundation, hosted this webinar focused on biliary…
Read MoreReview of Cholangiocarcinoma Research
Dr. Ghassan K. Abou-Alfa from Memorial Sloan-Kettering Cancer Center lead the discussion, which included noteworthy updates from the 2011…
Read MoreInterview with OncUViewTV
From ASCO 2011 — A discussion with Sara Hinkley, President of The Cholangiocarcinoma Foundation about the foundation and bile duct cancer.
Read MoreSpotlight Webinar Series: 2011 Review of Chemotherapy Treatment in Bile Duct Cancer
As part of our ongoing educational series, The Cholangiocarcinoma Foundation is proud to present a review of chemotherapy treatment for… posted: Apr. 12, 2011
Read MoreWebinar: Dealing with the Emotions of Diagnosis
” . . . the test results are back and there are tumors on your liver . . .” With those chilling words, the emotional and physical battle…
Read MoreBranching Out: How To Establish a Local Cholangiocarcinoma Support Group
The Cholangiocarcinoma Foundation is pleased to introduce an informational series focused on helping you get involved in with developing…
Read MoreSpotlight on Young Investigator Award and 2010 Review
Back in September 2010, The Cholangiocarcinoma Foundation announced that it was partnering with the American Society of Clinical Oncology…
Read More2010 Review of Controversies in Surgical Treatment
As part of our ongoing educational series, The Cholangiocarcinoma Foundation invites you to join us for the upcoming web-based seminar featuring…
Read MoreClinical Trials 101
Have you found the clinical trial process confusing? Or are you looking for additional information on the available bile duct cancer clinical… posted: Feb. 19, 2010
Read More