How it Works

1. Fill out the Form

Fill out the Mentor Application Form below, providing us more information about yourself and your experience with Cholangiocarcinoma.

2. Someone Will Reach Out

We’ll send a profile questionnaire to get an idea of your personal experience with your disease history, treatments and demographic information or those of your loved ones

3. Connect with a PROGRAM MANAGER

We will email you a volunteer training manual and arrange for a personal telephone call or video conference with the Program Manager to welcome you to the program.

About Mentors

CholangioConnect is comprised solely of patients, caregivers, and mentors experienced in cholangiocarcinoma. Through CholangioConnect, patients and caregivers can connect with other patients and caregivers with similar circumstances.

The service is free and is not intended to put people in contact with individuals who give medical advice or recommendations. Any information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.

We’re available to answer any of your questions.

FAQ

CholangioConnect offers patients, caregivers, family members and friends the opportunity to ask questions and receive support from mentors who volunteer.

A diagnosis of cholangiocarcinoma (bile duct cancer) can be both stressful and confusing.  Mentors volunteer their time to help patients and caregivers.  Volunteers are cholangiocarcinoma survivors, patients, caregivers, family members or friends of a cholangiocarcinoma patient.

Mentors may share their personal diagnosis and treatment experiences if asked by a patient or caregiver However, the volunteers will not give medical advice or assist patients in contacting medical professionals.

Information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.

Our mission of supporting the cholangiocarcinoma community does not stop when patients lose their battle with this disease.  CholangioConnect has a group of volunteers who have lost a loved one to cholangiocarcinoma and are willing to offer support.

Patients or caregivers request a mentor by completing a questionnaire on the CholangioConnect web page.

The Program Manager will respond to requests, then begin the process of connecting patients with a mentor experienced in cholangiocarcinoma who shares a similar profile.

Once you return the questionnaire, The Program Manager will notify you by email when you have been connected with a mentor.

Your application will be shared with your assigned mentor, who has received confidentiality training.

Please provide us your contact information by clicking here.

Please begin the general volunteer application here. After completing volunteer training, you will be connected to the CholangioConnect team and receive training specific to the mentoring program. Your training will be complete following a virtual meeting with program staff to answer any questions you may have about your volunteer service.