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Kris,
Thanks for your posting. I laughed out load. It’s great to be able to start the day with a laugh. Uf duh…After a recent hospital stay for sepsis caused by a pesky blockage of bile ducts and treated with a couple of anti-biotics, I went several weeks with diareaha and a c-dif infection. One morning I finally had a normal bm and came back to bed to make the ‘announcement’ to my wife. As the words began to come out of my mouth, I started to cry. I thought to myself, “how pathetic, Bob” that I would get this worked up about a bm. Has it come to this… ?
Today is a gift from God… open the gift and enjoy.
bob
Isisman,
Has anyone considered that the change in stool color could be a sign of a “C-Dif” infection? I’ve had a couple recently and my stool turns yellow. They can be brought on by hospital stays or long term anti-biotic usage or more likely both. It is an infection of the intestinal track and is normally treated with another anti-biotic called flaggel (sp?).BTW, it’s good to have a place to vent where people “get it”…
Hi Lainy,
It was a extreme pleasure for Donna and I to connect with you and Teddy. (You other folks on this website already knew this but Donna and I discovered that Lainy is an angel and Teddy is a hero.) It was our first encounter with someone else facing CC and, I hope it is alright, but you already feel like family to us. Teddy, I love the way you have chosen to “live” with CC rather than die with it. BTW, you shouldn’t worry much about your rising golf scores. A wise sage once told me that golf is a lot like sex: you don’t have to be good at it to enjoy it. May God continue to bless you and use you to bring life and love to others… Love you guys.bob
Hi Steve,
My wife Donna would usually ask me a bunch of questions when ever I would return from a meeting with my Onc. You know… “what did he say about…” and so forth. I typically had few answers. So… frustrated, she decided to go along and ask the questions. After one such doctor visit, she was very quiet on the trip home. She didn’t like the answers. I think she finally understood that I hadn’t asked the questions because I frankly didn’t want the answers. Some times, reality SUCKS! One of my pet sayings is: “You people talk about denial like it’s a BAD thing”. For some people, all the “knowing” doesn’t change the outcome; it changes the journey. Please allow Nancy to direct her journey and to ask the questions when she is prepared to hear the answers.You and Nancy will be in my prayers. God Bless!
bob
Thanks Mary for good news. Four years!! It made my day to know that another survivor is celebrating a milestone. Indeed, take that statistics and take that cancer. I’m sure all of us have special dates in mind. Mine happens to be December 18…
Prayers for many more milestones for Tom. God Bless…
bob
Kris,
“I have only 6 more days chemo and 5 more radiation treatments.”
But then… who’s counting, right? I remember when I was through with chemo and had my last radiation treatment ( I seriously thought I would glow in the dark). During my first visit with the Onc., he asked how I felt. “Euphoric!” was my response. Congratulations for getting through this stage! Germany this time of the year should be delightful.
Grace, peace and prayers coming your direction.
bob
ANP,
At 5-1/2 years out from treatment, they found “spots” in both lungs during a routine six month CT scan. I was told there was a 90% chance they were ‘mets’. Very frightening. More so than the original diagnosis because it meant that the cancer was no longer localized but systemic. A byopsy of the nodules in the left lung proved to be benign although somewhat unexplained. Perhaps “scar tissue”? I opted to not byopsy the right lung but instead to watch the “spots” via CT’s. That was eight years ago… 90% means there’s a 10% chance of it being benign. There is always cause for hope…Peace, hope and faith to you,
bob
Rick,
It may sound crazy but…do you think it would help if the drug company received a flood of letters from the CC forum requesting financial aid for you to try their drug? Afterall, they too could benefit significantly from your trial. Particularly if it is shown to be effective after others haven’t been. I’m sure many here would love to write a letter on your behalf. Just a thought…May God restore your hope and give you peace.
bob
Sneezie,
Frightening journey indeed. But as you have seen, not a journey you must make alone. In the short time I have been aware of this website, I am amazed at the wisdom, knowledge and compassion to be found here. It helps restore one’s hope for humanity.My ‘journey’ has been so different from most everyone here, I don’t know if I have any worthwhile information. For me it has been mostly a faith journey rather than one of intense research. I don’t know if you are a person of faith or not. I would encourage you to continue your research and in the process, ask God to give you clear direction. I hope it doesn’t sound too weird to you but I have had Him ‘speak’ to me at times when I needed to ‘hear’ from Him. At other times, I was aware of His direction through a sense of peace in the course I was following. I am at a place now of needing to get direction for the next phase of my journey. My thirteen year old surgical procedure has been in the process of failing for a few years with scar tissue causing blockages and the jondice and infection following. I am being presented with a few options, none of which seem good. So I too am needing to ‘hear’ from God. By the way, so far I have had him respond with “So Bob… Do you trust me?” Even as I am writing this post, I am praying that God will give you clear direction and a sense of His peace in your decision. God Bless…!
bob
Ladybug,
Congratulations!! You and Dave do make a great picture of enduring love. I am blessed to be a 13 year survivor of CC. 13 more years with the ‘bride of my youth’; time to participate in two of my sons weddings; see three grandsons be born; see my oldest grandson graduate from high school; see my grand-daughter (who happens to be my heart) complete her sophomore year of colledge and just recently learn that my newest daughter-in-law is pregnant with their first. It doesn’t hardly get better…I say this not to boast – I’ve done nothing but get up each morning and try to live my life well. I’m sharing this to encourage hope and faith. Dave too can be a long term survivor. I was 51 yrs. when I was diagnosed and am now 65. May God extend His grace, mercy and peace to the Graff household.
bob
PS. I’d love to be around to read of Dave’s thirteenth year…DMEEK,
As others have said, it was very encouraging to read of your long term survivorship. Exceptional indeed. I too have been cancer free long term (thirteen years) but not without a bump in the road or two. I wish I had been aware of this site and the symposium in particular which was apparently attended by some of you. Perhaps someday I will have the good fortune to meet some of you good folks. May God continue to bless you and use you.bob
Margaret,
As a newbie to this sight, I’ve been following your posts to catch up. What amazing courage and grace you and Tom have exhibited. We rarely have any control over the stuff which passes through our lives. However, we can determine how we will respond to it. Your responses have seemed to me to be heroic. Keep up the good fight!As for causes, I’ve sometimes wondered. I myself worked for the Boeing Co. in the mid sixties painting aircraft. I was young and invincible and though we were cautioned to wear proper protection, many of us often ignored wearing masks if we were doing a quick paint job. Many of the paints were epoxy based – nasty stuff. Also, we cleaned our equipment and the aircraft with MEK solvent and nearly bathed in it. We liberally washed our hands and arms in it to remove paint residue. Who knows…?
I will add you and Tom to my prayer list. It’s not so much that I believe in prayer as that I believe in a loving, living God who hears our prayers. Grace and peace…
bob
