duke0929
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dear jeff….i’m so sorry for the loss of your wife…..i feel your pain, i lost mine this pass june i know what and how you feel…please know that we are here to help in any way…..lucille and ron
hi mn and welcome…..i have to agree with lainy… i have never known just a few day treatment… i would gather up all the records i could and send them out to doctors that have treated cc before, this is very important the doctor should be knowledgeable about this type of cancer and know how to treat it… then i would make myself knowledgeable about cc and any treatment, test and generally anything that the doctors suggest…knowledge is and can be a very powerful weapon……my best to your mom and you…..lucille and ron
hi becki,
welcome, i wish i didnt have to welcome you but you are in the right place for many of the answers you have questions to…you will find out that the people on this web site are not only careing but also very, very knowledgeable….all that you are feeling and going thru is all very normal…all of us here have gone thru what you are feeling, believe me we feel your pain…. i dont know if your emotional pain will get any better, mine didnt but we are all different…..but you will be able to handle it better in time…..the care of your mom will be in the fore front….your dad is going to need you to help him and believe me that is going to keep you both busy….arm yourself with knowledge, knowledge is a very powerful tool when fighting this monster…..tell the doctors that you want copies of any tests your mom has had…find out what is the next step the doctors have in mind, be sure the doctors are knowledgeable about treating bile duct cancer… forget what you have read about statisics none of us come with a expiration stamp only god knows….i hope mom is feeling better and i will pray for her……i know others will chime in hoping the same…….ron and lucilledear chissy,
i am so sorry to hear of your loss….i know that there are no words that will help you and your family, because i also have just lost a loved one……but he will live forever in your heart and your mind, he is out of sight but never out of heart and mind…..my thoughts and prayers are with you and family……….ron and lucille
thank you all for your kind words and prayers…..i will still be here, hopefully our knowledge may be able to help some one….i will continue to fight this monster along with you and continue to push for research….again lucille and i thank you
hi all, it has been a while since i have posted anything but i have kepted up with the site daily trying to help if possible. I will try to keep my post as short as i can.Forty two years ago this past March i met a young girl i took a fancy to, something about her was different,different from the way the young girls were growing up at that time. Me being backwards and shy i had to get my courage up to ask her out on a date, well i asked and she said yes. We went to the movies and dated for 2 years and all during those 2 years not a day went by that we were not in each others company.We went and did everything together, no matter what we had to see each other.I never wanted or loved anything or anyone like i loved her in my life, she was my world. We were married on March 6th, the day after her birthday and i vowed never to leave her side and i never did. For the next 40 years waking up everyday and seeing her was all i ever needed.Even when we would argue, and we did, what married couple doesnt, a kiss goodnight made everything all right. Things were going good,the kids college and weddings were paid for, we bought a house on the ocean and said its time for us to enjoy life, we earned it. Then a simple blood test brought our whole world down, her liver levels were a bit elevated, but not to worry its probably a stone. Well it turned out to be cholangiocarcinoma, that was three and a half years ago.The doctors gave her 6 months, which we refused to believe and she fought like hell, first chemo than s.i.r.e.s and after that nothing. All she wanted now was to enjoy our granddaughter and just life, the simple everyday things, which i made sure she did. The crazy thing is, is that she looked like the picture of health, you would never know she was sick by looking at her. This past thursday i lost my love, she past away at home with me and her family by her side and i kept my promise to her, i never left her side. This, watching her go was the hardest thing i have ever done. The moment her heart stopped beating so did mine, i made her another promise, that when my days here on earth are done that i would find her and i will. So if you have some one you love tell them you love them, hold and kiss them you will feel better for it. Now, i just want to thank the people on this site who have been so helpful to us for the last three and a half years and again im sorry for the lenght of this post…..thank you and god bless you…..ron and lucille
DR. MYRON SCHWARTZ-LIVER SURGEON
5 east 98th st-mount sinai hospital-12th floor
new york, new york
phone number 1-212-241-2891DR.MAX SUNG -ONCOLOGY MEDICINE
1 gustave l. levy place
new york, new york
phone number- 1-212-241-7902DR. JOSEF MACHAC-DIRECTOR, NUCLEAR MEDICINE
one gustave l. levy place, box 1141
new york, new york
phone number- 1-212-241-7888DR. JOSHUA WEINTRAUB- RADIOLOGY
one gustave l.levy place
new york, new york
phine number-1-212-241-4888all of these doctors are under one roof and are KNOWLEDGEABLEof this cancer… i cannot say enough good things about the hospital or its doctors……ron and lucille
nancy, thats another thing i love about these doctors..we e-mail them a question and they answer you,they actually answer you…you call a doctor here(i live in jersey to ) you get an answering machine saying everything except leave a message….no only cant you get in touch with the doctor they tell you massages are not taken on this line…call 911…well you know what these dotors can kiss…excuse me…..ron and lucille
i just e-mailed dr.oz and the rest of the t.v. personalities and once again ask them for their help, lets see what replys we get…..ron and lucille
lainy….everything you did for teddy came from a heart filled with love you did what you had to do and teddy knows this….most important you were there with him and held him in your arms….no one can take that from you……ron and lucille
dr. schwartz is my wifes doctor…i cannot say enough good things about him, his staff and mt. sinai hospital …….. the doctors and hospital are in a differant class by themselves…..insurance, no insurance they care only about treating the patient…..and everything you need for cc is all under one roof….the main thing is KNOWLEDGE ABOUT CC and how to treat it………here is his info…….good luck…….dr.myron schwartz……5 east 98 th. st. 12 th. floor…1-212-241- 2891…..parking one block away…….ron and lucille
cheryl,
having a high tumor marker doesnt mean you have cancer or that the cancer has spread..it is just a guide line the doctors use if they suspect cancer and then go on to perform other tests…..high tumor markers can mean any other illnesses, but contact the doctor and let him explain it to you…prayers ron and lucillecinnamin,
thats great, we love to hear good news…continued success to your dad …..prayers….ron and lucille
