duke0929
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lainy,
if one is truly lucky they find that certain person in life to walk down lifes path….teddy and you were lucky to have found each other and to have shared each precious day together….ron and lucillekim,
thank you,like marion i had to read it twice….truly amazing, you have made a very heavy load seem just a little bit lighter with your story….thank you and may GOD keep you safe…..ron and lucillelainy….all we can do is send you our prayers and keep you in our thoughts…i wish there was more that we could do, funny how you never met some one but feel like you have known them all your life….thats how we feel about you guys….when i was a young child around this time of year i was told that you could make a CHRISTMAS WISH, a special wish for anything you wanted….well i just made that wish for teddy and you along with every one else who is going thru this…… prayingfor my wish to come true , ron and lucille
hi everyone,
it has been awhile since i have posted anything but i am on the site everyday(or should i say in the wee hours of the morning because sleep, what ever that is has been avoiding me for the past several months). Being a man i always new what a task it was being a married women with a family, especially if the women worked.I would tell my kids that after school you come home do your homework(maybe) and your day is yours to do with what you want….not mom, she still has to make dinner, get things ready for the next day,a load of laundry maybe, what ever, her time is not hers. Although we all pitched in she would still check on everything just to make sure it was done right. i would always help her with the cooking and cleaning but she took care of the banking, bills , the majority of things. When she became ill ,in the beginning ,she was still able to do a few things for herself, but having chemo, surgery and other treatments completely drained her and it ripped my insides out watching a once active women become inactive. So now i take care of everything from a -z. I get angry and pissed-off and we fight sometimes because she becomes irritable and grouchy and things are said that are hurtful and they do hurt. And as a caregiver i believe we have the right to get pissed-off too, for me its the frustration of feeling so damned helpless. BUT we take care of them anyway because i know that if the shoe was on the other foot she would be right by my side helping me anyway she could. So, almost after 3 years of many procedures, fights, sleepless nights and 35 pounds later i continue to go on and will continue until we win or lose this battle. Please excuse the lenght of this post all i really wanted to do was wish everyone a HAPPY THANKSGIVING, so enjoy the day if possible with your loved ones even if they are crabby………ron and lucillelainy and teddy,
you and teddy were the first ones to welcome my wife and i to the web site that now seems like so very long ago……your kind words and attitude always seemed to bring some sort of comfort to us, and for that we will be forever grateful……although we have never met lucille and i feel like we have been your neighbor all our lives…we will keep you in our thoughts and prayers always, we join with the others and send our prayers to teddy and your family……lucille and ron
i have not posted in a while,i had to take a break because well i was just getting to upset and emotinal reading about how this monster is effecting the lives of the good people in this foundation…this might be a long post so let say im sorry now……
my wife has been fighting this monster now for the better part of 2 years and putting up one hell of a fight…she has continued to work through most of those 2 years, even while recieveing chemo and the y-90 treatment because she said it kept her busy and her mind off of this monster…ive seen how she would drag herself out of bed aganist my wishes and go to work, she has a strong will…she did this up to 8 months ago and couldnt do it anymore so the doctors put her out on disability which they wanted to do from the beginning…while she was out on disability she had her company benefits so her medical care was taken care of …now we just learned that her company is going out of business and her medical benefits will end the end of this month…not to worry i told her we will just pick up the policy (corbra) and pay the monthly premium for the same coverage that by law they have to offer you…well it didnt turn out that way…it seems by law they have to offer you a policy but not the same coverage…the policy they offer covers nothing but some, some of her blood work, no infusions, no port flushings, no chemo or chemo meds.and no treatment for high calcium and i can have all of this for 800 dollars a month…dont you love insurence co. they will let me pay for nothing…when i ask for a policy that covers her treatment needs they say sorry there arent any..im willing to pay and i cant get coverage for her and i have tried them all… so now we go to social security and try to get medicare..we are once again told sorry we can not help you, your wife is to young (58) for medicare and hasnt been disable long enough to be eligible for benefits…seems that you have to be disable for 2 years before you are eligible for medicare…so where does a person go in a situation like this…to me its just unbelieveable how they just dont seem to care about the people in this country….well i think i went on long enough, there is more lots more but thats it in a nut shell…again im sorry for the long post and know that you all have been in our prayers and will remain there…..lucille and ronhi karen, welcome to our family….sorry to hear about mom and wish her the best……my wife has had the y-90 treatment about a year ago and i believe it was the best treatment out there for her, everyones case is different…..as far as the procedure goes it is fairly simple as the doctors will explain to you…..first she must be a candidate for the treatment…the doctors will run a series of tests and than do a trial run using a placebo instead of the y-90….once this part of the procedure is done they will take x-rays to see if there is any leakage and to where its going….since y-90 is internal radiation not having any leakage is very important …but even if there is leakage the doctors can stop it. as for the after effects my wife did very well, the only thing was she was fatigued for 3- 4 days other than that she came away from the procedure fine but everyone is different…i know all of this is scary but the doctors and yourself will come up with the right decision…as for my wife i believe the y-90 was the best choice for her and i believe the best treatment out there,,,i have a cd explaining and showing how the procedure goes step by step if somehow i could give it to you i will…….good luck to your mom …..ron and lucille
hi jeff,
sorry about your troubles, it does seem like when it rains it pours, hoping for the best for you and marc and your brother….lucille and ron
hi alisa,
i would like to join the other members and welcoming you to our family, they are a great bunch of people who will try and help as much as we can….. who better to answer your questions, other than the doctors about this …… good luck and best wishes and prayers for mom and you…..lucille and ron
hi hans and kris,
your story brought back memories of my wifes aborted surgery at mt. sinai hospital in new york. from the surgery is out but dont give up on it yet to the panties…..i guess now its funny but then it wasnt….it was days before i could wash or change her…she wasnt a happy camper…but once we got over the disappointment of the no go surgery and got her washed and also put a pair of panties on her(SHE WAS NAKED FROM THE WAIST DOWN FOR DAYS)she said she felt like everyone was taking a peek at her including me,combed her hair she began to feel human again….we know the disappointment that you both feel, it stinks (i know a better word) because it has happened to us…..true it is a let down but you are staying positive and focused on her care thats all you can do……take care of her and yourself…..positive vibes and prayers coming your way,,,,,,lucille and ron
melissa…..what can we say at this moment to someone who has just lost a loved one, we know the pain your hearts feel, so from our family to yours our sincerest sypathys……lucille and ron
hi mike and welcome….there is alot of bumps in the road when fighting this dreaded illness, many of us have heard the words only 6 months to live and are still here fightihg so throw the statistics out the window… only one being can say when our time is up….knowledge, learn all there is to learn and then learn more…… and i think an aggressive doctor is also needed.. .when the tumor cannot be removed other treatments are used like RFA, CYBERKNIFE, SIR-SHPERES and others…..and they are helpful….learn all you can about them, discuss them with your doctor and come up with a game plan thats right for you…..best wishes to you ….. lucille and ron
