gavin
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Great stuff! Thanks for that Marion. Good to see everyone’s faces in the pics and video as always. Looked like the conference went well once again.
Thanks!
Gavin
Good luck with your meeting on Thursday with the surgeon. I will keep everything crossed for you!!
Let us know how things go.
My best to you,
Gavin
I did write a longish post in reply to this and about some of my experiences in my 11 years and counting of being a carer but it turned into a bit of a rant so I deleted it. It was also quite depressing, lengthy and a bit angry as well but maybe one day I will write a full post or something on it.
I agree with much of what was in your link marion but some of the stuff in it was alien to me. Like the bits about carers getting support to help address their needs etc. A carer review sort of thing has never happened to me in all of these years. Must be different in the US I think.
Hugs to all,
Gavin
PS – Lourdes, get back on yer soap box!!! If you get a bigger box then I’ll join you on it as well!!
Yep, let’s keep our fingers and everything else crossed Lainy for good things coming our way and lots of progress!!
Hi Joe,
Thinking of you and your mum right now and keeping everything crossed for her as well. Loads of positive thoughts coming your way from over here as well. Please let us know how things go.
My best to you and your mum,
Gavin
Dear Jacqueline,
I am very sorry indeed to hear of the passing of your husband Bill. Please accept my sincere condolences.I am sorry too to hear that his last days were not easy but as you say, he is at peace now. Please know that we are all here for you and my thoughts are with you and your family right now.
Hugs,
Gavin
Dear Tim and Julie,
I am so very sorry indeed to hear of the passing of your son Sean. I so wish that I knew what to say to you right now but words fail me. Please know that my thoughts are with you both and your family right now and please accept my sincerest condolences. We are all here for you both always.
Hugs,
Gavin
I know that I have posted research links here on the site regarding tumeric and they will be able to be accessed by using the search forum function at the top of the page.
Gavin
Here is a link to the 2017 Meeting videos on Youtube –
https://www.youtube.com/channel/UCBa2G8qD-Fdck5kIuXgQi1w/videos
More to follow later on.
Gavin
I forgot to mention the issues with light sensitivity and PDT treatment so thanks for mentioning them Marion. Welcome back by the way!
Tracy, please ensure that your mum does everything that she can to protect her eyes and skin from any direct light for a while after the treatments. Please do NOT take that issue lightly! I mention my dads experiences with the light etc in my postings here on the site.
Hugs to all,
Gavin
Hi Tracy,
Welcome to the site and I am sorry to hear about your mum. But I am glad that you have joined us all here as you will get tons of support and help from everyone here.
My dad had PDT back in 2008 after his diagnosis of non operable CC and that was the only treatment that he had. I wrote quite a bit on the site about his experiences with it back then and here is a link to my first post on the site where I mention PDT.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1940
If that link does not work then please just go to the search forum function at the top of the page. Then type in my name, “Gavin PDT” PDT is not my surname by the way!! But if you do that then it will bring up 11 pages I think of my posts. Jump to page 11 and you will see my early posts on my dads experiences with PDT.
If that does not work then please let me know and I will see if I can bring up some more links to my postings etc.
My dads treatment with PDT was a one shot treatment and I think things have changed with it now so that it is able to be done more than one time which I think you say your mum may get if needed?
Please keep on coming back and let us know how things go for your mum with everything. We are here for you and feel free to ask questions and we will do what we can to help in answering them, we don’t bite!
My best to you and your mum,
Gavin