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Viewing 15 posts - 6,046 through 6,060 (of 6,133 total)
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  • gavin
    Moderator

    Hi Marion,

    It’s always great to hear from you too. I hope you and Pauline managed to enjoy Barcelona, I hear that it’s a lovely city, and no doubt the weather was lovely also. The last month has been really hectic so I’m glad to get it over with to be honest. We couldn’t get a caravan for them but managed to get a room in a nice guest house not too far from here. Bit of a nightmare only having a small room, but it was all we could get on such short notice once they got the start date for the renovations. The owner of the guest house is reallly nice though and has treated them really well. And the building work is now finished so they get home tomorrow once the house is all cleaned. Ive been going down to see them about 3 or 4 times a day and taking them out and stuff so they can get out of the room a bit and also taking them out for their meals at night. At least the weather here has been scorching the last few weeks so that has been a bonus.

    Dad now goes to day care twice a week and he is still loving it. Friday it is all men so the humour there is different compared to Tuesdays which is mixed, they seem to like his lousy jokes! The doctor there has been really happy with his blood test results recently so that is good news. In all the time dad has been away, he has only had one lousy day which he just slept through. He has had no re-appearance of any jaundice and only the occasional twinge in his side where the stent is, his urine is also normal colour. Day care is working out great as it is very informal and relaxed and I can speak to the doctor and specialist nurses every time we go and talk about anything at all. Dads appetite has shown no signs at all of reducing and he is certainly enjoying his full cooked breakfasts every day at the guest house! I definitely could not eat the amount that he is eating every morning, he is eating like a horse! So all in all, I’m really pleased with how he is doing right now. It’s his 65th on the 12th so that is something to look forward to.

    Mum saw her COPD nurse 2 weeks ago and her lung and breathing tests have all improved which is good. She still cant walk too far, but that has also improved over this year. She is underweight though and her nurse wants her to put on weight so she is on Skandia shakes every day for the next month. One positive to come out of having to move out for 3 weeks is that mum was forced to go out every day for an evening meal as they dont do that at the guest house. So we hired a wheel chair for the month so she could get out and she is now loving being out a lot more than the last few years. When they go home, we are going to buy her her own wheel chair so that she gets out more. It will just be a small fold up one that I can keep in the boot of my car. Getting out a lot has done wonders for her moods so it’s something I want her to keep doing.

    I will be glad when they get home and things can get back to some level of normality again. They tried to treat this time as a holiday and have enjoyed lots of it, but this week it has been getting to be a bit of a drag for them. Living in the one room, it felt as if they were living on top of one another a bit, so they are looking forward to getting home tomorrow. Now we just need to sort out what is going into their new kitchen.

    Sorry for hi-jacking your thread and rambling on!

    Best wishes and a safe flight home.

    Gavin

    gavin
    Moderator

    Marion,

    Massive thank you to you and Pauline for all your efforts here, they are greatly appreciated by us all. It sounds like you both had a very successful conference and spoke with so many people to help spread the word. What a team the pair of you make!

    Once again, many many thanks to you both.

    My best wishes to you both and to everyone else as well.

    Gavin

    in reply to: fatigue and dementia #29367
    gavin
    Moderator

    Hi Walk,

    I’m sorry to hear that your dad is going through a tough time just now. My dad doesn’t suffer from dementia, but he gets tired real easy now and also gets very forgetful these days. Yesterday for example, my dad went back to bed in the morning, afternoon and then again in the evening. This doesnt happen every day though, but most days he will go back to bed at least once. He gets forgetful a lot when he is talking about things and trying to remember events from the past, who he’s spoke to and what they said etc. The only pain meds my dad takes right now are codeine based and he only takes them when needed so I dont think they they are the cause of this.

    I hope you manage to get this checked out.

    Best wishes

    Gavin

    in reply to: Remaining hopeful during difficult times #29262
    gavin
    Moderator

    Danielle,

    More positive thoughts and prayers coming for you both. I hope you both have a better day today.

    Best wishes

    Gavin

    in reply to: Article on PDT (Canada) #29286
    gavin
    Moderator

    Kris,

    Newfjam’s husband was treated with chemo and radiation before undergoing PDT and is getting PDT every 3 months under a trial at the University of Virginia. Maybe something worth looking at?

    Gavin

    in reply to: Not a good scan #29309
    gavin
    Moderator

    Jamie,

    I am sorry to read this news. I hope you have managed to talk with your family about it. You have every right to be angry and I like what you say when you talk about not giving up and just accepting the doctors predictions. You sound like a fighter to me and I agree with everybody saying to fight this as you want to. As Kris points out, there are a lot of different treatment options to investigate.

    I will keep you and your family in my thoughts and prayers.

    Best wishes

    Gavin

    in reply to: Article on PDT (Canada) #29284
    gavin
    Moderator

    Marion,

    Many thanks for posting that link, makes very interesting reading.

    Thanks again.

    Gavin

    in reply to: prayers for kim #29238
    gavin
    Moderator

    Foodie,

    My prayers and positive thoughts are with you all. I hope the surgery will be a great success for your sister.

    Best wishes

    Gavin

    in reply to: Update on my Dad #29117
    gavin
    Moderator

    Hi Jan,

    Thanks for that. My dad also did the same test your husband did with the paper bag over his hand to test his skin for light sensitivity. He tested it 4 or 5 weeks after the treatment and his skin came up really red the next day, and it wasn’t even a sunny day that day. He kept fully covered for the next 2 weeks then did the same test again and his skin didn’t burn that time so the gloves came off. Then 2 weeks later he would go out without the hat and then 2 weeks after that the dark glasses came off.

    Getting glasses that were dark enough was a bit of pain for dad seeing as he actually needs glasses to see. The optician couldn’t get ones that were strong enough to protect his eyes, so we gave the optician dads actual glasses and he put the strongest tint he possible could on them in line with the data provided with the Photofrin.

    My dad never had his stent removed before the laser, he had only had his stent in for a short time before the treatment took place. Here’s hoping that the study at University of Virginia and other trials will prove succesful and that perhaps this type of treatment can be looked at for treating other types of cancer, and also in more detail for treating patients with CC. I had read somewhere that it has been used for skin, lung and pancreatic cancers using varying amounts of Photofrin and other drugs.

    It’s good to hear that the 80 something patient you met feels that the PDT is helping her with her quality of life, and I hope that this will also be the same for your husband.

    Best wishes to you both.

    Gavin

    in reply to: Good thoughts please #29202
    gavin
    Moderator

    Kris,

    Loving your positive attitude! When sounds so much better than if regarding your surgery. I hope the iv fluids work and that your next cycle of chemo goes well so you don’t have to go back to hospital for the week again.

    More positive thoughts coming your way.

    Best wishes

    Gavin

    in reply to: Please Pray for Joe #29221
    gavin
    Moderator

    That is excellent news. As you say, a very very good day indeed! Here’s hoping for more of the same for the 16th.

    My best wishes to you and your family.

    Gavin

    in reply to: Remaining hopeful during difficult times #29252
    gavin
    Moderator

    Danielle,

    More positive thoughts and prayers coming you and Jim’s way.

    My best wishes to you both.

    Gavin

    in reply to: Long night tonight/ Scan tomorrow #29227
    gavin
    Moderator

    Jamie,

    You posting here never bothers anybody. We are all here to help, support and encourage each other so you are not being a bother or a wuss.

    I will keep my fingers crossed for good results for you .

    My thoughts and best wishes to you and your family.

    Gavin

    in reply to: Diagnosed early #29180
    gavin
    Moderator

    Hi Carolyn,

    Like Kris and Lainy, I would also like to welcome you to the site although I am sorry that you have to be here. That is good that you are doing well and that your doctors managed to catch this early. The earlier this is caught the better it seems. In my Dads case it was caught too late as he showed no symptoms at all, and once diagnosed, it was too late for surgery to be an option. This is indeed a sneaky little devil as Lainy says so i hope your doctors manage to keep a close eye on things.

    This is a great site, everyone is very helpful and supportive so you are in good company here. Feel free to ask any and lots of questions and I’m certain you will get loads of help and support.

    Wishing you all the very best.

    Gavin

    in reply to: Good thoughts please #29190
    gavin
    Moderator

    Kris,

    Loads and loads of good vibes coming your way and I am thinking lots of good thoughts for you. I am keeping my fingers crossed and hope that you get everything that you want and can give us more good news. What a fighter you are.

    Wishing you the very best.

    Gavin

Viewing 15 posts - 6,046 through 6,060 (of 6,133 total)