jathy1125
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jathy1125
SpectatorGrover -YEA and good luck!!!! I am so excited for you. So much good advice being given to you by our CC family. The “use your pain meds” is very important, you can’t deal with pain and keep your body rested. What people don’t understand when we have surgery our bodies have been ravaged and poisened by chemo/ radiation so we are in bad state to begin. Most surgeries would be cancelled if you had a sinus infection!!! I had hard time understanding after first transplant why everyone was up walking and leaving with in 2-5 days and I was still there 2 weeks later (I felt like a wimp), and my doctor explained to me “you wouldn’t drink poison and have surgery!”
Lots and lots of prayers-Cathyjathy1125
SpectatorEli-I have a CT scan of the chest, and MRI and Ultra sound of abdomen. I am a transplant reciepent so I do blood draws every month. I am soooo taken care of and watched!! That is why they are removing spot on my lung, they take no chances and watch and see isn’t in ther vocabulary. Ihave been so blessed in my care.
Lots of prayers-Cathyjathy1125
SpectatorJhagopoian-Welcome and congrats on your success. I too am an almost 3 year CC survivor. I have 3 scans every 6 months. i have an ulta-sound, MRI and CT.
I am sooo glad you asked that question, because I will have my first PET scan tomorrow. I have a small spot on my lung (which they believe is nothing) and want a PET scan before surgery to remove it on Tuesday.
I look forward to reading more of your story. I was treated at Barnes-Jewish Hospital by in St. Louis MO. under Dr. William Chapman.
Marion/Eli-Thanks for all your helpful info.
Lots of prayers for all-Cathyjathy1125
SpectatorWill say prayers at mass today for your mom and her family during this time.
Lots of prayers-Cathyjathy1125
SpectatorMarion-what a great family. I wish i had known sooner because that is our area. I also notice the Bile Duct Walk is coming up in April again!
Thanks for the post-Cathyjathy1125
SpectatorYEA- I had been looking on FB for news!
Lots of prayers -Cathyjathy1125
SpectatorKris-I would love to split the cost with you!! I am out of “drop by range”, but I would love to help our CC angel Kim and all she does! If you email me your address I will send my share. I hope you will let me help.
Jim-I have my surgery on Tuesday and my mass is 7mm. I just keep hearing my doctor say “Your cancer is so aggressive, we would expect it to come back more aggressive”, those are my words of comfort. Barnes is #9 in the nation, so like your hospital, is on top of and very aggresive in my care. I knew my cat scan find before I made it home that day, and it will be 2 weeks from finding to consult t osurgery!! My doctor also said couple of days in hospital, but the last time I woke up 3 weeks later with a new liver!!! LOL!!
Lots of prayers-Cathyjathy1125
SpectatorMydadrocks-Welcome and like Lainy said “sorry you had to find us”!
The key to CC is finding the best and most knowledgable doctors and Dr. Javle is right up there ,I am sure you will here from his patients soon.
I am a CC survivor!! I will be cancer free 3 years this may. I was diagnosed with “inoperable and 6-8 months to live”! I am alive because of God, 2 strangers and the most amazing doctor-Dr. William Chapman at Barnes-Jewish Hospsital in St. Louis MO. Please read and share my story with your dad, at thetelegraph.com under christmas miracle (or FB page Catherine Sims Dunnagan-it has 2 Dr. Chapman success stories on it). There is HOPE!!!
I am sure you will be hearing from several more members of our family, who have beat there diagnois and are proof there is HOPE!!
Lots of prayers-Cathyjathy1125
SpectatorCONGRATS!!! Keep posting all the positive news and giving HOPE!!!
CathyFebruary 14, 2012 at 11:50 pm in reply to: Predictors of dropout and Recurrence inCCA Liver Transplant from Mayo #57735jathy1125
SpectatorThanks Percy and Gavin. I am not very good at “medical journal info” but I think this was a positive study, either way I am proving it works!! LOL!
Lots of prayers-Cathyjathy1125
SpectatorDiana-Welcome and sorry you had to find us. As you wander through this site, you will find your post will sound very familiar. I remember having a cheat sheet because I could not remember what the official name of my cancer was!
I have found cancer has given me my new favorite quote “Until you walk a mile in there shoes…”. I remember before cancer wondering, why did people need all these fund raisers, they have insurance!! God sure found a strange way to explain it to me!! Our stories happen to the neighbor, a friends cousin…. not us!!
I am a CC survivor!! There is HOPE! I will be 3 years cancer free May 24, 2012. I have an amazing story to share with you, you can read at thetelegraph.com under christmas miracle or on my FB page (Catherine Sims Dunnagan).
I am alive because of God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hospital at St. Louis MO. There is HOPE!!
Lots of prayers-Cathyjathy1125
SpectatorJim lots of positive thoughts and prayers for you tomorrow!!
Cathyjathy1125
SpectatorI took Nexium during all my treatments and still do. My dotcors keep me on Nexuim as preventive.
Lots of prayers-Cathyjathy1125
SpectatorByron-Glad to see you posting again, was kinda worried hadn’t seen any post lately. I am not much help in the insurance area because my 2.5 million dollars of insurance claims was always paid with no fuss, UNTIL this week. My doctor ordered a PetScan and the BCBS wants to review it!!!
Lots of prayers-Cathyjathy1125
SpectatorKris-Good luck!!
Byron-Glad to see you posting, was kinda worried we hadn’t seen amy from you lately!
Lots of prayers for both-Cathy -
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