jeffg
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Hi Hollie, Sorry to hear Sophie is having so much trouble with fluid retention/acites. I was drained 3 times but not as much as Sophie. After the 3rd time things seemed to have stopped. I had the same problem with dangerous potassuim levels as well. In fact the had to make up a concoction and feed it to me by way of table spoon. I did do something of which I did not tell the doctors at the time and that was take Ibrophen anti inflammatory tablets OTC 800 mgs every 4-6 hours for one week and that appears to be when my fluid build up stopped. I would certainly run that by the doctor first though. In fact I have had 2 different Oncologist recommend taking for pain in the liver caused by inflammation. Just an Idea for you all to ponder Hollie. As if you don’t have enough as it . There were a lot of little things I tried while I was taking chemo. 6-8 mgs of steroid per day may help as well. Sophie, wish and pray this turns around real quick for you. Hollie your a terrific loving Niece. My Nieces just keep sending joke after joke after joke. I tried to send a normal everyday e-mail and the replies are always jokes. I even mentioned How I would like to know how all is going on in their lives ,kids ,work, husband. I love them! I guess they just can’t get off the joke wagon, to convient. A special thanks for being there Hollie , I can really sense how much Sophie appriciates and loves you.
God Bless,
Jeff G.Hi Sam, It goes without saying, your quite welcome. It is so hard for caregivers. You can rest assured we’ll do our best. Just being able to reach out and vent or knowing someone is out there that knows what it feels like is willing to listen and chat has made me feel better time and time again, especially when those uneventful long lonley days come around. Sometimes just a simple acknowledgement is all that is needed. As a caregiver ,you feel free to jump in any time and share what ever you may want. Thanks for being such a supportive and loving daughter.
God bless,
Jeff G.I can see how many feel this way. I’ve been there and am there. However , this site has taken great pains of caution to ensure avenues for individuals to vent. Whether it is good news ,How I love to hear and have heard in the past. Not as often as I would like grant you. Whether it’s bad news and we can provide information and good ole fashion support, which some people feel comfortable reaching out and doing. This site provides a definite outlet if needed , to include phsycological, grief, rememberance of loving memories, place to put Memorials. Yes , we all grieve individually and differently, as Tanoland stated. I agree it is an individual choice of whether to post or not. However, the site it’s self is very comprehensive. Sorry guys, but looking at it from your own personal views, I can see the heartbreak and grief. I sincerely hope you can find the the outlet you need to properly grieve.
God bless,
Jeff G.Magic…. Would you like to elaborate a little ? Maybe I am taking your post out of context. This site is for all ! From Introduction through rememberance and all the emotional support we can muster and offer in between. The Reality of dealing with this disease is devastating to many and even if it is a poor diagnosis and rapid decline, is all the more reason to be on this site. This site is about good luck stories and/or tragedies. It’s about love and openingness, and sharing with each other. I’t’s never to
late to show and give support and compassion if one chooses and wants.
“Belonging” is one of the most basic needs of humans, all the more reason to be on this site. I guess your post struck a nerve, as this site has been a God send to me and many others. Where do you suggest they go, when there is open hands here. Sorry, my opinion.
God Bless,
Jeff G.Hi Lisa, I think you mentioned it somewhere, but that’s okay you can mention it again if you want. Both of my lungs have mets and been growing slowly for years. Largest spot is 3.2 X2.8 CM . My o2 saturation is still between 94-98. Hopefully the mets won’t effect you as much as you might think for quite some time, knock on wood. Sorry, your bummed and have chemo brain tonight. Wish I could say something to make you feel better. Well, I probally could but it might get censored rather quickly. Hang in there girl. Where are you at with your chemo treatments. Nice relaxing bath might help take off the edge.
God Bless Ya!
JeffG.Hi Steph, We truely are here for you. Vent and let out as much pain as possible as you can. It’ll take time. Continually flood your mind with beautiful memories and cherish them all. Don’t forgot ant-depressants if needed. Thay do help and don’t have to be taken forever. Valerie is taking to deal with her anticipatory -grief.
God Bless You and your Dad,
Jeff G.Thank you for all your responses. I appreciate all you have said. I did take your advice and went to the doctor today. He gave me some meds to help with the pre- grieving.I hope it helps, Thanks again everyone.
God Bless,
ValerieHi Rusyn157—- Welcome to the site and absorb all you can. Using the custom google search top right corner of page, will get you a lot of specific information particular of members from this site. As you’ll see many different senerios will arise. If there is one thing for sure, we have learned predicting how much time we all have left, is so individual. Proactive and positive attitude plays a very important role in fighting this relentless disease. I must say you sound very proactive and really sounds like a remarkable recovery time from a whipple surgery. Some have severe difficulties. Again , welcome and look forward to your participation.
God Bless,
Jeff G.Pam… I agree with Marion 100%. The sandwich generation without a doubt. I am wishing and praying for you girl all the way. Being in the medical profession can be to your advantage, but emotionally be heart wrenching. I know it broke my heart having to move my parents into a nuring home. But I knew If I did nothing, it was a matter of time before an unfortunate event. My Dad passed 6 months later from congested heart failure. My Mom is still holding her own with parkinsons and developing dementia. Even after placement you have to keep eyes peeled to enure proper care is being conducted. It is such a shame that you have to advocate and intervein so often and threaton State reviews to keep people on there toes. It is so easy for administrators to sit in their meetings and make all look good on paper. But usually the QC of staff and their lack of proper training, keeps you on your toes. There are some private pay facilities that are excellent, mostly state funded facilities I’ve seen the recurring problems. Years to get it right but, but history keeps repating itself, primary due to high satff turnover and bad pay. I’m sorry! I just had to vent and share your frustrations. You’ll do your darn best I know. Your full of love and care and that will see you through the rough times. Plus continue to vent openingly so we can all support you the best we can.
God’s Blessings,
Jeff G.Hi kris, Just to echo what you said with cyber knife and advances continually revolving, a couple years allows alot of time for somethime to pop up on the horizon. I admire your dedication to deal with the present. However, I will never forget or give up on hopes or dreams in unison with the present. I or we all have to have faith of belief in something, in my opinion, regardless of the course we are taken. I support you in dealing with the reality of the present all the way,as I think we all instinctively have to do that to fight ,fight , fight. If anyone can do it, your the one.
God Bless!
Jeff G.Dear Carol, I had a bunch of things to say but I’m not. I feel the shell growing around me as well. Like you said, it’s God’s time. It’s like we have said all we can, have Faith and understand and now wait. To debilatated to do anything and it’s like time is sitting still but we know it is not. It’s a lonely little place. Bless you guys!
Love and Faith,
Jeff G.Tom …. All I can do is echo Pam and Darla. This web site has been a God send for me. Tremendous support from everyone. This relentless disease is so unfair all the way around. Even though I’m currently on at home hospice and loosing weight almost daily, I feel at peace and have faith God will be there to support and guide my family and myself. My thoughts and prayers are with you and your family all the way!
God Bless,
Jeff G.
