karen

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Viewing 15 posts - 61 through 75 (of 287 total)
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  • in reply to: ASCO 2012 – My thoughts #62194
    karen
    Spectator

    Bravo Barbara!! So very happy CC is FINALLY getting some much needed attention. I applaud you and all the other CCF members who work so hard getting the message out there.

    In peace,
    Karen

    in reply to: Susan Wise: April 1951 – May 2012 #61667
    karen
    Spectator

    As Susan journeys on she will be forever in your heart and you in her’s. You are supported in love dear Julia.

    in reply to: 6yr Anniversary #61063
    karen
    Spectator

    You are blessed for sure John. Thank you for sharing your story.

    in reply to: Great 4 1/2 year check-up #59860
    karen
    Spectator

    FANTASTIC!!

    in reply to: Unusual Cholangio Guy – Survivor Against the Odds #59177
    karen
    Spectator

    Okay you guys! (Marion and Jeff) I don’t write much these days because I find it very hard to express my feelings, but I do read here everyday. I feel so connected and yet at loose ends…very hard to convey. Jeff you will probably be hearing from Lainy as her husband had a whipple. Rob (my husband) did not qualify and he opted for cyberknife. Marion – you betcha I will see you when you come to Philadelphia. When are you coming?? There is a wonderful event on the steps of the Art Museum (you know…Rocky!) on May 20th. We do yoga on the steps (outside) in honor of breast cancer survivors…it is very humbling. Last year there were 1,000 people – quite moving. I would love to share the experience with you.
    In peace,
    Karen

    in reply to: Unusual Cholangio Guy – Survivor Against the Odds #59166
    karen
    Spectator

    Welcome Jeff!
    I love your outlook as it so closely resembles my own and my husband’s. I am not a cc patient but the surviving spouse. There was another Jeff on this board with much common sense and good attitude such as your own. As I do to all people on this board, I send to you very positive, healing energies.
    Namaste,
    Karen

    in reply to: Lonely and tired #56038
    karen
    Spectator

    CM and Lainy,
    Please be well. Know you are loved. You don’t have to “put on the face” here. Release and let go. Rest and re-new. I know the hole will always be there, that’s okay. It is how we are to be right now.
    Love,
    Karen

    karen
    Spectator

    Hi Eli,
    My husband also had Cyberknife for palliative treatment. He did not experience any bad side effects and lived a little under a year and a half from when he was diagnosed at stage 4. Cyberknife was the only “treatment” he would allow. He did not want chemo for palliative as he felt being “sick” from the chemicals was counterproductive.
    Peace be,
    Karen

    in reply to: 6 yrs post diagnosis and still hanging tough #52275
    karen
    Spectator

    Supporting you through prayer. This final journey that you make together is so endearing, so hard.
    In peace,
    Karen

    in reply to: My Tom is gone… #54831
    karen
    Spectator

    Dear Mary,
    So very sorry for your loss and the hole that is your chest. I pray for your healing…I know the road you are about to travel. His strength will carry you through, as it has many of us on this board. Peace be dear lady.
    Karen

    in reply to: Father Diagnosed with CC in Aug 2006- Update. #53633
    karen
    Spectator

    Yahoo! Your father is blessed. Hoping for every success with the next five years.

    in reply to: Pre-CC digestive inflammatory diseases #52952
    karen
    Spectator

    Just for the record. My husband suffered from diverticulitis and extreme acid indigestion for years prior to being diagnosed.

    in reply to: Togetherness #51145
    karen
    Spectator

    I totally relate and it has been 2-1/2 years for me. I tell people all the time…be the first spouse to go (Ha, like we have a choice!) as the pain is so great. I too am not suicidal by any means, but if Rob and I could have held hands and walked into the next plane of our existance I would not have hesitated. Stay well my friends, you are not alone on this journey.
    Peace be,
    Karen

    karen
    Spectator

    Sweet Pauline & Lainy,
    Oh I so relate. The time passes and the heart is heavy. There are snippets of joy here and there, but…there is always that “but”. Be well my friends, I hold you in my heart.
    Peace be,
    Karen

    in reply to: 5 years post diagnosis… but bad news… #51096
    karen
    Spectator

    Dearest Mary,
    Holding space for you and Tom. Don’t really know what else to say….I so know your pain. Keep Tom as comfortable as possible and know we are here for you.
    In peace,
    Karen

Viewing 15 posts - 61 through 75 (of 287 total)