karenb

Hi Susan,

I am so sorry to hear about your husband. I read on here almost every day, but do not post much… however, I did want to mention that my sister had an obstruction and that is actually what caused her to lose her battle, because by the time they found out she had it, she wasn’t strong enough to go through the surgery… so if your husband does have an obstruction and is strong enough, maybe this is something you want to look into or mention to his doctors and/or surgeons…

Good luck!

Karen B

Hi, I can so relate to what you are going through. I too lost my sister to this terrible disease. I don’t post on here very often, but read the posts almost every day. My sister was so young and had four small children at home. She passed away six months after diagnoses. We would talk on the phone every day before she got sick. It has been almost four years now, and even though I didn’t believe it or want to hear it when people would tell me it gets better in time, it truly does. I can now talk about her and the memories we have without turning into a sobbing mess. My thoughts are with you during this very difficult time. Hugs!

Karen B

Jane,

I also lost my younger sister to this horrible disease. She was only 33 years old, and had four young children. I can so relate to everything you say. It has been two years since my sister passed away, but it doesn’t feel like it has been two years. She was my best friend and I miss her soo much! I wish I could tell you time makes it better, but that has not been true for me. Thinking of you during this difficult time.

Karen

Hi Lainy,

You have my permission also.

Have a great day!

Karen B.

Hi Patty,

First I want to say I am so sorry that you are in this situation. I haven’t posted for a long time, but I read the other posts regularly.

My younger sister had the same problem when she was first diagnosed with this horrible disease. We took her to the Mayo in MN, but we had to put 2500. up front, before they would even see her. Then we got sent back to billing every time they wanted to do another test, and we would need to put up more money. My mom, my brothers, my sister and myself were putting it on our credit cards. So very frustrating and unfair! She was only 32 years old, and did not have health insurance even though she worked as a med aid/nurse’s aid for several years.

It is hard enough waiting for appts, phone calls, watching your loved one in so much pain, but then to have to worry about the medical aspect of it too, it was terrible.

Hang in there and keep looking for resources. Hugs!!

Karen B.

Dear TraumaJock,

Hi! I also lost my younger sister to this terrible disease. She was only 32 years old. She fought so hard, and we were right by her side all the way. I still cannot believe it. I miss her every day. She left four beautiful young children and a husband behind. I do love spending time with her children. I carry my sister in my heart too!

I think that is great that you went on to be a nurse. Carry her in your heart always…

Karen

Hi Everyone!

I just want to say I know exactly what all you are going through. I lost my younger sister 9 months ago to this terrible disease. She was having some pain in her shoulder, but other than that, was always healthy. She worked in a nursing home, so we just assumed it was from too much lifting. The pain kept getting worse, and when she went in and had a CS and then a Pet Scan and found out it was cancer, we could not believe it! We took her to the Mayo clinic and then to a cancer center in MN. She fought as hard as she could, unfortunetely she had to be on so much pain medicine, it stopped her intestines from working, and she got a blockage, couldn’t get food down anymore. She passed away six months after being diagnosed. I still wish we would have done so many things differently, but, I am happy for the time we had, and I try to spend as much time with her four children as I possibly can. I really wish they could find a cure! My thoughts are with you all, Karen