kimmie

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  • in reply to: ICC : analysis of 44 consecutive resected cases. #47526
    kimmie
    Spectator

    Earlier it didn’t work for me – now it does! Thanks for the link, interesting study.

    in reply to: ICC : analysis of 44 consecutive resected cases. #47522
    kimmie
    Spectator

    Darn – the link doesn’t want to work for me…

    in reply to: CC awareness month – honoring Mom #47306
    kimmie
    Spectator

    Thanks everyone! Yes, she was an incredible lady. I sure do miss her.

    I used Microsoft Publisher to add the text and calendar image to the photo, then saved it as a JPG file.

    in reply to: My Beloved #47414
    kimmie
    Spectator

    Oh Susan, I am truly sorry to read about Randy’s passing. Jonathan has a new guardian angel in heaven watching over him. Sending you prayers for some peace during this time.

    in reply to: Here we are… #47213
    kimmie
    Spectator

    With tears in my eyes, I’m saying a prayer for your family right now.

    in reply to: if a blood relative had CC… #46996
    kimmie
    Spectator

    Thanks for all the replies.

    My intent for posing the question was more to get feedback on what changes people have made to their diet and lifestyle. I realize that CC is not hereditary. But losing my best friend, the woman who gave birth to me and raised me and loved me, makes me reflect on my own life and health.

    I can’t do anything to bring my mother back. But I can make changes to give my own body a better chance at being healthy, lessening the chances of me leaving my own children when I’m 64 years old.

    in reply to: Good website on How to help me grieve….. #46896
    kimmie
    Spectator

    Great website! I have trouble with “don’t avoid me.” We’re approaching 4 months since my sweet mother died, and friends don’t talk to me about her at all. I WANT them to talk about her. Even my husband doesn’t. I know it’s because they don’t want to upset me, but I’d rather talk about her and my memories of her.

    in reply to: Platelet Transfusion #46813
    kimmie
    Spectator

    No experience with receiving platelets because my Mom never needed them. But I’d like to give a plug to platelet DONATION. My husband did this for years. I don’t know if platelets are in lower supply than blood, but I do know that he was there for over 2 hours each time, so I think it’s a bit more of a time committment on the donor’s part.

    I’m glad I read this thread. It’s given me an idea to honor my mother, all those on this board touched by CC, and cancer patients in general – start donating platelets, and encourage others to do the same!

    in reply to: Missing Mom #46828
    kimmie
    Spectator

    I wanted to re-post this poem that someone posted here awhile back. I love it, it really spoke to me.

    From a book of blessings called “Benedictus” by John O’Donohue – Irish Poet & Philosopher

    When you lose someone you love,
    Your life becomes strange,
    The ground beneath you becomes fragile,
    Your thoughts make your eyes unsure;
    And some dead echo drags your voice down
    Where words have no confidence
    Your heart has grown heavy with loss;
    And though this loss has wounded others too,
    No one knows what has been taken from you
    When the silence of absence deepens.

    Flickers of guilt kindle regret
    For all that was left unsaid or undone.

    There are days when you wake up happy;
    Again inside the fullness of life,
    Until the moment breaks
    And you are thrown back
    Onto the black tide of loss.
    Days when you have your heart back,
    You are able to function well
    Until in the middle of work or encounter,
    Suddenly with no warning,
    You are ambushed by grief.

    It becomes hard to trust yourself.
    All you can depend on now is that
    Sorrow will remain faithful to itself.
    More than you, it knows its way
    And will find the right time
    To pull and pull the rope of grief
    Until that coiled hill of tears
    Has reduced to its last drop.

    Gradually, you will learn acquaintance
    With the invisible form of your departed;
    And when the work of grief is done,
    The wound of loss will heal
    And you will have learned
    To wean your eyes
    From that gap in the air
    And be able to enter the hearth
    In your soul where your loved one
    Has awaited your return
    All the time.

    in reply to: Missing Mom #46827
    kimmie
    Spectator

    I am so sorry. This time is so rough. The funeral is over, you feel like everyone has gone back to “normal life.” But when someone loses their mother, there is no “normal life” anymore for us. It makes you want to scream – “HELLO – I’m still grieving here!” The thought of the earth still being able to spin without my mother on it was (and still is) unthinkable to me.

    Right after my Mom died, everyone on these boards said each person grieves in their own way and on their own timeline. For me, getting back to working helped because it kept my mind occupied. But a rough patch for me was right where you are now, then I started feeling human for a few weeks, then it got tough again… you see the pattern. A rollercoaster. And that’s ok. WHATEVER you’re feeling is ok. Your pain is real, and it’s so raw right now.

    Like you said, just take it minute by minute. I’m sorry I don’t remember (I’ve been away from the boards for awhile) – do you have siblings that are sharing your grief? My sister is one of the main reasons I’m making it through each day, week, month since losing our Mom. Seems like when she’s having a down day that I’m up, and vice versa.

    in reply to: Back Pain #42960
    kimmie
    Spectator

    I am so sorry. Sadly, so many of us here can relate. I was in your shoes last summer with my own Mom. I’m sure it was a hard day for your family.

    If your Mom wants to stay home, hopefully they can set her up on home hospice, that’s what my Mom did. And if your hospice org is anything like ours, you’ll be blown away – they were superb. They told us their purpose was to make sure that Mom was NOT in any pain. Got her all set up at my sister’s house with an awesome hospital bed with a special comfort mattress on top, all the meds she might need, a home health aid assigned twice a week to help with bathing and hair washing, a chaplain that prayed with Mom and did reiki once a week, and a social worker. Everyone involved with hospice are amazing people.

    Concentrate on her comfort, and on making memories. If she’s able, get her to tell you stories, memories, and write things down. My Mom had planned to write a letter to each grandchild, but never got the chance. Don’t sweat the small stuff in life right now, just be with her and be there for her. I can tell you, you will be making memories that will stay with you forever.

    in reply to: prognosis advice #46799
    kimmie
    Spectator

    I agree with everyone – go now. I don’t know where you’re going, but just look into the facilities in the area in case he needs any medical attention, and take his records and a list of meds with you. Enjoy his 60th birthday celebration a few months early!

    Every case is different. But my Mom stopped palliative chemo last August. The next day she booked a cruise for the whole family – her, my Dad, us 3 kids, spouses, and 5 grandkids. We left on September 9. She died 8 days after we returned from the cruise. Traveling was a little tough, as she did begin to decline while on the cruise. (We’re lucky that my sister is a hospice nurse.) But it was so important to her, and the memories we all have from that trip will be with us forever.

    Go with your gut feeling!

    in reply to: Mom lost her battle… #46368
    kimmie
    Spectator

    I am so so sorry to read this news. Please don’t be hard on yourself or have expectations on how you should handle things. This is such a tough time, you have to take one hour at a time. Hang in there and just do the best you can.

    I’m truly sorry for your loss. I love what Lainy always says when someone’s mother dies – mothers never really leave their children. I pray for you to find comfort in her memories and in time that you will see evidence that indeed she will never fully leave you.

    in reply to: Devoncat no more #46218
    kimmie
    Spectator

    There are no words to explain the sorrow I feel after reading this. Many prayers to Hans and Kris’ whole family. Earth’s loss is Heaven’s gain.

    in reply to: Oh the Rollercoaster! #45990
    kimmie
    Spectator

    Yes yes, the rollercoaster. I think being just 6 weeks since diagnosis, it’s probably still like the steepest, tallest and fastest coaster in the world. My mother lived for 16 months after being diagnosed, and I can tell you the rollercoaster is always there, but eventually begins to be more like a kiddie coaster at the carnival. Still ups and downs, twists and turns. But often you can see what’s around the corner and know what to expect. Or you’ve been on the coaster so many times that it just isn’t that scary anymore. You begin to understand the lingo the doctors use. You can read blood work lab reports and actually know what they mean. You begin to recognize symptoms your Mom might be having because you’ve seen them before.

    But I know, sometimes you just wish it was the carousel.

    I agree with Lainy’s advice – find something that’s a distraction or outlet for you. When my Mom was in the hospital for her resection last summer, it was a 45 minute drive each way, sometimes more than once a day. The new Dave Matthews Band CD had just come out, so I CRANKED it up the whole way home and sang my heart out. Same with this past summer, once she was on home hospice at my sister’s house, it was a 20 minute drive, so again I’d roll my windows down, crank the tunes and sing at the top of my lungs.

    Hang in there – you’re obviously a super-duper daughter to your mother!

Viewing 15 posts - 1 through 15 (of 74 total)