lainy
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June 12, 2016 at 10:30 pm in reply to: Introduction My brother’s fight with Cholangiocarcinoma #86823
lainy
SpectatorDear Lorraine, I am so very sorry about Donnie and please accept my most sincere humble condolences. He was a brave warrior and now is at peace and healthy!
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets the ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!lainy
SpectatorYES, Sandie, I understand. Although it was not me with the CC it was my husband but we were bonded together as one!
First my Dear Sandie, I have to disagree just a little with a couple of items. You have valiantly fought and won battles it has been only the end you will be loosing. AND really, you have not lost that, as you are going to be in a place far more beautiful and peaceful than you can ever imagine. I know from my Teddy and from others on our Board who have heard from their loved ones that they arrive healthy and find it the most beautiful place to be. You will be greeted by many including family and friends. You are NOT a loser you are a winner by the way you have handled yourself with grace and dignity.
If you can read the prose below it really describes what I feel:Death is nothing at all. It does not count.
I have only slipped away into the next room. Nothing has happened.
Everything remains exactly as it was. I am I, and you are you,
and the old life that we lived so fondly together is untouched, unchanged.
Whatever we were to each other, we are still.
Call me by the old familiar name. Speak of me in the easy way which you always used.
Laugh as we always laughed at the little jokes that we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was.
Let it be spoken without an effort, without the ghost of a shadow upon it.
Life means all that it ever meant. It is the same as it ever was.
Why should I be out of mind because I am out of sight?
I am but waiting for you, for an interval, somewhere very near, just round the corner.
All is well. Nothing is hurt; nothing is lost. One brief moment and all will be as it was before. How we shall laugh at the trouble of parting when we meet again!
By Henry Scott HollandSandie, if there is anything at all I can do to help you please write to me. I am sending you all the best and wishing for a comfortable and peaceful journey from your 5 years of battle, as a true warrior you deserve the beauty you will see. Sending you much love!
THANK YOU FOR LOVING ME! Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.lainy
SpectatorGavin, believe me if I could carry some chicken soup or what ever Kris would desire I would be there in a heart beat.
lainy
SpectatorThank you to our wonderful team who are always representing all of us and our cause. We and this Foundation are all so blessed to have you. Again, thank you for all you do!
lainy
SpectatorDear Jim, I am so very sorry to read about your loving, Mary. Grief is a very private trial and we each go through it differently. There are no tried and true ways and you just do what is comfortable with you. One day you will turn a corner and the grief slowly turns in to all the greatest memories. Please accept my mist humble condolences and remember that life is for the living as I am sure Mary would want it that way.
Death is nothing at all. It does not count.
I have only slipped away into the next room. Nothing has happened.
Everything remains exactly as it was. I am I, and you are you,
and the old life that we lived so fondly together is untouched, unchanged.
Whatever we were to each other, we are still.
Call me by the old familiar name. Speak of me in the easy way which you always used.
Laugh as we always laughed at the little jokes that we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was.
Let it be spoken without an effort, without the ghost of a shadow upon it.
Life means all that it ever meant. It is the same as it ever was.
Why should I be out of mind because I am out of sight?
I am but waiting for you, for an interval, somewhere very near, just round the corner.
All is well. Nothing is hurt; nothing is lost. One brief moment and all will be as it was before. How we shall laugh at the trouble of parting when we meet again!
By Henry Scott HollandJune 7, 2016 at 3:54 pm in reply to: 33 yr old with Stage IV intrahepatic CC – became surigical candidate #85803lainy
SpectatorChristopher, YEA! HURRAH! Bestest news ever and I am doing my cart wheels for you! I am so very happy and keep up the great work. I cannot answer your question but HALLELUAH! Congratulations on your Marriage and what I am sure are beautiful twins!
lainy
SpectatorAw, Cookie, what kind of ticket did you buy for this ride? I hope you are getting frequent flyer mileage! Drats! Thinking of you and sending the best vibes I can. Love you!
lainy
SpectatorDear Daughter, welcome to our remarkable family but so very sorry to hear about your Father and his journey. As Catherine wrote I do have a list of Signs the end is near and would send it to you if you send me an email.
My husband saw his whole family as he was in his passage. He would extend his arms and wave them toward him and envelop them in a bear hug, give a kiss. The only words he uttered for hours were “Oh, Mom”. It was awesome and I felt privileged to be a part of this phenomenon.
With all these things that I consider awesome I feel compelled to say a few things that you may find helpful to help your Father. When a Cancer patient is in pain it must be put under control or it gets many times worse and becomes uncontrollable. I feel on this subject that it is of utmost importance to get the pain under control. You would be helping you both by getting Hospice involved and they can tell your Father that he needs to get the pain under control.
Wishing you the very best, and please keep us up to date on how he is feeling.lainy
SpectatorHello, Julia and WELCOME to the best place to be for CC support, but sorry you had to find us. Wow! Talk about that roller coaster ride you sure did get a bunch of tickets. I am sending you the best vibes and juju. I love your attitude and it will get you far not only in CC but what a role model you are for your fabulous munchkins. I cannot help with your questions about PSC and IHCC but wanted to welcome you and I know others will be along to answer the above. Hang in and hang on and please do keep us updated as we truly care.
lainy
SpectatorDewar Mariza, I am sorry to read about your Dad and please accept my humble and deepest sympathies. Your Dad will always be around you as Father’s don’t really leave their children they just go in to the next room.
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets the ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!lainy
SpectatorSharon, I add my sentiments to what you and Phil are going through. I just want to say that if you want to prepared I do have a list of the 10 signs the journey is nearing an end. I would email them you if you send me a note through the site here. I found that the more we know and understand what is happening that it does ease up the journey and helps with the frightening part of not knowing what to expect. Stay strong and hang in there and all our spirits are with you both.
lainy
SpectatorDear Bea, this is pretty good news and I am sure that your wonderful attitude helps things along the journey. Wishing you the best of luck on the next Scan and thank you for the post on something that may soon be available to others. Please continue to keep us posted on your progress!
lainy
SpectatorDear Meghan, I am so very sorry to read about your Mom. I just feel that Mother’s never leave their children and are a heartbeat away in the next room. Please accept my humble condolences.
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets the ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!lainy
SpectatorYEA! Kathy! We LOVE the word STABLE! Keep up the good work!
lainy
SpectatorDear Tiah, HAPPY birthday to your MUM and what a great Birthday gift she has received. Wishing her a wonderful and a much healthier year!
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