lainy
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Dear Virginia, WELCOME to our remarkable family and the best place to be for CC support. At 34 years old you have already gone through much more than a human should have to bear, most of all the loss of a child. I have a feeling you now have your own special angel who is going to see and help you through this journey. How are you doing now, any recent scans? You never know how strong you are until “strong” is the only choice you have! Below is a site you may find helpful.
http://cholangiocarcinoma.org/newly-dx/
I hope and pray that the GEM/CIS is working and you get some good news. Please keep us posted on your progress as we truly care. And how thoughtful of you in trying to help others. You are very special.
P.S. On another note I was born and raised in KCMO. Nice City but my favorite place was Winsteads!Hi Cookie, give me a call. Let me know if you don’t have my number. For the itching there is an OTC Cream that worked fantastic for Teddy. it is called Sarna. I am wishing the best for you and PLEASE let us know as soon as you do. Kris, we are all here for you! Love you!
Oh, Scott, I am glad that is over for you! Say, is a potracath like a portapotty? Just had to ask. Take care now.
YEA! Crossing everything I own for a good report. Looking forward to it and know that your attitude will go far in every way to help. Nice to get this done!
Jack, I am right along side of you both during this journey. Home Hospice is great and it sounds like Diane is starting it just like my Teddy did. The Oxygen is good in that it picks up the energy and also calms down the system so that the pain parts are relieved along with the meds. I had him in a hospital bed in the living room. It was bright and airy and great for visitors along with more room for the Nurses to work around him. Most important the BIG TV was in there! Eventually I also ordered a walker. When a new Nurse would visit Teddy would tell her we were on our Honeymoon. Make the most of this time together and please know that if you care to write to me personally I would be glad to help where I can. Wishing for the very best and comfort for Diane.
YES! Maria and Tia please try to get together as it is the best feeling ever to meet someone from our family. It gives a real boost to the spirit and really lets one know they are not alone in this CC world!!
Dear Maria, welcome to our remarkable family and the best place to be for CC support. I am sorry to read about your wonderful Dad and you are so right that staying positive is the best thing you can do for the patient and the family. We are big believers in getting 2nd and 3rd opinions and to make sure that treatment for CC is at a facility experienced with this rare and crazy cancer. We also do not listen to time frames as everybody is different. A positive attitude is the best RX and we try to stay realistically optimistic. Wishing your Dad the very best and please keep us updated on his progress as we truly care. You never know how strong you are until “strong” is the only choice you have!
Wishing you the very best on Tuesday! We will all be sending prayers and great thoughts and lot of good juju! Will be anxiously waiting for the good news!
Hi, Tony and yes very important that it is contained and also that you have options for treatment.
Well, they gave it a name and quite a name it is! My husband, who was Sicilian had trouble pronouncing CC and made it his own by calling it Angelo Carcinoma. I used to laugh to myself thinking, leave it to Teddy to make it Italian! Please let us know what the Doctor says and much good luck to you.Dear Tracy, welcome to the best place to be for CC support and to our wonderful family. I am so sorry to read about your Sister. One of the key points in being treated for CC is the ONC and the Hospital. It can be the best hospital in the world but if they are not experienced with CC which is so rare one needs to get another opinion. We are big believers in 2nd and 3rd opinions. We don’t like to hear “nothing we can do”. We also do not listen to time frames. My husband was told a year and that year became 5. I believe it is human nature to want to live as long as you can given a dire diagnosis. Every day counts and each day new memories are made. I know how you feel, we have all been there but you need to try to be very strong so your Sister can draw on your strength. My suggestion for now is to find out how experienced this hospital is with CC and to get a 2nd opinion. We have had so many diagnosis turn around because of another opinion. My husband got his strength and will to live because of the strength we showed him and he drew on that strength. Please keep us updated on the chemo progress and please consider a second opinion. Cleveland Clinic is one of the best in Ohio and we have had many patients do well with their care.
Dear Carla, welcome to our remarkable family and so glad that you posted. Congratulations on Jeff’s tumor shrinkage and stable is one of our favorite words. As you have already learned it is kind of a hunt and peck system until you find the treatment that works best for Jeff as everyone is so different. Glad you came out of the lurkers corner as I know you will find us a friendly group and full of advice and stories. Below is a site you may find helpful and please keep us updated on Jeff as we truly care.
http://cholangiocarcinoma.org/newly-dx/
Dear Elizabeth, I am so very sorry about Peter. Your post, I am sure will help a lot of members on our Board and what a wonderful way to have everyone remember Peter and his journey with CC by also helping others. In time all the good memories will come through and crowd out the others and that is the way Peter would want you to remember.
Death is nothing at all. It does not count.
I have only slipped away into the next room. Nothing has happened.
Everything remains exactly as it was. I am I, and you are you,
and the old life that we lived so fondly together is untouched, unchanged.
Whatever we were to each other, we are still.
Call me by the old familiar name. Speak of me in the easy way which you always used.
Laugh as we always laughed at the little jokes that we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was.
Let it be spoken without an effort, without the ghost of a shadow upon it.
Life means all that it ever meant. It is the same as it ever was.
Why should I be out of mind because I am out of sight?
I am but waiting for you, for an interval, somewhere very near, just round the corner.
All is well. Nothing is hurt; nothing is lost. One brief moment and all will be as it was before. How we shall laugh at the trouble of parting when we meet again!
By Henry Scott HollandDear Maribel, YEA!!!! As Julie wrote we do love the word surgery. This is big but it is a great happening! We will be cheerleading and so many of us will be there in spirit there may not be enough room in the Operating room. Wish you all the very best!
