lisacraine

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  • April 23, 2013 at 5:38 am in reply to: Hives and welts #69671
    lisacraine
    Spectator

    Jill,
    Thank you for your ideas. I have been reading about allergies to salicylic acid which could be a trigger for me since I love grapefruits, tomatoes, coffee and tons of fresh veggies and fruits which are all high in salicylic acid. I also read it can be an autoimmune disorder. I love my bread and pasta so I should probably try eliminating the wheat and see what happens….I’m just so miserable and itchy. Marion and Percy have given me ideas as well. I know hives wont kill me but they sure are annoying.
    Lisa

    April 23, 2013 at 5:30 am in reply to: Introducing The New patient Network Website by FDA on 4-23,2013 #71014
    lisacraine
    Spectator

    Percy and Marion,
    Thank you for all your hard word to make this come to happen.
    Lisa

    April 23, 2013 at 5:28 am in reply to: Clean scan #70848
    lisacraine
    Spectator

    Eli,
    Congrats to you and Marina. What a wonderful birthday gift! I am so happy for your good news……Life is Good
    Hugs,
    Lisa

    April 22, 2013 at 3:48 am in reply to: My wonderful daddy lost his battle #71025
    lisacraine
    Spectator

    Sending sympathy. So glad you were all there and it was peaceful. Praying for your family.
    Lisa

    April 16, 2013 at 5:48 am in reply to: Husband Diagnosed in Early March with this… #70741
    lisacraine
    Spectator

    Welcome,
    I am a stage IV survivor of 2.5 years. I have had two liver resections, many types of chemo and several rounds of steriotactic radiation. The steriotactic radiation has been successful in killing four tumors. If you would like to talk I can be reached at 330-903-6868.
    Lisa

    April 10, 2013 at 2:31 am in reply to: My husband has passed #70551
    lisacraine
    Spectator

    Dianne,
    My deepest sympathy. Blessing to you for making donations to this wonderful organization. Sending hugs and prayers
    Lisa

    April 10, 2013 at 2:27 am in reply to: Lauren’s Surgery #70211
    lisacraine
    Spectator

    Pam,
    Welcome home my sweet friend. The doctors had to increase my Lasix after surgery because I had so much swelling in my legs and mid section. You are doing all the right things….you are one amazing Mom…..the relationship between you and Lauren is so beautiful.
    Love ya
    Lisa

    April 9, 2013 at 3:45 am in reply to: Hives and welts #69669
    lisacraine
    Spectator

    Thank you for the suggestions ……will be trying all that are applicable…I have the steroid prescription but don’t want to take it again…..I really want to figure out what the cause is……..
    Lisa

    April 7, 2013 at 8:15 pm in reply to: Hives and welts #69663
    lisacraine
    Spectator

    Update on my hives. They are still active and itchy. I have been on every combination of antihistamines possible, Zyrtec, Claritin, Allegra,Benedryl, doxypin with no relief. If I am not better by tomorrow I will start on steroids again which I hate. I have had 4 medral doses of prednisone in 8 weeks and have gained 12 pounds. I’ve tried oatmeal baths, baking soda for itching, etc…..the itching is making me crazy! Thank you for all your suggestions..keep them coming.
    Hugs
    Lisa

    April 7, 2013 at 7:39 am in reply to: My Take on The 3rd CanLiv Hepatobiliary Research symposium on 4/5/2013 #70564
    lisacraine
    Spectator

    Percy,
    Thank you
    Hugs
    Lisa

    April 7, 2013 at 7:37 am in reply to: Going to hospital #70572
    lisacraine
    Spectator

    Christine,
    Hopefully you are at the hospital and they can get everything figured out.
    Sending prayers
    Lisa

    April 7, 2013 at 7:28 am in reply to: Daughter of Newly Diagnosed 58yo Mom #70589
    lisacraine
    Spectator

    Hi Aticon,
    You and your Mom have had a lot thrown at you in three weeks. My oncologist, at The Cleveland Clinic, also consulted with Dr. Javle at MD Anderson. Tiffany from this group sees Dr. Javle and she said he is wonderful.
    Sending prayers
    Lisa

    April 7, 2013 at 7:20 am in reply to: NIH trial update #70621
    lisacraine
    Spectator

    Melinda
    This fabulous news…so happy for you
    Hugs
    Lisa

    April 7, 2013 at 7:18 am in reply to: Reserection survivor #70623
    lisacraine
    Spectator

    Lee,
    Welcome to this wonderful group of supporters. Did you have chemo after resection ? Any treatment now ? I also had a resection, actually two.
    Lisa

    April 1, 2013 at 4:00 am in reply to: Hello everyone I am Pat a very blessed cc survivor #70350
    lisacraine
    Spectator

    Hi Pat
    Welcome and thank you for sharing hope. I am also a Cleveland Clinic patient, who was your surgeon ? Dr. John Fung is mine and I love him…he is a wonderful man and brilliant surgeon
    Lisa

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