lisacraine
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October 28, 2012 at 1:58 am in reply to: A Meeting With The FDA On Adding CCA To The Disease List #66057
lisacraine
SpectatorPercy,
You are the best !!!!!!
Thank you for your hard work
Lisalisacraine
SpectatorHolly,
You will know when you find the right specialist. I totally agree with several opinions, the more aggressive the better…..my tumor was 6 cm x 8 cm and I was blessed to have a very skilled liver surgeon that removed e entire tumor, his name is Dr. John Fung at the Cleveland Clinic, he is brilliant.
Hugs, Lisalisacraine
SpectatorHappy Anniversary….praying for many more…let’s grow old together..hugs xxo
lisacraine
SpectatorHi Cindy,
Welcome to our wonderful family. I will pray for shrinkage so you can have surgery. I have had two resections so if you ever want to talk or have questions please feel free to call me 330-903-6868. I have changed my diet which I think has helped me.
Lisalisacraine
SpectatorCongrats on getting it removed!
lisacraine
SpectatorBruce, I am treated at the Cleveland Clinic. I had my first resection in Sept. 2010 with close margins but one lymph node in gallbladder was positive. I had 6 months of chemo(5FU) and no radiation. The cancer came back and I had another resection, during surgery they radiated the area where the two tumors were removed. I recently had two tumors radiated and it seems my tumors respond to radiation better than chemo. Since there was one positive node, I would take the chemo and radiation, if it was me…..
Lisalisacraine
SpectatorEli,
Wow, so sad.
Lisalisacraine
SpectatorI am so sorry to hear of your husbands passing.raying for your family.
Lisalisacraine
SpectatorPercy,
Wow, very interesting information. Thanks for keeping us informed.
I’m watching the debate but needed a little break.
Hugs, Lisalisacraine
SpectatorHolly,
Welcome to this amazing second family. I was diagnosed over two years ago. I have had many types of chemo, radiation and surgery. There isnt one answer for everyone, this is a tricky disease. I will pray that your specialists will come up with the best treatment plan for you. If you want to talk just let me know, I would be happy to answer any questions about my treatment.
Lisalisacraine
SpectatorKathy, so glad hernia surgery went well and you are home. What can I expect when they schedule my surgery ?
Praying for your speedy recovery
Lisalisacraine
SpectatorLynn, sorry to hear about George’s pain, hopefully hospice will solve that ASAP. That is so cute that George loved his social workers and they bonded. Praying for comfort.
Lisalisacraine
SpectatorWe will not have raised enough money in our fund to grant for research for probably another year or two. The criteria for our fund clearly states that the money goes to cc research only. We will consult with the experts from this board, several specialists and the board of directors.
lisacraine
SpectatorStacie and Percy, I am so thankful to have you both working so hard for cc. Congrats to both of you…so proud.
Hugs, Lisalisacraine
SpectatorRachael, so sorry your cc has returned but so happy to hear you are a good surgery candidate. I will pray for a successful surgery.
Lisa -
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