lisacraine

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  • June 13, 2014 at 4:59 am in reply to: Information, please #82926
    lisacraine
    Spectator

    Larissa,
    I am so sorry for your pain. Hospice is a wonderful opportunity to keep your Aunt comfortable and able to share time with her family. I think it is so beautiful that you are going to visit her and support her decision. Praying for your family.
    Hugs
    Lisa

    June 12, 2014 at 4:16 pm in reply to: Doctor not optimistic #82976
    lisacraine
    Spectator

    Suzy
    Sending healing prayers for your Mom and family. Please don’t give up hope.
    Hugs
    Lisa

    June 12, 2014 at 4:14 pm in reply to: Bilirubin in good range and tumor markers down #82869
    lisacraine
    Spectator

    I love to read about the dropping numbers and yes, I had a love/hate relationship with chemo. When I was on the portable pump at home I would look at it and tell it I loved it and hated it, I’m sure my family thought I was crazy. Praying for good scan results.
    Peace and hugs
    Lisa

    June 12, 2014 at 4:12 pm in reply to: CC free 2nd resection #82950
    lisacraine
    Spectator

    Steve and Liz
    This is fantastic news. I have read that recurrence happens a lot when clean margins are not able to be attained or there are distant lymph nodes involved. I had recurrence after my first resection but my tumor was pressing on the artery so they took the whole tumor but could not go any farther to get a clean margin border. My body did not respond to chemo but I did have good luck with steriotactic radiation for some small tumors.
    Hugs
    Lisa

    June 12, 2014 at 4:06 pm in reply to: My Introduction and history #82965
    lisacraine
    Spectator

    Virginia
    Welcome and thank you for sharing your story and giving so many hope. I also had a liver resection removing 75% of my liver, big surgery but so grateful to have had it.
    Live…laugh and love
    Lisa

    June 12, 2014 at 4:03 pm in reply to: clinician endorsed patient information #82944
    lisacraine
    Spectator

    Nicely said! Love this site and the people
    Hugs
    Lisa

    June 12, 2014 at 3:58 pm in reply to: CA19-9 down from 150 to 47 #82909
    lisacraine
    Spectator

    Awesome news! Positive attitude is everything. When we have hope we have peace in our life. So happy to read this news.
    Hugs
    Lisa

    June 12, 2014 at 3:56 pm in reply to: Information, please #82920
    lisacraine
    Spectator

    Larissa,
    Welcome to this amazing, loving and supportive group. Sounds like your Aunt has a wonderful niece. I agree with Lainy, a second and third opinion is in order. My cancer did not respond to the four different chemo treatments I had but I did have great results from steriotactic radiation. There are so many new trials happening so please do not give up hope. I would also recommend that your second and third opinion be from a multidisciplinary team who has treated other Cholangiocarcinoma patients.
    Hugs
    Lisa

    June 7, 2014 at 2:04 am in reply to: International Cholangiocarcioma Patient Registry – ready for launch #82655
    lisacraine
    Spectator

    Awesome news!!!!

    June 4, 2014 at 5:09 am in reply to: My husband is going to have resection surgery! #81332
    lisacraine
    Spectator

    Congrats on a successful surgery. I also had to take diuretics for swollen legs and belly. The walking also helped with this.
    Lisa

    June 2, 2014 at 3:49 pm in reply to: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati #82667
    lisacraine
    Spectator

    So many exciting things happening!!!!
    Lisa

    June 2, 2014 at 3:47 pm in reply to: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati #82666
    lisacraine
    Spectator

    So many exciting things happening!!!!
    Lisa

    June 2, 2014 at 3:45 pm in reply to: My husband Al #82706
    lisacraine
    Spectator

    Dear Shelley,
    I am so sorry for the loss of your husband, please know I will be praying for you and your family.
    Peace
    Lisa

    May 24, 2014 at 4:41 pm in reply to: Best thing my new oncologist said yesterday #82585
    lisacraine
    Spectator

    You are a warrior…..go girl!
    Lisa

    May 24, 2014 at 4:39 pm in reply to: 5 years cancer free!!!!!!!!!!!!!!! #82592
    lisacraine
    Spectator

    This is the best post ever!!!! Time to celebrate…enjoy…live, laugh and love!!!
    Lisa

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