lost_soul84

thank you it went okay i just look like the mummy now with all these bandages haha me and my small veins always takes two times to go through..now i just wait a week! hoping for some good news

Do they know long long it generally takes bile duct cancer to develop i know the spreading happens fast and is agressive but the actual bile duct it self is this somethign i would have had from young since im 27 now? or is it not known.

but how long generally does this take to develop? last year on my endoscopy when i found out i had Celiac and my stomach was completly derstroyed from the glutenthey didnt see the cancer at all and now i am in stage 4 and it was spreading very fast apparenntly if they couldnt pick it up and now i have all this crap in me. and when i did my endoscopy this year when they put the stent in my stomach had healed itself cause i stayed away from wheat so well so it wasnt that that was making me sick it was the inflammed liver/cancer/food sensitivites from Ceiliac.

ive been doing so so i went to Trinidad to see my sister for a week and it was really fun but my brother and her kids were all sick so i got sick from then and the plane we came back Thursday and i have my first cat scan on tuesday! im so nervous but i havent had any issues except my stomach which i cant tell if its from the Celiac or the chemo

the funny part is for the whole year after i was diagnosed i was feeling sick still no matter what i ate i litterally only ate dry chicken with nothing but salt n black peper on it rice and lettuce cause i was scared of fructose in veggies

after i was diagnosed with this cancer they put the stent in and i magically could eat everything again all my liver inflamation went away it went down to almost normal. (i looked llike Homer Simpson prior to the stent)

now i ate out a few times so i dont know if im getting sick again because of wheat or because my stent needs to be changed or because of my Chemo i know the gas is from my chemo

and when u eat wheat it takes a few weeks to be back to normal again and i was even eating dairy before a little after they put the stent and now i cant again so i dont know whats going on i think im back to my rice and chicken diet cause i keep getting sick ahh it was so great to eat yummy food and not get sick i almost cried cause it had been that long since i was able to enjoy food.

i was even starting to put on weight and now its down again so im a little scared for the results of my cat scan…although that and insomnia which ive always had a bit but is worse now seem to be my only issues.

im going to try my plain diet for like a month and see if it helps.

Thats all i needed to know thank you soo much i think my friend was just worried and read all the stuff online thats not accurate thats what i did when i was in the hospital too but after meeting my oncologist she did give me hope i guess my friend just scared me sorry i have my moments where i think about it but i will continue to make my long term goals because it helps. Im not giving up dont worry i just had a moment! it happens sometimes.

Thank you for your input i had a doctors appointment yesterday with her and my first round of the second cycle today so i asked her yesterday. The nusrse said that since my head has been very ithcy that means that it might be getting ready to fall and that it might fall in patches or bald. its itching soooo much i notice quite a bit of sheding in the shower now too i try not to wash my hair too soon im scared its all gonna drop when i go in i guess im ready for that! yay for scarves!

I asked about the immodium she said its okay but not to take too much of it i wasnt planning on it only if its really bad. I will follow that bananas and rice plain foods diet that seems to help and yes i do follow a gluten free diet i try to stay away from dairy and too much sugar when i can too i think it bothers me more now with the chemo which sucks because i loveeeee cheese but you gotta do what you gotta do!

Good news though im always hungry hungry hungry and my jaundice is almost gone which she said means my inflammation is almost all gone so the chemo could be working! im happy with the results from my first cycle of chemo i hope it stays like this. one down 5 more to go.

Thank you all so muc for our kind words it means alot to me really to go from not knowing anyone with this to hearing all your stories it helps. Im trying to stay strong for my family and friends. Hate to see them upset. It just makes it hard when planning school and stuff now. I can’t go back into hairdessing you don’t realize how bad all the chemicals we use on a daily basis are untill you go through something like this. I guess i know deep down that nothing i did caused it just probably added on to it i guess the inital reaction is what could i have done to avoid this. It helps havng the support of family friends and you guys. I just want to get better and go back to school get my masters and all of that so i have to be strong and fight Hopefuly this chemo keeps going well. I had so much discomfort before this i can’t tell which is fom the chemo or not but it seems to be okay unless i eat something really greassy or unhealthy need to look for more healthy recepies . Was expecting so much worse for chemo you keep hearing how awful chemo is but this combo does not seem to be too bad. It still is my second week next week is my rest and visit with the oncologist. Thank you all again i will keep you update wish you all the best and if you ever need anyone to talk to you can email me since i have alot of free time on my hand when im not knitting and reading haha. Knitting passes the time away you should all try it.