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  • in reply to: Floating abdominal nodule? #95481
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    Moderator

    Catherine….So surreal for another unusual situation to pop up. I don’t recall a single case report on free floating tumors, but remember speaking with a colon cancer patient. That’s when I learned about this unusually rare occurrence.
    This is one of those catch-22 situation – nodule needs to be removed due to high risk of infection and of course for diagnosistic purposes.

    There must be some out there reading this posting, who can help us understand.

    Hugs
    Marion

    in reply to: 6 years cancer free #95444
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    Moderator

    Susie…..two wonderful things happened
    a. you posted
    b. it contained fanastic news

    Thank you, dear Susie, for giving hope to others and for peeking in on us.

    Hugs
    Marion

    in reply to: INCB 54828 #94130
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    Moderator

    Yeah, Kim, it’w working! Thrilling news.

    Hugs
    Marion

    in reply to: Hi! #95437
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    Moderator

    Silentk…..already you are doing anything possible to help ease the situation. Caregiving is a tough and often times not recognized for it’s complexity. You dealing with a situation no one is prepared for. Glad you found us. We can relate to what you are dealing with.
    From your husband’s perspective: He has lost control over his body and now he exerts his control in other ways. That may very well be the reason for his denying any type of intervention regarding his mental health. Perhaps the physician can achieve some results?

    Thinking of you and sending tons of hugs your way

    Marion

    in reply to: Advice and further options #95419
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    Moderator

    Anthony….looks as if your Mom has reached maximum benefit from the current treatment and the physicians will look for a next course of action. As far as I know the liver function is a direct result of the underlaying disease, hence when the disease is controlled her liver function will improve as well. The challenge lies in addressing the cancer, which in your Mom’s case is “colon” cancer.
    Please know, that this site brings together the collective knowledge of patients affected by bile duct cancer. Although, intrahepatic cholangiocarcinoma occurs deep inside the liver, HCC and intrahepatic are two different types of cancers with some similarities. You may have reached out to us because our disease often times is considered a cancer of the liver.

    Have you reached out to the Colon Cancer Alliance or any other organization focused on your Mom’s cancer only? This will give you the opportunity to interact with others very familar with your Mom’s type of caner.

    Hugs
    Marion

    in reply to: Sorafenib or Keytruda? #95036
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    Moderator

    Annabel..Your fathers genetic testing must reveal MMS- HIgh in order to receive Keytruda on it’s own. If that is not the case than testing for PD-L1must come back as positive, which in turn will allow him to enter the Merck clinical trial.

    Please keep us posted, we care.

    Hugs
    Marion

    in reply to: Hi! #95434
    marions
    Moderator

    Silentk…..I feel fo you. Do you have a support system? Have you spoken with a psycholoist? You are and your husband are suffering in your own way and both of you need some help.

    Hospice should have picked up on this. It’s obvious your husband is suffering from depression and who knows what else. Put pressure on the treating nurse so that your husband as well as you are evaluated for the use of an antidepressant,

    Hugs and good luck,

    Marion

    in reply to: Hello, new to this. #95413
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    Moderator

    Kazias……Foundation One will bill the insurance. Unlike a few years ago when patients were responsible for the residual cost today this doesn’t happen anymore. Foundation One simply absorbs the cost. This cooincides with what board members have reported.

    Hugs
    Marion

    in reply to: Hello, new to this. #95412
    marions
    Moderator

    Jack…..absolutely, search out a second surgical opinion independent of the opinion from another oncologist. You may want to ask Dr Kim the reasons for adding entering you in the possible clinical trial with PI3K. Also you would like to know whether it could prevent you from possible other clinical trials.

    Of course you are scared, who isn’t? You may want to inquire about a drug aimed to treating anxiety.
    Hugs

    Marion

    in reply to: Scan results #95386
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    Moderator

    Brigitte….I love the good new part and very encouraged by the fact that you have another opportunity for TACE. Of course, we want it all gone, but the next application may very well give you the desired result. So good to know that options continue to pop up.

    Tons of good wishes,
    Marion

    in reply to: Riding the roller coaster #94467
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    Moderator

    Gail… I echo Darla’s comments. No one is prepared to handle all that comes with losing a spouse to this cancer while raising three little ones and working full time. Incredible!

    You will need to recharge your batteries. Hoping you find a few moments to nourish your body and soul.

    Tons of hugs,
    Marion

    in reply to: Molecular Testing #95296
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    Moderator

    positivity…..it doesn’t take a large amount of tumor tissue for diagnosis, but molecular testing requires a significant larger amount of tissue as the essay will test for up to 500 protein expressions.

    Hope this helped.

    Hugs
    Marion

    in reply to: Molecular Testing #95295
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    Moderator

    As far as I know the more advanced the cancer, the more tumor cells circulate in the blood. I think it works best for Stage III/IV but don’t hold me to this statment, please check with the physician for verification.
    Having said that I would investitage the possiblily of a liquid blood test.

    Hugs
    Marion

    marions
    Moderator

    You may also want to inquire about Neulasta, a white blood cell boster.

    https://www.neulasta.com/learn-about-neulasta/

    Hugs
    Marion

    marions
    Moderator

    Helping us understand the cellular interactions in the compex immune system.

    This is a great ASCO article explaining in layman terms:
    http://www.ascopost.com/issues/july-25-2017/the-immune-system-deciphering-recent-advances/

Viewing 15 posts - 1 through 15 (of 9,870 total)