middlesister1
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Donna,
Lainy always says you don’t know how strong you can be until there comes a point you have to. I’m sorry it sounds like you’ve faced more than your share of times where you needed strength. I’m happy you found our group (Melinda is amazing) .
Best wishes down the next path you take- if it’s the clinical trial, I hope for tremendous success.
Take care,
CatherineSally-
Thank you for sharing the great results- I hope in the future to hear many more!
Best wishes to you both,
CatherineYEAH MELINDA!!!!
Think I just posted this on another thread and was worried about being diplomatic. With Dad’s new diagnosis ,they said that immuno therapies don’t work on many, so they go chemo route first. However when they do work- and with only minor side effects- shouldn’t that be an option especially if genomic test says it has a good chance? To put patients through chemo which extends life by 3 months and wears down health before admitting to trial seems wrong. I’m glad they are considering the rare cancer like CC on deciding what needs to be done first.
If I had won the power ball , I would have tried to address this.
Melinda- wishing you the best- you are our shining star. Even if it wasn’t for CC, anyone who can raise such a large and wonderful family, deserves an award. With clinicals, it is frustrating to see that most make you progress on treatments which on average can only extend life 3 months and also wear the body down. I hope they allow you to get on new treatment ASAP.
Matt- hope you’re doing well.
Take care,
CatherineI think our issue was if it was administered in hospital vs home prescription= not just the IV. we were amazed that it made a $400 out of pocket difference. We were fortunate doctors adjusted after 1st cycle and gave larger dose in hospital which still worked wonderfully.
Hi. First round in MD the Emend was very high ( want to say $200 pill times 2 days) next cycle to avoid the charge they gave it IV in hospital and then Medicare covered it although not a cancer specific drug, it allowed Mom to tolerate treatment.
Dear Bridgett,
Best of luck to you today. Below is a link to a discussion topic that asked for helpful suggestion for going through chemos.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=13069
Take care,
CatherineJulie-
I love the wonderful prognosis- and from multiple doctors too! So very happy for you (but still so sorry you have to go through the yuck to get the good news).
Take care,
CatherineBrigitte,
I’m very sad to read your update. As Marion said, many here have been on Gem/Cis. I wish for you minimal side effects coupled with great results. My mother was on GemCis, and after they adjusted her fluids and added steroids to her treatment, she was able to keep side effects tolerable.
Catherine
Dear Sandie,
I wish the Gem/Cis was doing more, but very excited that it looks promising to get your Mum on keytruda. Just as every patient is different, our oncologist said that some have CC which is fast growing and some do not.
Take care,
CatherineShelley,
Welcome to our group! Looking forward to and keeping fingers crossed for great scan results.
Best wishes,
CatherineLainy-
So sorry that you insist on being unique and having these procedures done. Interesting that they warned you about the eye swelling shut. Dad had the brain surgery on a wed and it wasn’t until Saturday morning that he woke up with it swollen shut, but may be a different location.
Love and prayers coming your way,
Catherine
