pam
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Tara, I am so sorry you lost your dad so suddenly. I know it is a shock. My dad lived about 6 months from diagnosis. I was so very sad for a while. Let your self grieve and heal. Your dad loved you! When my dad found out he had cancer, my husband and I were in the process of moving. I stayed and cared for my Dad then moved. It was very hard to start my “new life”‘in a place I had never lived before. I spent hours going through everything that happened in my head. After about 18 months, things are so much better. Take it easy on yourself. Understand that your dad would want you to be happy! Stick around here and you’ll receive support. If it is not enough, talk to family, close friends, or a therapist.. It’s all a part of processing what happened to you and your family.
I am so sorry to here of Jim’s passing. Please let Janis and family know we are here supporting them. Sorry you lost your friend, Tiffany.
Senstitive:
Jose, the confusion was the last month or so before he passed. We had some close calls with him falling. He would get up and wonder around very unsteady. You have to be on guard and jump up the minute you hear something. The last few weeks I stayed in the room by his bed day and night. Agitation was probably the last week or so of his life. We really medicated him at that point. Every person is different. There are many helpful articles on the Internet that help with knowing the process of death. You can do this! And you will feel so blessed to be a part of it. I’m praying for you!
Jose, My heart breaks that your sister is suffering through this ordeal. My dad had a lot of confusion/agitation toward the end from high ammonia levels. I know this decline is devestating to watch as a care giver. You are doing a wonderful job. I would make sure she is as comfortable as possible and give her medication around the clock. She is at a high risk of falling if she is able to get out of bed so watch her closely. I’m praying for strength for your family.
SENSITIVE: I was my dad’s care giver and was by my dad’s bedside when he passed. He had his last sit up and assisted shower on a Thursday and then slowly went downhill and into a coma the last several days of his life. He didn’t want many clothes on either. We draped him with an airy sheet and ran a small fan which helped him to stay calm. We talked to him and kept him well medicated. He was very comfortable. Some of his medications were not liquid form so we crushed what we could and applied with drops of water. (Wished all would have been in liquid form). We used lots of lip balm on him. He opened his eyes moments before he passed and we were able to tell him hi and that we were going to miss him terribly. He had asked we wait a time (30 minutes or so) before calling Hospice to inform them of his passing and we honored that request. It was an honor to be his daughter. His death was not scary at all. I felt it was a privilege to be there.
My mom had one. Her doctor filled out a form and we took it to the DMV. They issued us a hard plastic card we placed in the windshield of whichever car we went out in. Hope this helps.
Dina, I am so sorry about the disappointing news of your Mom’s surgery. I am responding because it was the same with my Dad’s cancer. The surgery was aborted too. They believed his started in the gallbladder and then traveled the biliary tract. It was in his pancreas too. He never had mets to his liver. The surgeon said he wouldn’t have had any clear margins. It was heartbreaking. After about a month, my dad was doing better. We had so many good days and trips to the coffee shop. He tried a few treatments of chemo, but he was in a very weak state and couldn’t tolerate it. He lived about 6 months from diagnosis of cholangiocarinoma. He did have other health issues as well. I know your family feels like they have been punched in the gut right now. It will take time to process it. I hope your mom is feeling better soon and you can make those memories with her. Wishing you all the best, Pam
Dear Les, Just wanted to welcome you to the site. I recently moved from the Ocean Springs/Biloxi area after living there most of my life. My dad was treated for CC there. His oncologist was Dr. Lydia Latoure. He also had an attempted resection at Ochsners in New Orleans by Dr. Bolton. I hope Sarah is feeling better soon.
I am so sorry you lost your son. He was a brave soul and loved you very much. My thoughts and prayers are with you during this difficult time.
Dear Sugerplumfairy, my dad’s cancer was also detected at a late state. He had a few plastic stents inserted, an attempted resection, and two sessions of chemo. In the end, we made him comfortable and spent our days loving him. You are doing a great job and your dad appreciates it. Keep coming to this board for support. It helped me so much. It’s been a little over a year since I lost my dad and it does get easier. I hope he has some good days ahead. Pam
