pderat
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Ronda- I hope you and your son can find peace in knowing how your love and support surely helped Bob fight this horrible disease and leave this world knowing just how loved he was. You are in my thoughts and your participation on this site has made a difference to me and I am sure all of the members. Take care of yourself. Patrice
Thanks. We did have a nice weekend but the trip for very tiring for Dave. We are trying to set up a conference with the oncologist and the cardiologist to see how best to proceed. Dave’s heart problems could take him out at any moment. The oncologist has put a hold on the chemo for awhile just to give him a rest. I don’t know what we are going to do. We are trying to stay positive but it sure is difficult and I am scared each day that I go to work the something bad will happen while I am away. I am going to try a take some time off from work. Thanks again for your posts.
Dear Rhonda-I cry as I read your post. I will hold you both in my heart druing my meditation tonight. Hospice is a big help to a lot of people. Love still will help to heal the mind and spirit if not the body.
PatriceSorry Susie for your loss. I know this site has been a big help and support for many of us battling this horrible disease. May you find peace in your memories of your Dad.
Patrice
Thanks Jeff for your post. Dave is feeling well this week. We are going to Maine for the weekend to visit my Dad who is in a nursing home there. Dave had a cardiac catheterization during his hospital stay and it showed 3 blocked coronary arteries, which is not good but at this point he certainly is not a candidate for any heart surgery. He is seeing a holistic cardiologist tomorrow for another opinion on how best to deal with this medically. We have decided to just live each day to it’s fullest. Enjoy each other, do the chemo and not dwell on the crap. The support of this site, though sometimes very sad, has been a big help.
PatriceWow Jeff-I have been away for awhile and had no idea!!! So sorry you had to go through that. Glad things are getting back under control. It is really true about being an advocate for yourself. So sad how some people are alone and can’t advocate for themselves and just get dismissed by the medical community. Hang on Pumpkin!! We’re all on your side and that’s gotta help. Patrice
Hi Jeff-thanks for the nice poem. You are a gentle soul who brings so much of your inner strength to everyone on this site. When Dave was diagnosed I sent out an e-mail to all our friends telling them that Dave needed them to be like the seventh friend above. My first husband died of lung cancer and after the first couple months friends slowly disappeared as it became difficult to see Phil sick. I didn’t want that to happen to Dave and so I came right out and said so. Some day it is “too late” to say you care. Dave has his first CT Scan tomorrow after 4 chemo treatments. He feels better and we are hoping for the best. Thanks again to everyone for contributing your thoughts and sharing this journey. Patrice aka PDerat
Thank you so much for your story Mary. My husband has his first follow-up CT scan tomorrow after 4 cycles of chemo in 2 months. He is feeling and looking much better so we are hopeful. It was so good to read your positive story. Love heals. Best to you and Tom. PDerat
So sorry about your Mom and so glad she was able to make it to your wedding. Goals and determination and love make all the difference. Dave and I have no children but are holding on to each other with hope and determination to beat CC. Best to you and your husband. PDerat
Thanks Jeff and Stacie. Dave called them, and they did ask about insurance, but Dave was soooo impressed with the amount of information they offered on the phone and these treatments are very expensive. He has only had 3 chemos and his bill is already over 30,000!!! Fortunately we do have insurance. They did tell him that they would help him financially to get there with discount airline and hotel reservations. They also pick you up at the airport and have a shuttle that goes from hotel to hotel. We just read the book “there’s no place like hope” by a woman who was told to “get her affairs in order” by several cancer centers and went there and was cured….now 14 years later. So, I don’t know if we will end up going there, but it sure sounds good to us with the combination of allopathic, alternative, nutritional, and spiritual support. Who knows. We are open to anything. Thanks again. Patrice
Stephanie-My husband’s scenario is very similar. His CC was diagnosed 3/30. He is feeling much better now after 4 doses of chemo. We have not been there yet but have very strong feelings about the Cancer Treatment Center of America. There are 4 locations and hopefully one is near you but we feel going there even though it is far from us may be the answer. We read the book “No Place Like Hope” and Dave has talked on the phone to the folks at this hospital and they were very very encouraging. Please call them. See their site. http://www.cancercenter.com/ Best of luck to you and your BF. Stick by him as support is so important. Patrice
That’s great Jeff. I’ve been wondering how he was doing. Fingers are crossed for the MRI to show improvement. Dave has his scan after his chemo next week. We are so hoping for improvement. He is feeling better except now he has an infected tooth which we know is a bad thing when you are on chemo.l He started antibiotics today. Take care and my best to your Dad.
What great news Lainey! I am not sure what you mean by hand and foot syndrome. My husband gets burning in his fingers from anything cold from the oxiliplatin, but has had no foot problems. I am going to ask his doc about the Xeloda. Always happy to hear anyone’s progress. Take Care and good luck on the 7th. Patrice
Hi Pranjal-My heart goes out to you at this very difficult time. My husband was also diagnosed at the end of March 07. He has lost a lot of weight but thankfully so far has no pain or nausea or jaundice. He does have many liver tumors but the treatment he is getting they think is shinking them which will hopefully give him more time. Like Jeff, we are hoping something new will be around the corner to improve chances. Again, my sympathies to you and your family. Your Mom was lucky to have you. I don’t know how anyone goes through this alone. Patrice
Hi Manu-I know just how you feel. You can read my post from a few days ago under general discussions. My husband 64 was diagnosed March 30th. He has had 2 treatments of gemzar and oxiliplatin. He would have had to go to 2 hrs away to get the Avastin too but he had a second opinion at Mayo Clinic who are big in the treatment of CC and the doc there said there is not significant improvement with any of the additions to gemzar. We too are hoping for a miracle. He has multiple liver tumors. Some quite large. Hope your Mom improves. How old is she? How is she feeling? My Dave is feeling much better this week. Take care of yourself and I will keep you in my thoughts. Patrice
