peter
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Hi Sue,
I have not started Chemo yet and am contemplating my options.
How is your husbanding doing on that combination?Best wishes to you both,
PeterDarthmouth Hitchcock Medical Center is running Phase I trial on VEGF right now. It’s VEGF with Gemccitabine but I have not found any of their results yet.
Good luck. I hope the VEGF works well for you.
-Peter
Lynne,
Who is your Boston oncologist?
I live in VT but will be seeing Dr. Keith Stuart in Boston next week as he has experience working with BDC patients. He’s currently at BI but moving to the Lahey clinic soon. I’m interested in the trial you mention.
Thanks,
PeterDarthmouth Hitchcock, our local cancer center, is participating in the Phase III trial that Woody mentions and is one I am considering. I have not heard that all participants will be opened for XL119 but, if true, that’s great news.
Currently eligibility requirements include specific ratios on liver enzymes. AlkPhos is 2.5 times the norm and I’m just out of range.Thank you Caroline. Please keep us posted on AZD2171 as well. I now must consider what protocols I may try and am trying to gather as much information as possilbe.
-Peter
Mo,
Welcome to the club no one wants to belong to. This is a great site for support and information and I’m sure you’ll find help here.
The key right now is to go for the surgery ASAP. If your friend is eligible that’s a gift as it remains the most effective treatment for this beast of a disease. Do you have a surgeon with experience with this disease?
While following that path you’ll also have time to help with research for what possible additional steps you may all choose.
May she find the best care and have good results.
-PeterI have been drinking Essiac tea for 3 years now. I steep individual cups rather then making a large batch as was recommended by the Chinese herbalist where I first got it. More recently I’ve been ordering off the internet from Canada. Here’s one link that list the primary ingredients and a little history.
http://www.ralphmoss.com/CT32.html
-Peter
Stacie, Rick and Caroline,
MIght Caroline’s post of her experience be easier for others to find as it’s own thread under experiences?
-PeterGeoff,
I only know what I’ve found with some internet searches. Perhaps contacting Sloan Kettering directly would get some answers.
-PeterDavid,
I have had the same surgery, August 2003, but have not experienced your symptoms.
It is a major change to our bodies, digestive and bile systems so it isn’t surprising that we ‘work’ differently then the rest of the population.
I have no medical training but am struck that the pain you describe seems to be in the area of your heart?
-PeterJay, This is a tough diagnosis and it sounds like your Dad has had a dificult time of it. You don’t say why they were not able to remove any of the tumor when they tried to operate. There are very few surgeons who will do a klatskins resection when there are complications like the Portal vein or main artery. A few are successful with this however.
Some of us here have had successful Klatskins surgery at the Lahey Clinic in Burlington Mass, just outside Boston. If you haven’t already it would be worth contacting their Billiary Unit and Dr. Roger Jenkins. (781) 744-2500.
For some additional info here look for my history post under ‘experiences’, the recent posts by Marions, and search on ‘klatskin’.
Our best wishes and prayers to your Dad and your family.
-PeterJon,
Have you investigated having surgery?
If you can find a surgeon who believes you are a good candidate for surgery it is almost always the best course for extending the quality of your life.
Try a search on this board for ‘surgery’, or something similiar and you’ll find a good bit of information. The other UK members have the best knowledge of what is available to you on your home turf.
Best of luck.
-PeterFigen,
In the US, I believe the UK, and perhaps other countries there are sometimes surgical options depending on the tumor, the stage of the tumor, how long it’s been growning, and it’s location. Each patient is different.
There are also patients who have had success shrinking tumors and prolonging life with Chemo. It is true that a cure is rare for this cancer and the sooner the disease is diagnosed the better the chances for help from either surgery or chemo.
There are many difficult issues to consider. Your mothers age and health, the progression of her disease, location of the tumor, and resources. If it’s possible to consider a second opinion in another country I’d encourage you to try.Our thoughts and best wishes to your Mom and your family,
Peter
