teresa
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Hya Sandy
My tears still flow, especially when I read something like this.
Those three months will live with you for ever, and you will go over
and over this time again and again. You are right we aren’t alone but feel so very lonely most of the time.
Rant away. You have come to the right place. I know no other like this.
I feel it is a very sacred and special place that we share as our stories unfold, for we do understand how it is and how it often suddenly races to a climax. I am thinking of you and send my love Alans mom teresa XXXXXXXXDear Ted and Patty It is so kind of you to come on here so very soon and let all of us share your good news. I am thinking of you both during this crisis.
love and light Alans momDear Jules
my tears are shed yet again. This awful cholangio carcinoma. It is relentless and never appears to stop, no matter what.
No words or deeds will make a difference at this stage.
We are all here for you at any time. Rant away.
This is a very special place and we were all rooting for your dad.
All our prayers will be for you and the family and our love too.
xxxxxxxx Alans momDear Barbie2 I am so sorry about your brother. I hav’nt lost a brother. I lost my son Alan and he was only ill for 8 weeks. However, I do see the effect this has had on his 2 brothers. They are both coping with this in very different ways.
As kate has said we all send our love and we are here for you at any time.
love and light teresa XXXXHya all
I believe all that is written in these posts helps every single one of us in some way. Often we do not believe this at the time, but later with thought it registers at some level and helps us to know that others understand how we are feeling. This is a very special and sacred place to be, even though we did not wish to belong here in the first instance. I am so grateful to be able to come here and be in contact with people who understand my pain.
Like you patricia, I am in my second year and I have realised that whilst dealing with the things that had to be done it used some of the time. Even grief councelling for quite some time. However, things are seeping through and others including my two other boys who are married, try to guide me in my journey. I know they mean well, but my heart will take a long time to heal. If ever.
To be alone in the middle of the night at home with your boy as he passes away and travels another journey (alans words) still renders me helpless. Like you I don’t know what to do without my boy, he helped me with many things as we had so much in common.
We are not alone here I know you all understand. love and light alan’s mom teresaHya Ted, Patty and everyone I am so sorry to hear about Patty. I have been following your brave stance on CC. I do hope that there will be an improvement and some movement in the flow. I hope all goes well. love and light alans mom
Hya Betty I think the poem is exactly how I am feeling. I can print it of and give it to others when I get too upset to exlain how I am feeling.
My faith has been shaken so much.
please do keep writing these pieces as they are so terribly important for all of us here.
love and light teresaHya Belena,
I understand about your broken heart, whilst there is also so much to do at this time.
I hope you find peace someday knowing your husband fought a brave and courageous fight to the end. may he continue to rest in the arms of jesus
love and light teresaHya Jeff and Babe I bet you look really cool. I am glad you are taking that break, if anyone deserves it, it certainly is both of you. I read your inspiring mails and know you are doing the very best you are able to do for your family.
My faith has been so difficult for me, but I admire your attitude and courage all of this time.
Be still, take time, enjoy and rest for both all my love and light teresaHya all I too am here crying with grief and rage as I have read and also now reading your story. I feel so much of your pain and loss.
How do these things happen so quickly, with all of our worldly knowledge.
Your experience of cc is so much like ours but we were given no hope from the first day of pain that Alan had. Misdiagnosis by our own doctor, sent home from a dyspepsia clinic just 48 hours before I took him myself as an emergency to the hospital etc. etc.
I feel now that having listened to Alan one thing he said was, when I am gone tell everyone you meet my story and to do something different at least once a year if not every day. I am happy and rich beyond belief. (meaning his friends and family)
I hope you hold on and keep safe your precious memories, these will sustain you during this terrible time and for ever and ever love and light alans momHya Jeff I really hope you are feeling slightly better by now.
As Jpyce has commented we are all rooting for you.
I often talk to others about you and what a marvellous tonic you are to all of us on this site. Not only are you this, but a fountain of information. good luck to you and yours love and light alans momHya Bobs wife I feel so much of the pain you are feeling.
As Betty and others have said the journey over the next months will be so very hard. I too disliked it when others either said take one day at a time or even of late it is time to move forward.
You will only be able to do these things when you are ready. It is lonely and painful
but of late I am trying to convince myself we were lucky that it was so quick that Alan and we did not suffer too long. I hope you are able to visit your precious memories every day and these will be of such great joy and comfort to you at this awful time.
take care of you and yours we are all thinking of you love and light teresa xxxxxxxHya theonlyChris I am Alan’s mom teresa,.We too relied on the NHS. whereabouts are you in England. Please e. mail. me. We are in birmingham and yes they do treat you as if it is not your business, BUT IT IS. They do fob you of, however I now feel that it is because they do not actually have any answers to give. I also feel that whilst time is slipping by they are still trying to decide what to do. Have you tried speaking to the Prof. Lodge team in leeds. I am sorry I cannot answer any of your questions, but I am sure others on here will do so. love and light teresa xxxx
Hya jeff I am sorry to hear you are feeling awkward and hesitant. This does not sound like you.
I cannot give any info on what you are up against at the moment, as I have said before we did not get to any stages such as this.
I thought I would write that I am sure whatever you decide to do it will be the best descision for you. keeping you in my thoughts love and light teresa xxxxHya Andrea your memories of your mom will last for ever and ever.
She sounds like she was a fantastic wife and mom.
I am sure everyone on here sends their love and deepest sympathy.
I also hope and pray that you will continue to come on here and get support as some of us continue to do so in these terrible times. love to you all alan’s mom xxxxxx
