ziggydog
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Melanie – I am so sorry for your loss. My husband passed away 3 weeks ago and I have found this site to be both helpful and a great comfort. My thoughts are with you and your children. Life has become one day at a time for me and I have found that to be the best way to exist. My e-mail is ziggydog@midmaine.com should you ever want to contact me. Advise that was given to me – easier said than done – is “take care of yourself so you can take care of your daughter”
SarahThanks for posting that – it brightened my day. Those who loved us are still looking out for us.
SarahMelanie – My husband was on Oxycontin and Oxycodone and that seemed to help with the pain. Also seeing the doctor sooner, as others mentioned, is a good idea. I know I worried with each new symptom. Good luck and my thoughts are with you
Sarah
Beth – I have been thinking of you a lot lately. My husband died on Feb 15th. Like you I am trying to find my way. I am so thankful for my daughter Hannah for at times she is what keeps me going.
Sarah
Thank you all for your words of support. I have a question – when does the reality of it kick in – I have definately cried and been sad but I also have been able to function and do practical things. Is this shock?
SarahI read your post with sadness as I too just lost my husband and best friend. He fought this disease for 7 months. I have an 11 y.o. daughter Hannah. We have held onto each these past 2 days. It still seems unreal to me. My thoughts are with you.
SarahHi – My husband was diagnosed in July and began retaining fluid sometime in Sept/Oct. He has been drained 5 times – each time they took out no less than 11 liters. Today he had a permanent catheter put in so he can drain himself at home. He fills up at about the rate of 1.5 liters a day. I don’t have an answer in terms of why this happens but something to have the doctors check is if the cancer is in the fluid. Two weeks ago we found out thru an MRI that cancer cells are in the fluid. Good luck and congrats. on your marriage. – Sarah
Hi Julie – I am a new member also and feel very confused myself. Use this site to help you understand things. I have found great support here already. My husband is 48 and was diagnosed in August. The questions that the moderators and other members ask has helped me focus each day. My thoughts are with you – ziggydog
Hi – my husband is losing weight – last week he lost 6 lbs.,(since this began in July he has lost about 60lbs) his pain comes and goes but he is constantly tired. He sleeps or rests most of the time – this is not due to depression either – he went through a couple days last week of total “in the dumps and not caring” but we have talked a lot about it. His spirits have been better lately but his body is exhausted. I think our onc is not overly knowledgeable about cc – just my opinion. He is willing to work with us but he doesn’t seem to have any fresh ideas.
Hello – we saw my husband’s doctor last Friday – he basically said “hospice care” however I mentioned trying another chemo F5 which is what we are currently doing. The doctor’s reasoning for having little hope is due to my husband’s tumor marker # and his liver function. His tumor marker # keeps rising and his billirubin # is rising. I don’t know what to think – any advice???
Hi – thanks for all the words and support. My husband’s fatigue was indeed the first sign that something was wrong back in March/April. Even since my last post only two days ago he is starting to feel almost constant pain – he cannot get comfortable. He started taking pain meds for the first time since this all started. I’m trying to educate myself but still feel there is so much I don’t know such as what is a stent? We were told that there is no evidence of cancer in the bile duct just in the liver which has made us wonder about a transplant. I have been in contact with New York Presbyterian Weill Cornell Center. Is anyone familiar with them. We’ve decided to pursue the transplant option with or without our doctors support. We meet with him tomorrow – I’m curious as to what his plan is. My husband is currently on Gemzar. Another question – is high calcium common in cc. My husband has had high calcium throughout this ordeal and the doctor has indicated that it is part of cc. Any thoughts. Thanks again for all of your comments –
Hi – I am in Maine and we had a second opinion from Dana Farber. My husband was on Gemzar and Cisplatin but made the choice to stop the Cisplatin. The doctors (both here and at Dana Farber) said chemo was the only way to go because they disease is “very extensive” in the liver therefore surgery is not an option. For his bloating it has been suggested that he gets “tapped” but that will offer only temporary relief. The toughest part at this moment is his INCREDIBLE fatigue. He cannot seem to stay awake for very long and I don’t know if this is the treatment or the disease. Is this common?
