LEARN HOW TO IGNITE YOUR COMMUNITY
To help raise critical funds
The Cholangiocarcinoma Foundation is grateful for the time, talent, and efforts shared by community members across the globe to organize Community Fundraising events supporting CCF’s research and patient service programs. Hundreds of patients, caregivers, and their friends and family devote their resources and time to bring awareness to their communities through unique fundraising events.
COMMUNITY FUNDRAISERS’ SUCCESS
Social Media Fundraisers
$161,742
Raised During 2023
3,359
Donations
589
Individual Fundraisers
$1,265,955
Total Raised from Facebook
Community Fundraising Events
$530,000
Raised During 2023
21
States held fundraising events
30+
Fundraising events (plus additional online fundraisers)Most fundraising events in CCF history!
LET’S GET STARTED
Community fundraising events raise funds required to provide outreach and advocacy efforts and fund research essential to achieving the Cholangiocarcinoma Foundation’s (CCF) mission of finding a cure and improving the quality of life for all cholangiocarcinoma patients.
Whether this is your first event or if you are an old pro, CCF’s Development Team is here to assist you as you plan and execute your event. Please fill out the Fundraiser Request questionnaire below, and our Community Fundraising Manager will be in touch with resources to help plan a successful event. Please see our fundraising FAQs if you have any additional questions.
Fundraising FAQs
Upon CCF staff’s approval of your fundraising event, you may use the CCF logo and taglines. Community Fundraisers are expected to follow logo usage guidelines established in the CCF Style Guide. When using CCF’s name and logo, please make sure it is clear that CCF is the beneficiary and not the event host (you may do so by including the word “benefiting” above the logo).
Depending upon staff availability, someone from CCF may be able to attend your event. We are also always happy to provide you with resources to ensure that the CCF brand is visible at your event. Contact us for more details.
CCF cannot solicit sponsors for your event. However, we will provide approved events with a list of possible sponsors and templates for solicitation letters. Our Community Fundraising & Events Manager is happy to help create the materials you need to solicit sponsors for your event.
Yes, you may direct the funds you raise to a specific area within CCF during the registration process. If you choose not to select a particular designation, the funds you donate will support the area of greatest need. CCF suggests designating all donations as general/ “where most needed” as this allows for the most flexibility in achieving CCF’s research and advocacy goals.
We recommend that you form a committee of friends, family, and others passionate about finding a cure for CCA. Additionally, CCF’s Community Fundraising & Events Manager is available to troubleshoot any problems and provide resources and support.
You are responsible for covering all expenses for your event. CCF does not reimburse fundraising expenses. You may deduct your event costs from the funds raised before you send your funds to CCF, but these costs cannot exceed 20% of the total amount raised. Many fundraisers try to obtain corporate or individual sponsorships/underwriters to absorb some or all of the event expenses. The fundraising team is happy to provide a list of tips and suggestions for securing sponsorships.
Sponsors make monetary donations directly to CCF. These donations are counted toward the event revenue and cannot be used by the event organizer to cover expenses. Sponsors receive a 100% tax deduction if they do not receive any substantial return benefits other than an acknowledgment of the name or logo at the event. Please refer to https://www.irs.gov/taxtopics/tc506 for additional information.
Most gifts should be made through your online personal fundraising page (more information below). These gifts can be made securely using a credit or debit card, and you can watch your fundraising progress unfold in real time. Whenever possible, encourage your attendees, sponsors, and other donors to use the online platform to make their contributions.
If paying by check, checks should be made payable to “Cholangiocarcinoma Foundation” and include your event name in the memo line. We suggest sending checks by “Certified Mail” so you can track the check in the mail. Checks can be mailed to Laurie Kikel at CCF at the following address:
CCF – Your Event Name
5526 West 13400 South, #510
Herriman, Utah 84096, USA
Yes, please register your event and indicate that you are a returning event.
CCF’s tax ID number (TIN) is 20-5776861. Please be aware that due to legal guidelines, you are not permitted to use the tax-exempt number to make purchases related to your event. However, you may provide the number to businesses that make donations to your event and require the number to verify the 501c3 status of CCF.
Yes! Once your fundraiser is approved, we will collect information to create your personalized fundraising page (photos, a short bio, event details, and a fundraising goal.) We will then share the link with you that can be shared with your network and on your social media pages. This page will allow donors to contribute directly to CCF in honor of your event. You can also encourage your network to create personal fundraising pages from your primary “Team” fundraising” page.
It’s time to share! CCF encourages fundraisers to share the Fundraiser page and event details with family, friends, and coworkers via email and social media. CCF has provided sample emails and social media posts in the CCF Community Fundraising Guide. This guide also included tips for encouraging engagement and suggestions for posting frequency. After completing the registration form, the Community Fundraising Guide will be shared with all Community Fundraisers.
We encourage your donors to contribute via your online fundraising page, but if you receive checks, please mail them directly to CCF (5526 West 13400 South, #510, Herriman, Utah 84096) via “Certified Mail” with the event name in the memo line of all checks. Please convert any cash donations to a money order before mailing them to CCF. CCF staff will manually add all offline donations to your fundraising page if your fundraiser is indicated on the donation.
Yes! All donors who donate online via your personalized fundraising page will receive an email thank you letter that serves as a tax acknowledgment. Donors who make gifts by check or money order directly to CCF will receive a physical thank you letter by mail at the address they provide. As a best practice for volunteer fundraisers, we encourage our event coordinators to send personalized thank you’s to their donors as well. CCF has provided an example thank you letter in the examples section of the Community Fundraising Guide.
Donors who make gifts directly to CCF (online or by check/money order) are eligible to receive communication regarding CCF research advancements, advocacy efforts, and special events.
Yes! All donors who donate using your personalized fundraising web page will be tracked on the page, and offline donations that come in via mail will be tracked and added. If you opt not to have a personalized fundraising page, contact us to receive a list of all donors who contributed to your event.
Yes! Download our “Social Media Fundraiser Toolkit“
Thanks for your interest in fundraising on behalf of CCF. Together, we can make a difference!
For more information or assistance, contact our Community Fundraising & Events Manager Candace Tise, at candace.tise@cholangiocarcinoma.org or call (801) 597-3706.
Please note our Tax ID may only be used when someone makes a direct monetary donation to our organization. CCF cannot provide our Tax ID to assist in securing in-kind donations, or raffle or auction prizes for your event.