International Cholangiocarcinoma Research Network (ICRN)

CHOLANGIOCARCINOMA FOUNDATION

The ICRN is a global collaboration of research groups from renowned institutions who are working in concert to improve knowledge about cholangiocarcinoma etiology, prevention, early detection, treatment, and prognosis. The network is comprised of highly talented individuals from a spectrum of disciplines, perspectives, and research methods who share a passion to make significant scientific advances to improve outcomes for patients with cholangiocarcinoma.

Data Committee: This group oversees the use of data by researchers in the Cholangiocarcinoma Foundation Patient Registry (powered by Citizen Health), Komodo Health (a healthcare data analytics company), the Genome-Wide Association Study, and data available in cBioPortal. The group is also tasked with harmonizing the CCF Patient Registry national/international datasets to develop greater strength in numbers.  

Research Committee: The Cholangiocarcinoma Foundation has an expanding grant-awarding program. This group oversees the annual Fellowship Grants, the expansion of the Innovation Grants, and the Career Development Awards. Members from this committee can also be selected to serve on the grants reviewer panel. They also monitor previously awarded grants, e.g., C2T2 (Cure Cholangiocarcinoma Think Tank), and any research collaborations with industry. A subgroup is tasked with delivering the Master Protocol in BTC.  

Next-Generation Committee: The next generation of clinicians, scientists, and investigators is key to the future success of improved outcomes for patients with cholangiocarcinoma. This group provides mentorship to early-career members through webinars, young investigator meetings, and international initiatives. 

Program Organizing Committee: The Foundation has an established Annual Conference. This group will provide guidance for the Conference (theme-setting, review of abstracts and posters, publication of meeting proceedings, CME accreditation, etc.). In addition, the group oversees the Asia-Pacific Cholangiocarcinoma Conference in collaboration with the meeting host and any new Conferences that may emerge internationally (e.g., Africa).