Survey Opportunity – Patient experiences of living with CCA

Researchers at Emory University are studying quality of life among patients with cholangiocarcinoma (CCA). Please consider taking this brief survey to help them better understand patient experiences for those living with CCA. Cholangiocarcinoma Foundation (CCF) is supporting this survey knowing that the results will allow researchers and physicians to identify areas for improvement in patient care as it relates to physical, emotional, and psychological well-being. Thus, it is extremely important that we hear from you to improve the care of cholangiocarcinoma patients!

If you complete the survey and consent to sharing your anonymized summary health data through our trusted partner, Ciitizen, you will receive a $25 gift card from the research team as a thank you. If you have not signed up with Ciitizen yet, you can still participate. You will receive the gift card if you sign up with Ciitizen and agree to share your health data with the research team. CCF encourages all CCA patients to take control of their health data by signing up at Ciitizen.

Please read the enclosed information document carefully. If you are interested in taking part in the study, please click the link at the end of the document to complete the first questionnaire. The information you provide is confidential and will be stored on a password-secured server.