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Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

Giving Thanks by Giving Back

By Rick Pollock | November 27, 2019

During this time of year when we are counting our blessings and giving thanks, please consider joining the CCF Patient Registry and sharing your health history to…

ThanksGiving, ThanksLiving

By Susan Braden | November 27, 2019

Now it begins. Thanksgiving. Giving Thanks. Food, Family, Friends, Fun. Turkey, Traditions, Touchdowns, Travel. Tension?! I remember a little of what I think I learned…

#GivingTuesday 2019

By Rick Pollock | November 19, 2019

“Giving is not just about making a donation. It is about making a difference.” Last year on Giving Tuesday, people came together on Facebook to…

Everything Happens for a Reason

By Allison Thomas | November 15, 2019

About a month ago my dad got a Facebook message from Carlos, a good friend living in Guatemala. He mentioned that he was coming to…

Mike Shane Memorial Fund

By Rick Pollock | November 11, 2019

The Mike Shane Memorial Fund helps reduce financial barriers for patients who need a second opinion on their initial diagnosis of cholangiocarcinoma*. Purview, a global…

Oktoberfest 2019

By Cindy Thomas | October 29, 2019

On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came…

Notes from Chicago

By George Riddle | October 24, 2019

CCF sponsored a half-day symposium at the University of Chicago last week.  Here are some notes and impressions.  It’s not complete, and perhaps I got…

TeamCCF at the Chicago Marathon

By Meredith McGuffage | October 21, 2019

TeamCCF had 18 runners participate in the 2019 Bank of America Chicago Marathon, Sunday, October 13th.  This year’s team was the largest to date with…

No One Fights Alone

By Rick Pollock | October 17, 2019

Written by Stephanie Zinis In May of 2018 our families’ lives were forever changed. A routine doctor visit led to an accidental discovery that my…

Breast cancer survivor speaks out about being your own advocate

By Rick Pollock | October 9, 2019

In a segment from this NBC’s Today Show, Karen Peterson discusses her experience with breast cancer. She has been an advocate for herself and others…

Rare Cancer Day

By Lisa Layton | October 1, 2019

October 1 is Rare Cancer Day as proclaimed by the National Organization for Rare Disorders (NORD). The NORD website ​shares the goal is “To shine…

Minneapolis Meetup

By Marcia Van Gorden | September 26, 2019

As the “instigator” who 11 years ago blissfully started getting mothers of active-duty Marines and eventually Marine vets to meet together to share experiences, information,…

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