The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation. Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!
We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.
New cancer program launched by Cholangiocarcinoma Foundation to connect patients, caregivers with essential resources
The Cholangiocarcinoma Foundation (CCF) is proud to announce the launch of its Newly Diagnosed/New to CCF program to support patients and caregivers following a cholangiocarcinoma (bile duct cancer) diagnosis.
Rare cancer diagnosis for WTC responders, survivors 20 years later
The terrorist attacks on Sept. 11, 2001, that led to the destruction of the World Trade Center and the loss of thousands of lives was…
Five for Friday – 5 Videos from CCF Research Advocates
These volunteers spend countless hours reviewing patient materials, giving feedback on clinical trial design, and sharing their knowledge to help advance the science and better the lives of cholangiocarcinoma patients.
3rd Annual A Hike for Jill. A Hike for a Cure
In memory of his wife, Jill, Kevin Coyle hosted the 3rd annual “A Hike for Jill. A Hike for a Cure.”
Five for Friday – 5 CCF Collaborations with Industry
Partnership and collaboration are vital to our mission to find a cure and improve the quality of life for those affected by cholangiocarcinoma.
Cholangiocarcinoma Foundation CEO named as a finalist in Cancer Community (C2) Awards
Cholangiocarcinoma Foundation CEO and Founder Stacie C. Lindsey has been named a finalist of the Cancer Community (C2) Awards in the category of C2 Catalyst Change.
Five for Friday – 5 CholangioConnect Updates
The Foundation recently celebrated its 500th mentor/mentee relationship with the CholangioConnect program. This week we are sharing a more in-depth look into the CholangioConnect Program.
CholangioConnect Update – Patty Maxin
Just shy of the fourth anniversary of CholangioConnect, there was a celebratory enthusiasm as the administrative entry registered its 500th connection through the Foundation’s mentoring platform.
Cholangiocarcinoma Foundation commends FDA approval of new therapy for cholangiocarcinoma patients
CCF provided patient insights into Servier’s development of TIBSOVO® as a treatment for individuals with IDH1-mutated cholangiocarcinoma.
CholangioConnect Mentee Testimonials – Jessica Thomas
CholangioConnect was my mooring in a hurricane. Life seemed impossibly full of information and emotions, and I was so grateful for my mentor.
Shaun Hope: ‘It Could Be Worse’
Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun…
CholangioConnect Mentee Testimonials – Rob Howard
Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.
