The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation. Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!
Giving Thanks by Giving Back
During this time of year when we are counting our blessings and giving thanks, please consider joining the CCF Patient Registry and sharing your health history to…
ThanksGiving, ThanksLiving
Now it begins. Thanksgiving. Giving Thanks. Food, Family, Friends, Fun. Turkey, Traditions, Touchdowns, Travel. Tension?! I remember a little of what I think I learned…
#GivingTuesday 2019
“Giving is not just about making a donation. It is about making a difference.” Last year on Giving Tuesday, people came together on Facebook to…
Everything Happens for a Reason
About a month ago my dad got a Facebook message from Carlos, a good friend living in Guatemala. He mentioned that he was coming to…
Mike Shane Memorial Fund
The Mike Shane Memorial Fund helps reduce financial barriers for patients who need a second opinion on their initial diagnosis of cholangiocarcinoma*. Purview, a global…
Oktoberfest 2019
On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came…
Notes from Chicago
CCF sponsored a half-day symposium at the University of Chicago last week. Here are some notes and impressions. It’s not complete, and perhaps I got…
TeamCCF at the Chicago Marathon
TeamCCF had 18 runners participate in the 2019 Bank of America Chicago Marathon, Sunday, October 13th. This year’s team was the largest to date with…
No One Fights Alone
Written by Stephanie Zinis In May of 2018 our families’ lives were forever changed. A routine doctor visit led to an accidental discovery that my…
Breast cancer survivor speaks out about being your own advocate
In a segment from this NBC’s Today Show, Karen Peterson discusses her experience with breast cancer. She has been an advocate for herself and others…
Rare Cancer Day
October 1 is Rare Cancer Day as proclaimed by the National Organization for Rare Disorders (NORD). The NORD website shares the goal is “To shine…
Minneapolis Meetup
As the “instigator” who 11 years ago blissfully started getting mothers of active-duty Marines and eventually Marine vets to meet together to share experiences, information,…
