The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation. Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!
Bachini-Keifer Fund
An unspeakable loss has affected the cholangiocarcinoma world on Friday, January 10, 2020. Melinda Bachini, our beloved patient advocate, tragically lost her son, Skylar Evan…
2020 Annual Conference T-shirt Contest
CCF is excited to announce our 2020 Annual Conference t-shirt logo contest. The logo will be printed on a white short-sleeved t-shirt. Contest Rules Submit…
Can a “Silent Killer” be Beaten by Better Data?
Is the secret to combating a “silent killer” hiding in our health data? That’s what we have been teaming with Komodo Health to find out.…
2020 Pacific Northwest Cholangiocarcinoma Regional Symposium
Join us for an afternoon dedicated to the science of cholangiocarcinoma. The symposium will include presentations from highlighting cholangiocarcinoma. You will also hear the patient…
Giving Thanks by Giving Back
During this time of year when we are counting our blessings and giving thanks, please consider joining the CCF Patient Registry and sharing your health history to…
ThanksGiving, ThanksLiving
Now it begins. Thanksgiving. Giving Thanks. Food, Family, Friends, Fun. Turkey, Traditions, Touchdowns, Travel. Tension?! I remember a little of what I think I learned…
#GivingTuesday 2019
“Giving is not just about making a donation. It is about making a difference.” Last year on Giving Tuesday, people came together on Facebook to…
Everything Happens for a Reason
About a month ago my dad got a Facebook message from Carlos, a good friend living in Guatemala. He mentioned that he was coming to…
Mike Shane Memorial Fund
The Mike Shane Memorial Fund helps reduce financial barriers for patients who need a second opinion on their initial diagnosis of cholangiocarcinoma*. Purview, a global…
Oktoberfest 2019
On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came…
Notes from Chicago
CCF sponsored a half-day symposium at the University of Chicago last week. Here are some notes and impressions. It’s not complete, and perhaps I got…
TeamCCF at the Chicago Marathon
TeamCCF had 18 runners participate in the 2019 Bank of America Chicago Marathon, Sunday, October 13th. This year’s team was the largest to date with…
