Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

New cancer program launched by Cholangiocarcinoma Foundation to connect patients, caregivers with essential resources

By Allison Deragon | September 13, 2021

The Cholangiocarcinoma Foundation (CCF) is proud to announce the launch of its Newly Diagnosed/New to CCF program to support patients and caregivers following a cholangiocarcinoma (bile duct cancer) diagnosis.

Rare cancer diagnosis for WTC responders, survivors 20 years later

By Teresa Delcorso-Ellman | September 10, 2021

The terrorist attacks on Sept. 11, 2001, that led to the destruction of the World Trade Center and the loss of thousands of lives was…

Five for Friday – 5 Videos from CCF Research Advocates

By Allison Deragon | September 10, 2021

These volunteers spend countless hours reviewing patient materials, giving feedback on clinical trial design, and sharing their knowledge to help advance the science and better the lives of cholangiocarcinoma patients.

3rd Annual A Hike for Jill. A Hike for a Cure

By Meredith McGuffage | September 7, 2021

In memory of his wife, Jill, Kevin Coyle hosted the 3rd annual “A Hike for Jill. A Hike for a Cure.”

Five for Friday – 5 CCF Collaborations with Industry

By Allison Deragon | September 3, 2021

Partnership and collaboration are vital to our mission to find a cure and improve the quality of life for those affected by cholangiocarcinoma.

Cholangiocarcinoma Foundation CEO named as a finalist in Cancer Community (C2) Awards

By Allison Deragon | August 31, 2021

Cholangiocarcinoma Foundation CEO and Founder Stacie C. Lindsey has been named a finalist of the Cancer Community (C2) Awards in the category of C2 Catalyst Change.

Five for Friday – 5 CholangioConnect Updates

By Allison Deragon | August 27, 2021

The Foundation recently celebrated its 500th mentor/mentee relationship with the CholangioConnect program. This week we are sharing a more in-depth look into the CholangioConnect Program.

CholangioConnect Update – Patty Maxin

By Cholangiocarcinoma Foundation | August 26, 2021

Just shy of the fourth anniversary of CholangioConnect, there was a celebratory enthusiasm as the administrative entry registered its 500th connection through the Foundation’s mentoring platform.

Cholangiocarcinoma Foundation commends FDA approval of new therapy for cholangiocarcinoma patients

By Allison Deragon | August 25, 2021

CCF provided patient insights into Servier’s development of TIBSOVO® as a treatment for individuals with IDH1-mutated cholangiocarcinoma.

CholangioConnect Mentee Testimonials – Jessica Thomas

By Cholangiocarcinoma Foundation | August 25, 2021

CholangioConnect was my mooring in a hurricane. Life seemed impossibly full of information and emotions, and I was so grateful for my mentor.

Shaun Hope: ‘It Could Be Worse’

By Allison Deragon | August 23, 2021

Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun…

CholangioConnect Mentee Testimonials – Rob Howard

By Cholangiocarcinoma Foundation | August 23, 2021

Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.