Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Five for Friday – 5 ways you can get involved with CCF

By Allison Deragon | October 23, 2020

The Holiday Season is approaching us and will be here before we know it. This week we’d like to share 5 ways you can get involved with the CCF community and help make a difference.

Webinar: The RELEASE trial and the technology behind

By Rick Pollock | October 22, 2020

This webinar is intended for patients with inoperable extrahepatic cholangiocarcinoma (CCA) who consider enrolment into a clinical trial.

Roz Kuvakos, A Life Rooted in Aloha

By Cheryl Birmingham | October 16, 2020

Roz has always been very healthy and active, especially among us sibs, and the news of her having cholangio took us by storm. Being the first born, her “to do” list began to grow: schedule doctor appointments, research on how to fight this unknown disease…

Five for Friday – 5 of our latest blog posts

By Allison Deragon | October 16, 2020

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Patients share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.

2021 Cholangiocarcinoma Foundation’s Annual Conference

By Allison Deragon | October 9, 2020

We are pleased to announce that the 8th Annual Cholangiocarcinoma Foundation Conference will be held virtually March 31st- April 2nd, 2021. John Bridgewater, MD, PhD of the UCL Cancer Institute, London and Funda Meric-Bernstram, MD of MD Anderson Cancer Center will Co-Chair the event.

Five for Friday – 5 exciting events that are happening soon

By Allison Deragon | October 9, 2020

We want to make sure you’re in the know. This week we’d like to share 5 exciting events that are happening soon. Be sure to add these events to your calendar and share them with your friends and family.

FB Live: Living with Cholangiocarcinoma – Journey to Diagnosis & Beyond

By Rick Pollock | October 8, 2020

Facebook Live event, “Living with Cholangiocarcinoma – Journey to Diagnosis & Beyond.” We hope you tune in to hear from those in the #cholangiocarcinoma community!

Should I get a Second Opinion?

By Allison Deragon | October 6, 2020

Mike Shane Memorial Fund (MSMF) just recently turned one! In the past year MSMF has helped 7 cholangiocarcinoma patients get a second opinion. All donations they receive go to second opinions.

Biomarker reveals how aggressive biliary tract cancer is in patients

By Rick Pollock | October 5, 2020

As biliary tract cancer (BTC) patients typically survive less than one year on standard-of-care chemotherapy, adapting prognostic biomarkers to guide their management remains challenging.

Five for Friday – a few ways you can easily give back to the Cholangiocarcinoma Foundation

By Allison Deragon | October 2, 2020

Every contribution, regardless of size, makes a difference and is an investment in education, research, and advocacy to find a cure for cholangiocarcinoma.

Five for Friday – 5 resources that will help find the right clinical trial for you

By Allison Deragon | September 25, 2020

Finding a cure is at the heart of all we do for our patients and clinical trials are essential to our mission. This week we’d like to share 5 resources that will help find the right clinical trial for you!

Webinar: Clinical Trial Finder

By Rick Pollock | September 24, 2020

CCF and Ciitizen launch first of it’s kind Clinical Trial matching powered by a patient’s complete medical history, automatically.