Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

Bachini-Keifer Fund

By Rick Pollock | January 11, 2020

An unspeakable loss has affected the cholangiocarcinoma world on Friday, January 10, 2020. Melinda Bachini, our beloved patient advocate, tragically lost her son, Skylar Evan…

2020 Annual Conference T-shirt Contest

By Rick Pollock | January 9, 2020

CCF is excited to announce our 2020 Annual Conference t-shirt logo contest. The logo will be printed on a white short-sleeved t-shirt. Contest Rules Submit…

Can a “Silent Killer” be Beaten by Better Data?

By Stacie Lindsey | January 8, 2020

Is the secret to combating a “silent killer” hiding in our health data? That’s what we have been teaming with Komodo Health to find out.…

2020 Pacific Northwest Cholangiocarcinoma Regional Symposium

By Rick Pollock | January 3, 2020

Join us for an afternoon dedicated to the science of cholangiocarcinoma. The symposium will include presentations from highlighting cholangiocarcinoma. You will also hear the patient…

Giving Thanks by Giving Back

By Rick Pollock | November 27, 2019

During this time of year when we are counting our blessings and giving thanks, please consider joining the CCF Patient Registry and sharing your health history to…

ThanksGiving, ThanksLiving

By Susan Braden | November 27, 2019

Now it begins. Thanksgiving. Giving Thanks. Food, Family, Friends, Fun. Turkey, Traditions, Touchdowns, Travel. Tension?! I remember a little of what I think I learned…

#GivingTuesday 2019

By Rick Pollock | November 19, 2019

“Giving is not just about making a donation. It is about making a difference.” Last year on Giving Tuesday, people came together on Facebook to…

Everything Happens for a Reason

By Allison Thomas | November 15, 2019

About a month ago my dad got a Facebook message from Carlos, a good friend living in Guatemala. He mentioned that he was coming to…

Mike Shane Memorial Fund

By Rick Pollock | November 11, 2019

The Mike Shane Memorial Fund helps reduce financial barriers for patients who need a second opinion on their initial diagnosis of cholangiocarcinoma*. Purview, a global…

Oktoberfest 2019

By Cindy Thomas | October 29, 2019

On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came…

Notes from Chicago

By George Riddle | October 24, 2019

CCF sponsored a half-day symposium at the University of Chicago last week.  Here are some notes and impressions.  It’s not complete, and perhaps I got…

TeamCCF at the Chicago Marathon

By Meredith McGuffage | October 21, 2019

TeamCCF had 18 runners participate in the 2019 Bank of America Chicago Marathon, Sunday, October 13th.  This year’s team was the largest to date with…