Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Learning to say goodbye

By Bill DeMarco | November 22, 2022

For me, the most challenging part of cholangiocarcinoma was not all the chemo and disruption but dealing with my mortality. When I was diagnosed in…

🤚🏻 Five for Friday – National Children’s Grief Awareness Day

By Allison Deragon | November 18, 2022

Home / Blog / Yesterday, November 17, was National Children’s Grief Awareness Day. The Cholangiocarcinoma Foundation recognizes the children of many of our patients who…

Giving Tuesday 2022

By Cholangiocarcinoma Foundation | November 11, 2022

This year, our goal is to raise $118,000 for Giving Tuesday! Donations Last year on Giving Tuesday, people came together to raise more than $2.7…

🤚🏻 Five for Friday – Vietnam Veterans and Cholangiocarcinoma

By Lourdes Rocha-Nussbaum | November 11, 2022

Home / Blog / Did you know Sheila Harrison was the first widow to have the Department of Veteran Affairs rule that her husband, Edward…

🤚🏻 Five for Friday – Five Caregiver Perspectives

By Allison Deragon | November 4, 2022

Home / Blog / November is National Family Caregiver Month (NFCM)! The Cholangiocarcinoma Foundation recognizes NFCM as a time to celebrate the contributions of caregivers.…

CCF’s Discussion Board

By Stacie Lindsey | November 2, 2022

Dear Friends, On October 12, 2005, my brother was diagnosed with cholangiocarcinoma. Thus began a journey I could not have foreseen. I was a stay-at-home…

Monthly Scientific Update – November 2022 (A recent study investigated the effects of PD-L1 expression on cancer cells and tumor-infiltrating immune cells in intrahepatic cholangiocarcinoma (CCA))

By Reham Abdel-Wahab | November 2, 2022

PD-L1 on Tumor-Infiltrating Immune Cells: A Potential Prognostic Biomarker for Cholangiocarcinoma Kelly Butler, Dr. Reham Abdel-Wahab Patients may develop cancer when some organ cells acquire…

Patient Engagement and Cancer Genome Sequencing (PE-CGS) “Cancer Moonshot” Program

By Allison Deragon | October 31, 2022

The research team at Washington University School of Medicine and the Alvin J. Siteman Cancer Center is partnering with the Cholangiocarcinoma Foundation to launch the…

🤚🏻 Five for Friday – Meet Five CCA Physicians

By Allison Deragon | October 28, 2022

Home / Blog / The Cholangiocarcinoma Foundation realizes that the fastest way to advance research is by working together. As the leading advocate for patients,…

🤚🏻 Five for Friday – Meet 5 CCA Scientists

By Allison Deragon | October 21, 2022

Home / Blog / Finding a cure for a disease as rare and complex as cholangiocarcinoma demands creative solutions. When clinicians, scientists, and researchers collaborate,…

Cure Cholangiocarcinoma Think Tank (C2T2)

By Cholangiocarcinoma Foundation | October 17, 2022

The Cholangiocarcinoma Foundation has published a white paper from the first Cure Cholangiocarcinoma Think Tank (C2T2 ) meeting, which gathered 29 expert scientists and clinicians…

🤚🏻 Five for Friday – Meet Some of CCF’s Valued Experts

By Jennifer Weaver | October 14, 2022

Home / Blog / Collaboration is essential for cholangiocarcinoma research. This month, join us in appreciating our medical professionals. We are recognizing them each week…