Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Why 21 Miles of Hope?

By Jonathan Whiting | October 15, 2021

How I met Lori and Life up to Diagnosis I was playing music in a club at a happening nightspot, when one of my very…

Five for Friday – 5 items you can purchase to help support CCF’s anniversary

By Allison Deragon | October 15, 2021

Home / Blog / On Jan. 21, 2021, CCF introduced a year-long celebration of its 15th Anniversary. The CCF Awareness Store recently added new 15th…

2 New mentorship programs via partnership with ICRN/ENS-CCA to support, advise junior researchers in their career choices

By Allison Deragon | October 14, 2021

The Foundation’s International Cholangiocarcinoma Research Network (ICRN) and the European Cholangiocarcinoma Network (ENS-CCA) created two new mentoring programs…

Five for Friday – 5 ways you can participate in the Turkey Trot

By Allison Deragon | October 8, 2021

CCF and TeamCCF are thrilled to announce our Second Annual virtual Turkey Trot. This Thanksgiving we want you to move for a good cause.

Five for Friday – 5 on one-of-a-kind items in the CCF Bidding for the Cure Auction

By Allison Deragon | October 1, 2021

Thank you to everyone who has supported CCF Bidding for the Cure. We wanted to remind you that the virtual auction is still open until tomorrow, Oct. 2nd at 9:00 p.m. (ET).

Rare Cancer Day is supported by Cholangiocarcinoma Foundation with video series called ‘Patient Voices’

By Allison Deragon | September 28, 2021

Any cancer diagnosis is frightening but when it is rare cancer with few treatment options, the diagnosis can be especially devastating.

Five for Friday – 5 ways you can support CCF Bidding for the Cure

By Allison Deragon | September 24, 2021

The inaugural CCF Bidding for the Cure virtual auction starts TODAY, Sept. 24th, at 3:00 p.m. (ET).

Light it Green for CCA

By Allison Deragon | September 22, 2021

Please help participate in CCF’s Light It Green For CCA project! Cholangiocarcinoma Foundation (CCF) hopes to share awareness far and wide this year!

Rare cancer funding is being raised by Ruth Stage, Inc. to benefit the Cholangiocarcinoma Foundation

By Cholangiocarcinoma Foundation | September 21, 2021

Helping to raise funds for a grossly underfunded disease is something you rarely see from a theater company. Yet, that is exactly what Ruth Stage, Inc…

Early-stage cancer research funding supported by inaugural virtual auction by Cholangiocarcinoma Foundation

By Allison Deragon | September 20, 2021

Cholangiocarcinoma patients and scientists need help generating funding for research and treatment of early-stage cholangiocarcinoma, a rare but lethal bile duct cancer. To help in that effort…

Webinar: Personalizing cancer treatments with the PARIS® Test for cholangiocarcinoma patients

By Rick Pollock | September 18, 2021

Subscribe to our YouTube Channel Title: Personalizing cancer treatments with the PARIS® Test for cholangiocarcinoma patients Recorded: Thurs., Sept. 23, 2021 4:00pm (Eastern) Presented by:…

Five for Friday – 5 Ways to Support the Newly Diagnosed Program

By Allison Deragon | September 17, 2021

CCF officially launched its Newly Diagnosed/New to CCF program on Monday, Sept. 13th, to support patients and caregivers following a cholangiocarcinoma diagnosis.