Virendra Srivastava

Jan 1, 1950 – May 23, 2022 Our father was a loving, compassionate and courageous soul. As a Marine Engineer for 40 years, his stories from traveling around the world gave us an insight into his grit and determination to live life to the fullest. As a family man, his caring nature was limitless and he…

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Taramattie Sinanan

Dear family and friends, First of all, on behalf of our entire family, we would like to say thank you from the bottom of our hearts for supporting us during this very difficult time. Your words of support, encouragement and kindness have meant so much to us, and have helped us to begin our journey…

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CCF Celebrates National Cancer Survivors Day

Let’s show the world what life after cancer looks like! On National Cancer Survivors Day®, the Cholangiocarcinoma Foundation will join thousands of people in hundreds of communities throughout the world to celebrate life. This special day is an opportunity for cancer survivors to connect with other survivors, celebrate milestones, and acknowledge the contributions of the families,…

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Mary Lay

Mary Fritzsche Clements Lay, beloved mother, grandmother, great grandmother (Gigi), sister and friend to all, passed away on Friday, May 6, 2022 surrounded by her loving family. Mary was born in 1939 in Chicago, IL to Arthur Hugo Fritzsche and Elyce Ann Adams.  Her father was a baker and the family lived above the bakery. …

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Sharon Whish

1/7/1951 – 4/14/2022 On April 14, 2022, Sharon Whish lost her long battle with bile duct cancer. Sharon was the devoted and loving wife to Myron Whish, proud mother and grandmother to daughter, Kimberly Rogers (Kelvin Rogers); son, Bryan Whish (Stefanie Raymond-Whish); grandchildren: Darby Raymond-Overstreet, Cameron Rogers, Colby Rogers, Cade Whish, Colton Whish, Dax Whish;…

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Warren Estis

It is with great sorrow and sadness that we write to inform you of the passing of our father, Warren A. Estis. Our father was a true titan of real estate who embraced litigation with the passion and enthusiasm of an avid sports fan. He was known to judges and opposing counsel for his fierce,…

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Dennis Schwartz

11/01/1939 – 04/06/2022 On April 6, 2022, a beloved husband and father, Dennis (Denny) Schwartz, passed away following a short battle with a recently diagnosed and aggressive rare cancer of the bile duct called Intrahepatic Cholangiocarcinoma. Dennis was a loving husband to elementary school teacher Nancy (retired), and a mentor for his son Dan, a…

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Laurel Whitney Mason Clary

July 25, 1986 – April 2, 2022 It’s with great sadness that our family shares the passing of Laurel Whitney Mason Clary. Our angel earned her wings after a brave and hard fought battle with cholangiocarcinoma. Due to complications from her treatment, we lost her suddenly on Saturday, April 2nd at the age of 35.…

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Frank Barba

I am fundraising for the Cholangiocarcinoma Foundation in honor of my father, Frank R. Barba, who passed away from this disease in November of 2021. He was diagnosed with NASH in May of 2017, and on the evening of July 20th, 2021, we received a call we had been waiting years for. It was his…

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Virtual Support Groups

The Cholangiocarcinoma Foundation offers support groups and educational webinars to provide an opportunity for people to share personal experiences and feelings, coping strategies, or first-hand information about the disease and treatments. Participants are asked to register for each of the 60-minute virtual sessions. Special guests may lead the variety of discussions that are interactive for…

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Value of Research Studies

A survey is a tool for collecting real-world information. Patients and their caregivers are critical to the success of survey-based research. Participating in survey-based research helps researchers discover new information and identify additional scientific questions. It also, helps them explore potential approaches to address these questions in studies or clinical trials. To learn more about…

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Scott Terpstra

Click here to contribute in the name of Scott Terpstra If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel. If you wish to donate by mail, send check to: CCF – In honor of Scott Terpstra 5526 West 13400 South, #510 Herriman, Utah 84096,  USA

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Linda Jasinski

Linda Theresa (Huie) Jasinski, age 72, of Southwest Ranches, Florida, passed away peacefully on March 23rd 2022 after a courageous journey with cancer.  In celebration of her life and to honor her memory, we are initiating a fund-raising campaign for the Cholangiocarcinoma Foundation. Linda became a flight attendant in 1973, enjoying a long and fulfilling career…

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Five for Friday – 5 CCF Resources

Home / Blog / Five for Friday – 5 CCF Resources The Foundation’s website is full of important educational information for cholangiocarcinoma patients. Here are five (5) resources at your disposal. For more information, please visit the Newly Diagnosed/New to CCF webpage. Specialist Map Biomarker Testing CCF Blog 100 Questions & Answers About Cholangiocarcinoma E-book Discussion…

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Rochelle (Shelly) Glick Gryfe

Click here to contribute in the name of Rochelle (Shelly) Glick Gryfe If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel. If you wish to donate by mail, send check to: CCF – In honor of Rochelle (Shelly) Glick Gryfe 5526 West 13400 South, #510 Herriman, Utah 84096,  USA

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D. Frederick Weaver

Fred Weaver, 71, of Palmyra, formerly of Hershey, passed away early on the morning of March 4, 2022. Born on October 30, 1950, in Hershey, son of the late Hubert L. and Joan Elizabeth (Smith) Weaver.  Fred was a graduate of Hershey High School, Class of 1969.  Growing up on Derry Road, Fred could always…

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Brian Wolkenberg

Brian Wolkenberg was diagnosed with cholangiocarcinoma in the Autumn of 2020 after a routine screening for his liver disease, Primary Sclerosing Cholangitis (PSC). Because PSC eventually causes liver failure, the initial treatment plan was a liver transplant to address both conditions. Unfortunately, his cancer spread before he was able to find a liver donor and…

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Jeffrey Baker

Jeffrey Dennis Baker passed away on February 20, 2022, after a three-year battle with Cholangiocarcinoma.   He was surrounded by his family as he went peacefully to be with his Lord Jesus Christ.  Jeff was born on May 12, 1973, in Belleville, IL. Jeff’s first battle with cancer occurred in 1987 when he was diagnosed with…

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$550,000 in research grants awarded by the Cholangiocarcinoma Foundation to fund early-career investigators at renowned institutions

Research grants were made to Amsterdam University Medical Center, Duke University, Icahn School of Medicine at Mount Sinai, Johns Hopkins University School of Medicine, Khon Kaen University Thailand, Massachusetts General Hospital Cancer Center/ Harvard Medical School (2), National Institutes of Health, Regents of the University of Minnesota, University of Michigan, and UPMC Montefiore The Cholangiocarcinoma…

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2nd Annual Cholangiocarcinoma Foundation Poster Abstract Awards

3 winners awarded for making significant contributions in research for rare cancer known as cholangiocarcinoma The Cholangiocarcinoma Foundation announced the 2022 Poster Abstract Awards at its annual conference that took place virtually and in-person in downtown Salt Lake City. The award winners were honored for making significant contributions with a visual overview of cholangiocarcinoma research…

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2022 Mark R. Clements Award goes to Jan Meyer, George Riddle and Dr. Mitesh Borad at 9th Annual Cholangiocarcinoma Foundation Conference

Award winners are honored for making significant contributions towards finding a cure for cholangiocarcinoma through advocacy, vision, innovation, collaboration. The Cholangiocarcinoma Foundation announced its 2022 Mark R. Clements Award honorees at its annual conference in Salt Lake City, Utah. The award winners were honored for making significant contributions in supporting patients and rendering cholangiocarcinoma a…

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Daniela Elizabeth Egas

Egas, Daniela Elizabeth, 42, of Guayaquil, Ecuador, passed away on 2/19/22 surrounded by family and supported by many friends, Daniela had a courageous fight against cancer. Our hearts are heavy, but we know she is enjoying heaven and looking upon us. Daniela was preceded in death by her beloved grandma, Teresa. She is survived by her…

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Arpana Sathe Kagal

September 7, 1969 – February 14, 2022 Arpana Sathe Kagal of Plano, Texas passed away on February 14, 2022, at the age of 52. She was born on September 7, 1969, to Shantaram and Alaka (Mahableshwarkar) Sathe in India. Arpana married Nick Kagal on June 19, 1993, in Houston Texas. Arpana was a loving mother,…

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Initiative to Map the Cholangiocarcinoma (CCA) Landscape in Europe Will Help Improve Patient Outcomes

Scientists advocate for education programs to raise awareness and improve early diagnosis, survival, and quality of life of CCA patients in the largest and most complete multicenter study of CCA, published in the Journal of Hepatology Bile duct cancer, also known as cholangiocarcinoma (CCA), is a rare cancer often diagnosed only at an advanced stage.…

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Letter to the editor: Learn about bile duct cancer

February is Cholangiocarcinoma Awareness Month. Never heard of cholangiocarcinoma? You’re not alone. Also known as bile duct cancer, this devastating disease occurs in the body’s bile duct system, which carries bile from the liver to the small intestine. Bile duct cancer is one of the deadliest cancers because symptoms can be overlooked or indicate something…

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Webinar: Elevating Precision Medicine to the Forefront of Every Cancer Journey to Deliver the Right Medicine to the Right Patient

Cancer behaves differently in each person, and there is no one-size-fits-all treatment. Precision medicine makes cancer diagnosis more accurate and improves the ability to predict which treatments will work best. However, for precision medicine to be a real option for every patient with cancer, many more medicines targeting rare genomic drivers, such as NRG1 fusions,…

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Susan Harton

Beloved wife, daughter, sister, and friend, Susan Harton’s love of life did not come to an end with her death.  Susan passed away peacefully surrounded by family on February 2, 2022, at the age of 41 after a courageous year battling a rare bile duct cancer. She fought a battle to inspire us all, with a…

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Cholangiocarcinoma Foundation congratulates AstraZeneca TOPAZ-1, the first Phase III trial to show adding immunotherapy to standard chemotherapy can increase overall survival in advanced biliary tract cancer

On behalf of patients and families impacted by cholangiocarcinoma (bile duct cancer), the Cholangiocarcinoma Foundation congratulates AstraZeneca and its positive results from the TOPAZ-1 Phase III trial. The trial showed Imfinzi (durvalumab) in combination with standard-of-care chemotherapy resulted in improved overall survival (OS) versus placebo plus chemotherapy in patients with advanced biliary tract cancer (BTC).…

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Deborah (Debbie) Robbins

July 20th, 1952 – January 19th, 2022 To know her was to love her. And if you were lucky enough to know Debbie Robbins, she made sure to tell you that she loved you. She also never missed an opportunity for a hug and a kiss. Her true gift in life was making people laugh,…

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Trent Dyess

Trent was the most loving and true Jack of all trades to the fullest. He was the best gift to all of us that love him. His faith only grew stronger as we faced this war against cancer. He touched so many lives with his dedication to that relationship. We miss him dearly. This type…

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Patricia “Patti” Korth

Patricia “Patti” Korth passed away on January 11, 2022, exactly five years to the day she was diagnosed with Cholangiocarcinoma and given only 8-10 months to live. With Mom’s sheer will to live and love, and the incredible care of Dr Ben George and his team at Froedtert, she beat all odds. Our mom was…

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Volunteers make big strides with raising awareness, funding research for the Cholangiocarcinoma Foundation

In 2021, volunteers for the Cholangiocarcinoma Foundation (Foundation) made big strides in raising awareness and funding research to render the lethal bile duct cancer treatable. Supporting and managing the volunteers was recently recognized by the Utah Nonprofit Association that awarded the Foundation with its credential badge for volunteer management. “We see this achievement as the…

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Judith Ressmeyer Hinsch

Judith (Judy) Ressmeyer Hinsch, of Plainview, NY, passed away on January 8, 2022 of Cholangiocarcinoma (Bile Duct Cancer) at the age of 69. Judy was born in Baltimore, MD and grew up on Long Island, in New York. She attended Our Redeemer Lutheran School in Seaford, NY, Long Island Lutheran High School in Brookville, NY,…

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Webinar: “The PERIO-02 Trial – Enabling Immunotherapy for Intrahepatic Cholangiocarcinoma”

In this webinar, Steven C. Katz, M.D., FACS, Chief Medical Officer at TriSalus Life Sciences, leads a review of the Pressure-Enabled Regional Immuno-Oncology (PERIO-02) clinical trial for adults with intrahepatic cholangiocarcinoma and hepatocellular carcinoma, the most common primary liver tumors. Dr. Katz is joined by Venu Pillarisetty, M.D., Professor of Hepatopancreatobiliary Surgery at the University…

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Kenneth Hudgins

On December 24, 2021, Kenneth Hudgins lost a courageous thirteen-month battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Kenneth was a devoted husband to Brenda, a loving father to Rebecca and Amanda, and proud grandfather to Addie and Emma, and a caring son to Gene and brother Chris. In lieu of flowers,…

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Paru Kanu Patel

Paru Kanu Patel, age 82 of Zadeshwar, Gujarat, India,  passed away on December 18, 2021, with her husband at her side. Paru was born on March 1, 1939, in Zadeshwar, Gujarat, India to Dahiba and Chimanbhai Patel. Paru is survived by her husband of 61 years, Kanu of Dabhoi, Gujarat, India; 3 daughters, Nina of…

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Phung Xuan Le

June 1st, 1958 – December 7th, 2021 On December 7th, 2021 Phung Xuan Le passed away less than two months after being diagnosed with cholangiocarcinoma (a rare cancer of the bile duct). Phung was a loving, patient, and supportive husband to Mymy Phu and an unsurpassed father to son Phi and daughter Brenda. Cholangiocarcinoma is…

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Long-Term Survivor Stories – Robert Bickel

Working out was something of a side-hustle for me the last three years. I used it as motivation to quit smoking and set the stage for the next chapter of my life. With two daughters in college that were not too far off-major milestones and such. Despite that vice, I maintained a fairly healthy lifestyle…

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Long-Term Survivor Stories – Matt Reidy

Hello. I’m Matt Reidy. I live in Richmond, VA. I’m a retired IT executive. I’m also married with four children, now age 12 through 25. I enjoy woodworking, sailing, and water sports. MY STORY I was diagnosed in December 2013 with stage II perihilar cholangiocarcinoma. I was devastated at diagnosis when I learned there is…

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Five for Friday – 5 ways to prepare for the conference

Home / Blog / Five for Friday – 5 ways to prepare for the conference Registration for the 9th Annual Cholangiocarcinoma Foundation Conference is open! The annual conference takes place the week of Feb. 23-25, 2022. Join more than 500 patients, caregivers, scientists, researchers, and healthcare providers from around the globe to learn about the latest in…

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Susan McKeough Bacon

Susan McKeough Bacon passed away peacefully from cholangiocarcinoma on November 15, 2021 at the age of 68. She was comforted and supported by many family and friends throughout her diagnosis and especially during her last week on home hospice. Susan was a beloved mother, Gaga, sister, daughter, aunt, and friend. Susan was born March 3,…

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Giving Tuesday 2021

This year was an incredible success, because of you, we raised more than $150,000! Last year on Giving Tuesday, people came together to raise more than $2.5 billion to support the causes they care about. This year, you can participate in #GivingTuesday by sharing a UNselfie, which tells the world why it’s important to give…

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Thomas L. Casey

April 7, 1984 – November 10, 2021 Thomas L. Casey, 37, of Merriam, Kansas, passed away on Nov. 10 after a long battle with bile duct cancer. Tom died peacefully at the Kansas City Hospice House surrounded by loving family members, friends and his dog, Gregory. Tom was born in Cleveland, Ohio, on April 7,…

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Patient Scholarships for our 2022 Annual Conference

It is with great pleasure the Cholangiocarcinoma Foundation announces it is giving patient scholarships for its 9th Annual Cholangiocarcinoma Foundation Conference taking place February 23-25, 2022, in Salt Lake City. The non-transferrable scholarships for patients cover registration, hotel, air, and ground transportation. The Foundation is thrilled to award scholarships this year because 2020 and 2021…

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Joseph Puleo

April 12, 1955 – November 10, 2021 On November 10, 2021, Joseph Puleo lost a courageous battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Joseph was the loving husband to Joanne, a wonderful father to his two children J.P. and Kristy and the best grandfather to his two grandsons, Clark and Raylan.…

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Long-Term Survivor Stories – Arlene Dworetsky

Hi, my name is Arlene Dworetsky. I’m from Glastonbury, CT, originally from Hartford, CT. I’m a retired public elementary school teacher with more than 30 years of teaching experience. Currently, I’m a reading/math tutor for a public 3rd-5th grade elementary school in my area. I have a husband, two sons, and a beautiful baby grandson.…

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Long-Term Survivor Stories – Christy Landon

My name is Christy Landon. I grew up in the northeast Ohio area and currently live in Mansfield with my husband, Troy. We have four adult children: Conner, Alexis, Logan, and Alec. They are all attending college. I also have three grandchildren. MY STORY Prior to diagnosis, I was a family and consumer sciences teacher…

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Jeffrey May

Jeffrey H. May passed away on November 1st surrounded by his family after a courageous battle with cholangiocarcinoma. He was 61 years old. Jeff was born in Manhasset NY to Rosalind and Eric May. Jeff loved growing up in Port Washington amidst extended family and remained good friends throughout his life with some of his…

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Sanjay S. Patel

April 29, 1962 – October 27, 2021 Loving husband, father, grandfather, brother, uncle and friend to all. We will forever cherish his fun-loving jokes, jovial character and love for everyone. Click here to contribute in the name of Sanjay S. Patel If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel.…

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GCA Webinar: Why better coding is needed

There is currently a lack of cholangiocarcinoma-specific educational resources that are designed to support the adoption of ICD-11 among healthcare professionals. As a result, the Global Cholangiocarcinoma Alliance (GCA) is organizing an ICD-11 webinar titled “An overview of CCA: Why better coding is needed.”

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Michael F. Cunningham

April 18, 1955 to March 18, 2020 Michael F. Cunningham, of Dorchester, passed away at age 64 on Wednesday, March 18, 2020, after a 15 month battle with Cholangiocarcinoma (bile duct cancer). Mike was a lifelong resident of Dorchester, MA. He also spent a great amount of time in Quincy visiting with his family and…

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In Remembrance of Victoria S.L. Wong

March 4, 1939 – September 5, 2021 Victoria “Vicky” Wong was born Victoria Shui Lang Wan on March 4, 1939, in Paris, France, the third of eight children born to Olga Pearl Jung and Wan Wai Nam. When World War II events began developing in Europe, she moved along with her family safely to Saigon,…

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Marlene G. Walls

June 13, 1951 – September 16, 2021 Marlene Walls, 70 of West Lafayette, lost a difficult battle with intrahepatic cholangiocarcinoma, passing away peacefully Thursday, Sept 16, 2021, with family by her side. Foreshadowing a life spent faithfully in service of others, Marlene earned a Bachelor’s in Social Work from Latrobe University, Melbourne, Australia in 1981.…

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Victoria “Vicky” Wong

On September 5, 2021, a cherished wife, mother, grandmother, sister, aunt, cousin, and friend lost a courageous four-year battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). In celebration of Vicky’s life and to honor her memory, we are initiating a fund-raising campaign for the Cholangiocarcinoma Foundation. Please consider making a contribution to…

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Michael James Davenport

03/18/1952 – 08/29/2021 On August 29, 2021, a cherished friend and member of our community, Michael Davenport lost a courageous twelve-month battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Michael was the loving husband to his wife Darla Davenport, and a wonderful father to his two daughters Erin and Lauren, and son,…

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Gensheng Yu

Gensheng Yu was a beloved father and husband who tirelessly worked to bring his family a better life in Canada. Born in Suzhou, China, he was the first in his family to attend university, where he studied Mechanical Engineering. After excelling at business, he immigrated to Canada in 2001 where he laid the foundation for…

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Dilip Kumar Saha

Our dear father, Dilip Kumar Saha, known as “Dil” to his family and friends passed away on Sunday, August 15th, 2021. He is survived by his loving wife Sipra, his son Soudip “Ted” and daughter-in-law Deepa, his daughter Nilova “Tina” and daughter-in-law Maria, and his grandsons Nithin and Ari. Sipra and Dil recently celebrated their…

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Susan Irene Zivanovic

Susan Irene Zivanovic (nee MacLean) passed on to eternal rest on August 12, 2021 at the age of 52 after a heroic battle with cancer in The Woodlands, TX. Born in Fergus, Ontario, Canada Susi called both Canada and Texas home and was proud to do so. Like the saying goes “Our parents saved the…

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Bidding for the Cure

Thanks to everyone that participated! Help fund research that will move us closer to a cure. To celebrate the Cholangiocarcinoma Foundation’s 15th Anniversary, and to support our volunteer committee’s pledge to raise $150,000 to fund critical research into cholangiocarcinoma, we are holding our first-ever virtual silent auction – Bidding for the Cure. We are auctioning…

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Whispers Over My Shoulder

Excerpt from the ASCO Post, by Mairéad Geraldine McNamara, MB, PhD.  When I interviewed for my current post as a first-time consultant in medical oncology in the United Kingdom, I was asked about my 5-year career plan. I remember some detail of my reply, but I don’t think it even remotely encompassed the depth of insight…

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Paula Ann Marie Conte

December 16, 1954 – July 13, 2021 On July 13, 2021, Paula Ann Marie Conte, a cherished wife, daughter, sister, aunt, friend, Nana, and mom, lost a courageous 14 month battle with cancer. Paula was a strong and selfless woman, who put the needs of everyone else before her own. Lovingly referred to as “Nana”, her…

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Evelyn Richardson

01/08/1938 – 6/6/2021 On June 6, 2021, Evelyn Richardson lost a courageous six-month battle with cancer (a rare bile duct cancer called cholangiocarcinoma). In lieu of flowers, please consider making a contribution to this important initiative in Evelyn’s memory. The Richardson family thank you for honoring Evelyn’s memory by accelerating research for this devastating disease.…

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James T. Olson

James T. Olson, age 33, of Kissimmie, FL passed away on April 11, 2021 while he was on home hospice with his loving family at his side. James had metastatic cholangiocarcinoma. Born in Edison, New Jersey on January 24, 1988 to Daniel and Carol (Thomas) Olson, James grew up in South Plainfield, NJ and later…

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Libby Wolfe

After a brave 6-year fight with cholangiocarcinoma, Libby Wolfe peacefully passed away in her home with her daughter and sister by her side. Libby was diagnosed with cholangiocarcinoma in 2015 and given 6-12 months to live.  The diagnosis and prognosis were frightening and Libby along with her loving caregiver/daughter, Abbey, immediately jumped into research mode and…

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Jeffrey L. Annis

August 28, 1954 to May 12, 2021 Born in South Bend, Jeff has always been a resident of South Bend and Mishawaka. Jeff is survived by his wife Lynn, his father Robert (Katie) Annis of Mishawaka, his mother Lorie Sefcik of Bradenton, FL, his brother Martin Annis of Anna Maria Island, FL, and his sister…

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Priscilla Marr

Priscilla Marr of Stouffville, Ontario passed away on April 15th. Born May 4th, 1960 in Nova Scotia, Priscilla was the loving wife of Neil Marr, her husband of 38 years. Mother to Julia (Dustin) and Gillian. Nana to Luther, Aidan, Lynley, Keaton, Perry, Macaulay and Neil. Sister to Peggy (Brian), John (Jocelyn), and Chris (Karen).…

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Michael J. Hunsaker

Michael J. Hunsaker was diagnosed with Cholangiocarcinoma (Intrahepatic Bile Duct Carcinoma) in December of 2018. Prior to Mike’s diagnosis, he was pretty healthy. No high blood pressure, no diabetes, never smoked, never did drugs, wasn’t a drinker outside the occasional beer once every couple of months, never exposed to hepatitis. His only risk factor was…

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Dr. Malcolm Dorman

Dr. Malcolm Dorman, a world-renowned heart surgeon and pillar of South Florida’s Jewish community for over 40 years, tragically passed away on Friday, March 26, 2021 in New York City, New York after a difficult year-long battle with bile duct cancer. He is survived by many loving friends, family, patients, co-workers, and numerous others who…

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Bundles of Hope

Dear Friends, This year CCF is celebrating 15 years of providing love, comfort, and hope to the cholangiocarcinoma community. We are honored to serve as Co-Chairs of the 15th Anniversary Steering committee. We hope you have been enjoying the monthly “What’s Your 15?” opportunities to remember, reflect and give back to this community we have…

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Robert “Bob” Wesley McElroy

Robert “Bob” Wesley McElroy, age 61, went to his forever home in heaven on April 14, 2021, after a courageous 8 month battle with Stage 4 Cholangiocarcinoma Cancer. He was born on July 31, 1959 to Wesley and Carol (Grant) McElroy in Pittsburgh, Pennsylvania and was given his middle name after his father. He graduated…

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Mary Ellen Hilden Chabot

Mary Ellen Hilden Chabot, 77, a retired collectibles entrepreneur who also showered her family, friends and neighbors with her gourmet meals and dessert confections, died April 12 in Bonita Springs, FL after a sudden six-week fight against cholangiocarcinoma.  In celebration of her life and to honor her memory, we are initiating a fund-raising campaign for…

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Suzanne Kamel

In March 2021, the occupational therapy department at MedStarNRH lost an amazing member of its team. Suzanne Kamel was a senior OT that brought her very best to work every day. After working at MedStarNRH for 13 years, Suzanne was a cherished mentor and friend to her colleagues. She was valued by all of the…

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Cathryn McElvaney (nee Carman)

Cathryn McElvaney (nee Carman), a proud, lifelong Philadelphian, passed away unexpectedly on Friday, April 2, 2021, surrounded by her family.  Cathy was the beloved wife of Gary for the past 39 years. She was the loving mother of Brian, Kevin, and Mary Kate, and proud grandmother to Brie, Maura, and Addison. Cathy was a proud…

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Gary Wayne Jarrell

April 1, 1949 – March 5, 2021 My dad was an amazing person and father.  He was diagnosed with cholangiocarcinoma in October 2020  and he was gone in five months.  This is a devastating disease that needs more research so that medical professionals can obtain the tools they need to treat and hopefully cure it. …

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Judi Budner

Click here to contribute in the name of Judi Budner If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel. If you wish to donate by mail, send check to: CCF – In honor of Judi Budner 5526 West 13400 South, #510 Herriman, Utah 84096,  USA

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Trung Nguyen

1960-2021 On March 20th, 2021, Trung passed away in the love and comfort of his home, after fighting a brave battle with cancer (intrahepatic cholangiocarcinoma). Trung was the loving husband of Susan, and father to Michelle (Tim), Christina and Marie. His life was spent caring for others, such as his two nieces, Ty and Tien,…

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Maria Lynn Van Riper

Maria Lynn Van Riper (Del Monte) passed into Heaven on March 14, 2021, at her home in Newnan, Georgia. Her final moments here was enjoying a beautiful Sunday afternoon, visiting with family. Maria was born on September 23, 1963, in Van Nuys, California, the youngest of six children, to James and Helen Del Monte. Most…

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Cym Hawksworth Lowell

Cym Hawksworth Lowell passed away peacefully on February 23, 2021, surrounded by his family, after a two and a half year battle with cholangiocarcinoma, a rare but aggressive liver bile duct cancer. Cym was a devoted husband, wonderful father, loyal brother, true friend and passionate person. He loved life and lived it fully during his…

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Hilda Russell

On August 18, 2020, Hilda Russell passed away after her battle with Cholangiocarcinoma. A beloved mother to her son Andrew and wife to her husband Keith, Hilda will always be remembered for her thoughtfulness, kindness, and excellence (as well as her phenomenal cooking talent). Her sincerity, love for her family, and impact on those that knew her will never be…

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Allen E. Hill

July 20, 1936 – February 27, 2021 On February 27, 2021, a beloved husband, father and friend lost his nine month battle with cholangiocarcinoma. He was a very active retiree before his illness. He liked working outside in his gardens, traveling and golfing 2-3 times a week. In celebration of his life and to honor…

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Mary Kay Haugen

Mary Kay Haugen, 67 of Lewistown, MT passed away February 8th in Surprise, AZ following a 2 year battle with a rare form of cancer, cholangiocarcinoma (bile duct cancer). Mary Kay was born July 25, 1953 to Trygve and Mary Fran Haugen, the middle child of five. The early years of Mary Kay’s life were…

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Jeffrey Roger Godbee

Jeffrey Roger Godbee, 54 was diagnosed with Cholangiocarcinoma on November 24, 2020 and on Monday, February 8, 2021 was called home to be with the Lord.  Jeff was the type of man that fought until the bitter end for what he believed in and he believed that he would be healed and live at least…

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Richard Mack

On February 8, 2021 a loving family man and friend, Richie lost a courageous two-and-a-half-year battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Richie was the devoted husband to Michelle Mack and an incredible father to her two sons Brandon and Brett, and his granddaughter Mariah who comforted him in his final…

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Regina (Regi) Elizabeth Blair

February 22, 1956 – January 4, 2021 Regina (Regi) Elizabeth Blair, 64, passed away surrounded by loved ones after a courageous battle with Extrahepatic Cholangiocarcinoma, a rare bile duct cancer on Monday, January 4, 2021. Regi met the love of her life, Dale Blair, in 1972. Although there was an immediate connection the timing wasn’t…

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Sally Hoey

On January 3, 2021, a “force of nature” Sally, lost her brief but valiant battle with cancer (a rare bile duct cancer called extrahepatic cholangiocarcinoma). Sally was a loving wife to Ted for 54 years, a wonderful mother to daughter Julie (Bill) Miller, and two sons Doug (Laura) and Jay (Alicia) and “daughters at heart”…

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Albert Lewis Snedaker, III

Albert Lewis Snedaker, III, passed peacefully in Jacksonville, Florida on December 29, 2020, at the age of 62. Albert is survived by his wife, Christine Snedaker; daughter, Adriana Snedaker; son, Albert Lewis Snedaker IV; brother, Jeffery Snedaker; and sisters, Diane Snedaker Spyker and Linda Snedaker. Albert was born on May 26, 1958, in Philadelphia, Pennsylvania,…

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Vicki Lukawski

It’s never easy to learn that a loved one has been diagnosed with cancer. The unknowns can be overwhelming and the fear of loss paralyzing. Despite the shock that befell the family when we learned that Vicki was diagnosed with Cholangiocarcinoma, she responded how she has to the many challenges faced throughout her life: with…

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Ernest Wright

Together let’s continue Ernie’s legacy of generous giving by helping to improve treatment options for those diagnosed with this rare but aggressive cancer. Click here to contribute in the name of Ernest Wright If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel. If you wish to donate by mail, send…

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Jingfan Huang

10/30/1963 – 12/1/2020 Jingfan Huang was a loving and quietly courageous woman who always described her life as a miracle. She came from humble roots in her beloved city of Hangzhou, China and immigrated to the US in the 1980s to obtain her PhD in analytical chemistry. To her own surprise, when she began her…

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Mark Patrick Miller

11/10/1955 – 11/24/2020 Mark Patrick Miller’s stoic battle with bile duct cancer ended on November 24, 2020 in his home in Westminster, Colorado. He was 65. Mark was born on November 10, 1955 in Denver, Colorado to parents Margaret Elizabeth Poarch and Charles Wayne Miller, both now deceased. Mark is survived by his lifelong soulmate…

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Pravinbhai Madhubhai Patel

February 24, 1951 – November 21, 2020 Lakhanpure, India On November 21st a cherished friend and member of our family and community, Pravinbhai Madhubhai Patel lost his courageous eighth month battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Pravinbhai was the loving husband to Jashubhen and wonderful and loving father to his…

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Sally Schott

Hi everyone Davis and I wanted to give you the option to donate to a cause that is very close to our hearts. As many of you know my mother, Sally, passed away 1/2020 from cholangiocarcinoma. She would have given anything to watch me marry Davis this upcoming April. She was an extremely charismatic and…

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Marianne Mowery

Marianne began life as a blonde haired, brown-eyed, youngest child of a middle class family. Being a cutie and the baby of the family, she was spoiled as only an Italian family can do. She enjoyed that status for 10 years, then, surprise! A new baby boy entered the picture and she was no longer…

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Aaron Brotman

On Sunday, October 11, 2020, Aaron J. R. Brotman, loving husband, son and father, aged 42, of Hanover, PA passed peacefully at home from Stage 4 Cholangiocarcinoma. Aaron faced many health challenges in his lifetime, including severe cluster headaches, gallstones, and severe IBS after gall bladder removal, but Cholangiocarcinoma metastasized to his lungs and proved…

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Rick Stone

Rick Stone, age 65, of Suwanee, GA passed away peacefully on October 9, 2020, following a hard-fought battle with intrahepatic cholangiocarcinoma (diagnosis October 2019). Rick grew up in Melbourne Beach, FL, and Rutherford County, NC. He graduated from North Carolina State University with degrees in Computer Science and Chemistry. His career as a Software Engineer…

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John Demetriadis

June 18th, 1955 – October 14th, 2020 In February of 2019, John was diagnosed with Cholangiocarcinoma, a rare cancer that affects the bile ducts and was already in the late stages. He was given approximately 8 months to live at that time, but that wasn’t good enough for him. John was determined to fight, battling…

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Edward Anthony Howard

Edward Anthony Howard was born on August 9th, 1941 in Brooklyn, New York. He was the son of Henry and Helen Howard. He graduated from Pratt Institute in 1964 with a degree in electrical engineering while also starting his 44-year long career with the U.S. Navy Lab working on naval communication systems. He earned his…

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Ingrid Tom Phillips

September 2, 1950 – March 26, 2020 Ingrid Tom Phillips was born on the sunny and friendly Caribbean isle of Trinidad in the southern and industrious city of Point Fortin as the last of 11 children. Ingrid, ever studious, matriculated through primary and secondary forms with honours and in 1967 was accepted to attend college…

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Larry Jacobs

On September 19, 2020, Larry Jacobs, our beloved husband, father, son, brother, and friend lost his courageous three year battle with Cholangiocarcinoma (bile duct cancer). He is survived by his wife Trish, daughters Lindsay and Greer, his mother Lois, sisters Sheryl and Deanne, and many family members and friends. Larry was born in Claremont, CA.…

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Barbara Ellen Clay

Barbara Ellen Clay 9/16/1937 – 8/11/2020  “A Blessed Life” Click here to contribute in the name of Barbara Ellen Clay If you wish to donate by phone, please call (888) 936-6731 and speak with Laurie Kikel. If you wish to donate by mail, send check to: CCF – In honor of Barbara Ellen Clay 5526 West 13400…

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Irene Christmann

On June 7th, 2020, our dear wife, mother, Oma, and friend, Irene Christmann, lost her fierce battle with a rare form of bile duct cancer known as intrahepatic cholangiocarcinoma. Her positivity radiated throughout her life and she spread hugs with everyone she came in contact with. Irene loved to tell stories about her time in…

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James Michael Phillips

October 17, 1963 – June 9, 2020 On June 9, 2020, James Michael Phillips, a beloved husband, father, and friend, lost his courageous battle with bile duct cancer, which was exacerbated by primary sclerosing cholangitis (PSC). He is survived by his wife Sheila, daughter Courtney, and son Zachary. James was born in Providence, Rhode Island…

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Richard Opalinsky

My husband Richard Opalinsky, best friend and high school sweetheart was recently diagnosed with intrahepatic cholangiocarcinoma April 15, 2020.  His journey was short-lived, he passed June 3, 2020.  This rare aggressive bile duct cancer metastasized to an inoperable state.  Richard’s family was devastated to learn of no cures nor that there was very little scientific…

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Toka Ball

January 26, 1969 – March 30, 2020   On March 30, 2020, Toka Ball lost a courageous 5 year battle with cancer (a rare bile duct cancer called intrahepatic cholangiocarcinoma). Toka was the loving wife to Andrew Coleman and is survived by her sisters Piper Mejia, Rebecca Wickes, and parents William and Maureen. Toka had…

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Paul Holt

On May 20, 2020, Paul Holt, 54, of Frederick Maryland, lost his courageous 17 month battle with a rare bile duct cancer called cholangiocarcinoma. Paul was the loving husband of Melissa Holt and a wonderful father to his son Jamie (18) and daughter Ellie(14). In celebration of his life and to honor his memory, we…

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Alexander “Al” Marzano

Alexander Marzano “Al”, 85, Army Veteran was a native Chicagoan from the north side of the city.  He was diagnosed with cholangiocarcinoma in February 2019 and fought hard every day.  He ended his brave battle on May 3, 2020. Al graduated high school from Waller High and joined the Army.  When returning from the service…

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Billy & Kathy

I know we were all looking forward to the fundraiser at Yankee Stadium this year. Unfortunately due to COVID, we can not guarantee that MLB games will be played, or that it will be safe to host the event in 2020. Some have asked if there would be a way to donate without attending the…

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