clarem
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Hi Michele,
I just want to say that I am thinking about you and your children. It’s not my place to tell you how long your husband has with you but like Willow I would be concerned about hanging on to two months and missing opportunities to say and do what you want to now. We cared for my sister at home and I saw how rapidly she declined and new in my gut just how short her time left was.
You are doing what is right for all of you now – never doubt that. Is there any care in place to sit with your husband during the day or night so that you can get some rest. Even if it is for short bursts to give you some rest?
There is also medication that can be given to help if he is agitated with the confusion.Sending you much love and support.x
Hi Stella,
I’ll answer what I can. Undoubtedly, the great and good will be along to help fill in the blanks and give you more answers.
Jaundice: its because the bile is not flowing out of the liver, down the bile ducts and into the stomach – something is blocking it. Putting in a stent can help, cleaning out an existing stent that has blocked or an drain from the bile duct to a bag can all help get the bile flowing which will help relieve the jaundice. Tell the doc if jaundice re-appears or gets worse so they can re-assess.
Swollen feet and legs can be caused by medication and if the levels of chemicals in the blood have gone out of whack then this too can cause it. Pressure on a big blood vessel can also cause swollen legs. Again mention it to the doc as there may be something that can be done or given to help relieve it.
Hi Judith,
I just wanted to say hello and welcome. My sister made the decision not to have chemo – sometimes the right decisions are the hardest ones to make.
You will get so much support here for not just your husband but yourself and family too.
Hi Linda,
I agree with the others that there is help there for you and your husband. Controlling any agitation or hallucinations can be done and that will make it less distressing for you. My sister was much calmer once we got her agitation and confusion settled. She was initially on injections but the pump that gave her a continual dose of several mess including morphine and haldol was a godsend.
X
Thank you everyone. Our Dad also had a stroke on Wednesday but thankfully, he’s just been left with a bit of weakness in his hand and foot. I’ll take that as it could have been much worse. Now we just need to get mum out of plaster and off her crutches.
Hi Lou,
My sister had this bypass surgery. She was taken to theatre to have the majority of her liver removed but the tumour was more extensive than initially thought so the surgeon did not touch her liver. He did foresee that the tumour would block her stomach so performed the bypass surgery there and then to avoid having to do it when an obstruction occurred.
They need to give the stomach some time to recover and for movement within the bowel to start and they will slowly introduce liquids and then food. I am glad your mum is pain free and I hope she starts to improve and respond to you. Take it an hour at a time when it all seems to much to get from day to day. x
Hi Mel,
Welcome to the forum where you have found there is a wealth of support and knowledge.
I so feel for you right now. It is incredibly hard holding everyone up and trying to keep it together yourself – that’s before needing to have medical treatment yourself. My sister was 41 when she was diagnosed with a young family and 6 hours away from me.
I love Krisv’s advice about getting people to help. There will be friends that will go over hot coals for you and allowing them to will relieve some of that stress.
You will find the strength to get through this I promise. On those hard days, come here and ask for support and take it one day at a time.
x
Hi Nancy,
I just wanted to welcome you to the board and to say how sorry I am that your husband has been diagnosed with this. It’s all been said above – there is always someone that can support you here. Never apologise for your post whether they are long, short or in between – post away and we will listen.
x
Hi dboms,
My simple understanding of it is that They block part of the blood supply to a certain part of the liver which forces the part of the liver with a normal blood supply to grow. It was done for my sister as her planned resection would result in only leaving behind 14% of her liver. By doing the embolisation to ‘bulk up’ her liver, the unaffected part that they needed to leave behind grew over 4 weeks to 24%.
Dear Heather,
Welcome to the forum although I am sorry that you had to come here. I understand the devastation that you must be feeling as my sister was taken to surgery but it was aborted as once her surgeon saw her liver, he saw that her CC was more extensive than scans has shown.
As Lainy said there are those here that have had chemo and then been able to have surgery. For sure you will get a ton of support and answers from those in the know here. There is always someone that can help whether it is answers, advice or support.
