elmoks
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Jen, my mom was diagnosed 2 years ago and everyday since then I have said how thankful I am that we’ve had this time. It has MADE us take the time to take vacations, girl trips, slumber parties, etc. Yes CC is ugly and not fair! But, WOW have I made some amazing memories with my rockstar mom!!! My wish is that you are able to sit in the sun again this summer!!!
Last night I was so worried that she wouldn’t make it through the night…. I think I get so worked up because of the unknown. I am married and have two beautiful children so I want/need to be at home, but also want to be here with mom. Again, I’m left googling signs and symptoms of approaching death…… I really just need to be cloned! As soon as they find a cure for CC then I hope they can clone people for short periods of time. hahahaha
I think that your right when you say that we are trying to protect our hearts…..I wish that I could be as strong as my mom. She is definately my hero!!!The stent she has is metal, which they said was permanent.???? She did have the plastic ones, which they replaced until they kept blocking.
Thank you so much Susan. I remember the Dr saying it could take a week before they start working….. I’m worried that’s to long to wait.
We did get to bake cookies!!! My mom wasn’t able to help but my dad and daughter filled the house with laughter and a big mess! Hahaha I’m pretty certain there were more sprinkles on the floor than anywhere else. My mom did say several times that she loved the way the house smelled. I am going to call tomorrow to get the results of her latest ca919 test so I will definitely ask about the “type” of ascites he thinks it is. Again, thank you all for your kind words, encouragement, and suggestions.
Marion, can you tell me, does ascites mean the final stage?? And, I also read that stranding could mean spread of cancer.??? Thank you for the information. I will definitely try that.
JacqueThank you both for the kind words. Can I ask, is grouchy-Ness normal, and just wanting to be un bed and sleep all day? U don’t know weather to accept het wishes and leave her line or to just be with her. Today I wanted to make cookies and candies with het and my daughter but now I don’t know what to do. I just want my mom to be happy, but being happy can’t surely be just laying in bed all day, by yourself, can it?
Hi this is Jacque, Tom and Judy’s oldest daughter. I was doing so good with updates, but things have really been going pretty good with my mom that I just haven’t felt the need to. ;-( Well, I say that as I think about the horrible amounts of pain that she’s been in. That’s sooooo frustrating, as I’m sure my dad can atest to. We are ALL very hopeful about this new raidiation treatment. It is the BEST news that we’ve heard in a long time, however, it upsets me that if this is a new treatment why were we not called? This is the same center that my mom visits every other week for her chemo treatments. When a new treatment comes available do they not look at all the files/records/cases and see if there are any that would benefit? I know that we are suppose to be our own advocates, but at the same time we put all of our trust in THEM. UGH!
So yes any information on any new treatments or on this Trilogy Radiation please please please share with either my dad or myself.Daughter, I too am a daughter. And it is very hard to be supportive and just be there to listen. When all you really want to do is take control and DEMAND that the Dr. do things differently, give you different answers, your parents get 2nd opinions, etc. I was treated by my mom’s oncologist in 2007 so my mom feels that he is “good.” And it’s not that I don’t, but I’m with you… I just wonder if there is something that is being missed, or something more that can be done. My dad, Tom commented above about we’ve often wondered if my mom’s cancer hadn’t spread to her pancreas….??? Are the symptoms the same? And Missingwayne, I agree! When does the Dr. say that quality or life is more important? Today we were told that my mom could possibly do more chemo next week? And we think “how.” Sitting in his office waiting for him she could barley keep her eyes open. She’s SO weak. Chemo will only make her weaker! But, we are caregivers…. so what exactly is our place? I wish and hope the best for all of you and your families!!!! CC SUCKS!
It does seem that every time my mom has Cholangitis (and has fever, throwing up, dark urine, pale stools) her CA919 is also up. We just went to the Dr. today and on 2/1/10 her CA919 was 70 and now it’s 4000 and she has NO other symptoms…. I’m like you though, it makes me worry, upset, etc. I’ve heard not to put much into the CA919, but how can you not. I wish the best for you and your mom!!!!
My mom also has severe pain on her side. They gave her hycosimine (i’m sure that’s the in-correct way of spelling that) for the spasms in her tummy. It really seems to help. But her spleen is also really enlarged and it causes her alot of pain. She has also ran a low-grade fever really since being diagnosed. However, they have never said she has any infection. ??? Good luck and I will be keeping you all in my thoughts and prayers!
well today my mom’s platelets were at 68 and they will not treat her unless they are at least 100. the last time she did chemo they were at 109 and she dropped clear down to 22, within 1 week. so no chemo again today. it’s been 6 weeks since her last chemo. they also checked the ca919 today and we should get the results of it on thursday, not that i’m a big beleiver in that test. but it seems like right now it’s the only thing we have to go by. Suzanne I wish you alllll the luck in the world! i will be praying that your platelets also go up so that you can recieve treatment. however, like i tell my mom, at least you get to feel good for another week!
Kris thanks for sharing that. Your only 35? That’s my age! This cancer is CRAZY! My mom hasn’t had chemo for over a month now. This week they dropped even farther…. I just wonder if they will ever go back up?
My mom, 54 years old, was diagnosed with CC April 15th of last year. Her cancer is also inoperable becasue of where the tumor is located in her bile duct. She has had several stents put in, which she now has a metal stent and it’s been GREAT, and has done radiation and chemo. She is still doing heavy chemo! They told us that she wouldn’t make it 6 months and it’s been almost a year. So don’t let them dr’s put an expiration date on Kelly. She just has to fight this! Good luck to the both of you! This is a long scary battle, but it is a battle that can be won! Caner is just a word not a sentence!!!!
Oh…and my mom sees Dr.Beck at the Tammy Walker Cancer Center here in Salina, KS.
