jeffsmomdad
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We are looking forward to reading your post in the Good News column on Monday. Our thoughts and prayers are with you, Kris.
Bob and Nancy
Jeff’smom&dadMark,
We are so happy to read about your great news! It is very encouraging for us to hear that the “one-two punch” of FOLFOX & radiation has been effective. Dr. Lenz sure knows his stuff.Hope to here more good news in the future.
Jeff and I were so happy to meet you both when Dr. Lenz introduced us! I hope we were not intrusive.
God Bless You & Your Family,
Bob & Nancy
Jeff’smom&dadTiffany,
You are truly blessed! We will continue to keep you and your family in our prayers and will be waiting to hear about more of God’s miracles in your life.
Blessings,
Bob and NancyDear Christine,
Everyone is different. Some people may have favorable results on one chemo regime while others may not. In our case, our son tolerated Taxol very well with few side effects, except for hair loss. Unfortunately, it was not very effective in slowing down his disease process. Then again, neither was cis – gem or oxal & xeloda. Again everyone is different & you may do well with Taxol. We (as most others on this cite) are firm believers in second opinions. Good luck in your journey. God Bless.Bob & Nancy
Jeff’smom&dadDear Matt & Lisa,
We are sorry that you have had to become part of the CC Family. After our son’s CC diagnosis, finding the CC Foundation & Family was the best thing to happen to us.We are happy that liver resection is still a possibility for Lisa. We are also glad that she has been able to tolerate chemo.
Dr. Selby is an excellent physician and surgeon and a caring compassionate man. Our experience with Dr. Selby was a very positive one. We took our son to Dr. Selby who attempted a liver resection when other doctors would not.
Stay strong and keep turning over those stones. God Bless.
Bob & Nancy
jeff’smom&dadDear Pam,
We are so deeply saddened to hear about Lauren’s passing. There are no words. Please accept our deepest sympathy. Please know that our thoughts and prayers are with you and your family.Bob & Nancy
Jeff’s Mom & DadMark,
Nancy checks the site daily and shares the posts with me. It has been a while since we’ve seen a post from you and we were wondering how you were doing. We are so sorry to learn about your bad news.We know you are getting the best medical treatment available. Both Dr. Lenz and Taline were so compassionate and caring with Jeff during our visit to see them. It is truely a blessing to have such great physicians and medical treatment.
You have been an inspiration and comfort to us in our CC journey with Jeff. We want to thank you and we want to let you know that you have touched our lives.
You are absolutely right when you say: “No matter the ultimate outcome, the cancer can’t beat me.” The cancer may invade this body part or that body part but it CANNOT attack your strong spirit! You indicated that you hope that you can live this stage of your life with dignity and integrity. Of this, we have no doubt.
We continue to pray for you and your family. We continue to pray for your wisdom and strength in face of adversity. We feel your wisdom and strength in the face of adversity, even if it is just through a post.
Stay strong Mark.
Bob & Nancy
Jeff’s Mom & DadPam and Lauren,
We are soooo happy that you are now able to have surgery, prayers are being answered. You have so much life to look forward to with your wedding around the corner and a wonderful family to support you. We will be praying for a speedy recovery.
Bob and Nancy
Gerardo,
Our thoughts and prayers are with you and your family on this day.
God Bless You.
Bob & Nancy
Jeff’s Mom &DadHi Julie,
We would just echo what Mark said. In fact, Mark provided us with information about USC and Dr. Rick Selby. We share Mark’s view that USC, in general, took a more aggressive approach to surgery.Our ONC is at UCLA (Dr. Sadeghi). We have had a good experience with both Dr. Sadeghi and his office staff. Our son has been treated at UCLA for years for unrelated urological issues and extensive urological surgery. It was through that connection that we were referred upstairs to Dr. Sammy Saab and then to Dr. Busuttil. Both liver surgeons were very nice and as Mark advised, they are world renown. In our son’s case, they declined surgery. We took Mark’s advice and consulted with Dr. Selby at USC. He was wonderful and did proceed with surgery.
As you know, this is a very aggressive disease. This is certainly true with our son’s situation. In the relatively sort period of time between the initial diagnosis, diagnostic testing and actual performatnce of the surgery, the disease had spread to the point where the liver resection could not be completed, so the surgery was terminated without the resection. We went from hope and elation to disappointment.
However, most importantly, Dr. Selby at USC gave our son the best chance of becomming disease free by agreeing to attempt the surgery. We are very grateful to Dr. Selby who attempted the surgery when others would not.
We did not change our ONC to USC. We were and are happy with Dr. Sadeghi at UCLA. However since our son’s treatment options now appear to be limited to chemo, we are probably going to look for additional opinions, starting with USC.
As Mark said, you are very lucky to live in an area where we have not one, but two wonderful medical institutions with expertise in the treatment of cholangiocarcinoma.
Good Luck and God Bless You, your family and especially your father.
Bob & Nancy
(Jeff’s Mom & Dad)Dear Gerardo,
We know that there is nothing that we can say at this time to ease your pain. We wish there was. Nancy and I are so very sorry for the loss of your loving wife, Ginger. You have both been so supportive for our family in your words, hopes and prayers and we are so grateful to both of you for that.We know from our discussions with Annie that Ginger was surrounded by the love of students, friends and faculty at the school and that she will be missed by all.
God has blessed both of you with each other and many fond and happy memories. It is our hope and prayer that those happy and loving memories will help ease your pain. It is also our hope and prayer that your Faith and knowing that Ginger is with the Lord in a place without pain, without suffering, and without CC ,will help ease your pain.
Gerardo, again, we are so so sorry. Please accept our deepest sympathy.
Love,
Bob & Nancy McCandless
(Jeff’s Mom & Dad)Dear Let’s Live,
I am so glad that you found the CC Family and so sorry that you had to look for us.Nancy and I are relatively new at this also. Our CC saga started with our son who was diagnosed in 8/12. We have consulted and treated with many wonderful, caring and skilled physicians at two well known institutions out here in California. However, by far, the best thing that has happened to us since this journey began was finding the CC Family. In fact, we found some of our physicians through other CC family members and their gift of sharing. I cannot imagine a more loving, caring and supportive group of people.
You will see this as your journey continues and as you continue to explore this website and read these very personal stories. You will find happy stories ans sad stories, successes and some disappointments all of which truely mirror the hills and valleys of this disease. You will find a wealth of information about the disease and the treatment.
Our thoughts and prayers are with you. Stay strong and be brave.
God Bless You.
Bob & Nancy
Jeff’s Mom & DadDear Mark, Let me start by just saying thank you. I cannot tell you how much your posts have meant to us. We are deeply deeply grateful. Your information, guidance and support lead us to Dr. Selby and our best chance against this (explitive deleted) thing. We love you and thank you. You are a light in our lives.
We are so sorry to hear about the bad news.There is never a good time for this, but around holiday season, it’s just plain worse.
It is wonderful to see the love and support for you by the other members of our CC family. PCL1029 has some great information and encouragement with a base of first hand experience that may be helpful for you.
We know you are in good hands with Dr. Selby and his team at USC Keck Med Center and that’s a great place to start. Obviously, he knows your liver better than anyone. He has actually SEEN it!
Our hope and prayer is for your healing and that your surgeons and doctors will be able to provide the best treatment plan possible, be it surgery or RFA or whatever.
God Bless You, Mark. Stay strong and positive. Thank you.
Bob & Nancy
Jeff’s Mom & DadDear Greynosa,
I was happy to read your post yesterday, we have a mutual friend, Annie, she is my sister-in-law and a teacher at the school where you work. I was talking to her yesterday about you and Ginger and come home to find your post…small world! She was going to track you down at work today and ask you to call us. We went to USC on Friday for a second opinion and was very happy with the Drs. there(we are having trt at UCLA now). Dr Selby gave us a ray of hope regarding surgery for our son Jeff, we know its a long shot, but any shot is good. Please feel free to call us (310)370-1317, know that we are praying for you and Ginger and for all the wonderful people on this site. Everyone here is such a blessing to our family. Take care and hope to here from you soon.Nancy
