lisacraine

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Viewing 15 posts - 271 through 285 (of 671 total)
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  • in reply to: Just found out. #75390
    lisacraine
    Spectator

    Welcome,
    I am so sorry you and your husband are going through this but never give up Hope. My husband uses Caring Bridge to keep family and friends updated and also created a group on his cell phone for for text messages. If you would like to talk to so some please give me a call. 330-903-6868.
    Hugs
    Lisa

    in reply to: Got results of 9/4 CT scan #75331
    lisacraine
    Spectator

    Mary,
    So happy to read your good news. Sorry I missed your call. Lets catch up this week.
    Lisa

    in reply to: Wow, I Wish I can Join This Clinical, Will See. #75348
    lisacraine
    Spectator

    Percy,
    Wow…..this sounds so promising. Thank you for always providing the most up to date research.
    Bless you
    Lisa

    lisacraine
    Spectator

    Gavin, Thanks! I just started taking this because Dr. Andrew Weil mentions it can help with chronic hives. I am going on month 7 of hives with no resolution of the problem. Hopefully it will help.
    Hugs
    Lisa

    lisacraine
    Spectator

    Percy,
    Thank you, my last PET scan was denied coverage and I have another scan coming up in September.
    Hugs
    Lisa

    in reply to: All is good! #75233
    lisacraine
    Spectator

    Tiff,
    Fabulous news! Enjoy being normal…….celebrate..have a pumpkin latte…so yummy
    Hugs
    Lisa

    in reply to: New chemo regime and update on my husband #75204
    lisacraine
    Spectator

    Heather , you are amazing. I keep dilaudid on hand but haven’t needed it since my resection. I did have shoulder pain after surgery. I will keep you, Gordon and your family in my prayers.
    Hugs
    Lisa

    in reply to: Haven’t been here in a while . . . . Update on me. #75045
    lisacraine
    Spectator

    Hi Shari,
    I am sorry you have been thrown another obstacle. I agree with what others have said about the cold sensation and and neuropathy, but it does get better!
    This is the best place to let it out because we truly understand so shout it out! And if you want to talk to some one on the phone please call me at 330-903-6868.
    Hugs
    Lisa

    in reply to: modified t-cells #55210
    lisacraine
    Spectator

    I would like to see PDF but I don’t know how to post it either. Can you email it to us?
    Lisa

    in reply to: Introduction… did my first ever post, post? #75192
    lisacraine
    Spectator

    Melonie,
    Welcome to this incredible site full of wonderful people. I didn’t see your post so maybe try again.
    Lisa

    in reply to: Faces of Cholangiocarcinoma #74942
    lisacraine
    Spectator

    I am very excited to see the new website! When I was first diagnosed I googled Cholangiocarcinoma and this website came up. I started moving through the website and clicked on the faces of CC and it was devastating to see that so many lives were lost. I thought I was going to see the people surviving from this disease. Maybe there could be two links one as a memorial page and then another for the faces of CC could be those still here with their story.
    Just an idea.
    Lisa

    in reply to: My husband has passed away #74980
    lisacraine
    Spectator

    Katheryn,
    I am so sorry for your loss and will keep you in my prayers. This is a wonderful organization and I am also grateful for the support from so many caring people.
    Hugs,
    Lisa

    in reply to: Surgery didn’t happen #74907
    lisacraine
    Spectator

    Heather,
    I am so sorry for all you have been through but I am thrilled to see the word Hope and hear of doctors that don’t give up. Sending hugs and prayers.
    Lisa

    in reply to: A Half and Half Result #74838
    lisacraine
    Spectator

    Lainy,
    Praying the new meds work for you and there are no side effects.
    The gift shop sounds much better than the cafeteria.
    Hugs
    Lisa

    in reply to: Intrahepatic Cholangiocarcinoma #74374
    lisacraine
    Spectator

    So happy to read your latest post. Amazing what a couple days of recovery can do. Sounds like your Mom had a pretty good day.
    Hugs
    Lisa

Viewing 15 posts - 271 through 285 (of 671 total)