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ModeratorMark,
So sorry to hear about your Mom. Definitely, search out more opinions in re: to the further treatments as physicians vary greatly in their approaches of combating this cancer. Gather everything pertaining to her diagnoses, scans, physicianmarions
ModeratorChristina,
There is so much great news in your posting that it is difficult for me although, not impossible, to be worrying with you. Reactions to chemo vary from being horribly ill to feeling o.k. Just happy to know for Chucks to be feeling as well as he is with plenty of good appetite for food. Keep the good news coming this way.
MarionJuly 25, 2008 at 12:17 am in reply to: Recovery from liver resection and time to next chemos? #21063marions
ModeratorJoyce,
Post resection, my husband stayed in the Hospital for 3 more weeks. During this time we concentrated on his breathing deepmarions
ModeratorBelle, my heart goes out to your sister, you and your entire family. the vomiting can be relentless and can cause the throat to be very sore. I am sure that Hospice it aware of this and will take put in action anything possible for your sister to make her comfortable.
Sending all my love
Marionmarions
ModeratorHeather,
Could you tell us the name of the chemotherapy drugs?
Marionmarions
ModeratorChrissy,
Although, I am constantly teasing Jeff about his dietary habits not falling into the “realm” of what is perceived to be a healty diet and he loves to rub it in, he does seem to have success with keeping his weight stable. Whole tub of ice cream …sounds good to me. That is of course, if Chuck can handle the high fat content. So glad for you to have found an oncologist who is willing to fight along with you.
Marionmarions
ModeratorAlice,
so glad for things to have worked out and one of your worries has been eliminated.
Don’t forget to take a breather,
Marionmarions
ModeratorJoyce,
so glad to hear for everything to have worked out so well.
Hugs to you and Butch,
Marionmarions
ModeratorCharlene,
So many dynamics going on!
Years ago, when one of my children was critically ill and six physicians were in disagreement in re: to treatment, it was the surgeon making a profound statement:marions
ModeratorIris,
We all are here for each other please, feel free and share your feelings. Seeing the specialist might give you some more answers, tomorrow. Looking forward to hearing all about it.
Sending good wishes your way,
Marionmarions
ModeratorIris,
tried to see in your previous postings whether you have mentioned anything in re: to stents. Does Peter have stents for the purpose of draining the bile? Also, is he taken any chemo drugs?
MarionsJuly 16, 2008 at 4:15 am in reply to: inoperable cholangiocarcinoma–how long can you survive?! #20891marions
ModeratorSophie,
what you are experiencing now is no different for you then it is for everyone else. It is a major disappointment and you are bound to feel discouraged making it so alright for you to vent – this is the place to do so. I am sure for others to be telling you plenty of their own stories which will not differ much from yours. Also, we have the good fortune of having Dr. Giles on this site whom you might want to send a note to. In fact, when my husband was diagnosed everyone in my family talked to a therapist, individually. We needed to share our emotions and it had to be someone we felt absolutely safe with. Sophie, reach out. We are here and possibly there are many more people out there wanting to be of help to you. Sometimes, people don’t know what to say: so, you might have to express some of your wishes to others.
Hoping for you to get some rest and awaiting to hear all about the surgeon’s report.
Hugs
MarionsJuly 16, 2008 at 1:37 am in reply to: inoperable cholangiocarcinoma–how long can you survive?! #20887marions
ModeratorSophie,
absolutely, gather your records, Ct. scans and everything and anything pertaining to your diagnoses (including physicians notes) and send it to another surgeon or, if possible, two more. As you may have noticed many have been able to have a resection although, being rejected by someone prior. Certainly, you would want to rule this out before proceeding onward.
So glad your fighting spirit is back.
Hugs
Marionmarions
ModeratorIrene,
there are many other physicians having performed resection who are not listed as being affiliated with a major cancer centers. You will do well by contacting Dr. Jenkins at the Lahey clinic as he has perfomed many CC surgeries. Also, Peter’s resection was performed by Dr. Jenkins, and there are others. Please, let me know if I can be of any help contacting him.
Marionsmarions
ModeratorAlice,
How is John feeling? Have you thought of gathering another opinion?
In re: to hospice: your primary care physician should be making this call on your behalf, to order the services.
Hospice, is in many instances although, not always, free of charge. You might want to get in touch with the local chapter in re: to this and continue calling around to find out if there is one close to you.
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