marylloyd

Sue,
Thank-you for the good news. We always appreciate hearing it. Best of luck for continued good health!!! Mary

Dear Tess,
I’m very sorry to hear that your Dad lost his battle. He is at peace now and you will have a guardian angel watching over you. He truly appreciated all that you did for him even though he couldn’t say it. You are a very special daughter and I know you tried very hard to do what was best for him. Take care of yourself and know that you are in our thoughts and prayers. Hugs to you and your family. Mary

I’m sorry Magic that you are having such a tough time. I know I would be in the same shape as you if I am ever in your shoes. When my husband originally became so ill that we thought he would be gone quickly I really felt that I could carry on and be able to manage financially etc if he were gone. He is still doing well after almost 3 years and now I am petrified about what I would do if he were gone.I guess reality has set in and I know I would have a terrible time with EVERYTHING!! WE have a farm and an old house and a small greenhouse and produce business and a son with mental and financial issues and another that wanders the world continuosly and I really can’t imagine dealing with all of it alone either. I just keep praying I won’t have to for a long time and I really hope things work out for you. Do you have anyone you can turn to for some help with things? I always envy people that have children close that are willing and able to help. Everyone is so busy that it’s hard to ask sometimes. I would get some medication if you you can, at least temporarily. A lot of people on here do and it really seems to help them cope. Take care and feel free to vent here. Everyone understands what you are going through and feeling! Mary

Ashlea,
I am really surprised any surgeon would agree to do such a major surgery with your Dad in the condition that he is. It’s interesting because we have had several non-surgical Drs. comment about my husband’s surgeon being very thoughtful and not overly aggressive like some others they know of. I guess they feel that there are surgeons that will operate regardless of the consequences if that’s what the patient wants. I don’t really know how to counsel you. My husband needed shoulder surgery 2 years ago and one surgeon pretty much came out and asked(after being told about my husbands diagnosis) whether he really wanted to go through all of the rehab etc if he had a limited amount of time to enjoy life.He went ahead and had the surgery and has done great but he was in good shape when he had it done. Your Dad doesn’t seem to be at all. I’m sorry Ashlea. I can’t imagine all of you young people having to go through this worry and heart ache with your parents. I wish you the best. I guess it will ultimately be your Dad’s decision. If you can I would just somehow make sure these surgeons are aware of your Dad’s condition. Take care, Mary

Hi Tess,
I would be concerned that the drain is plugged or dislodged. The Drs. should check that out right away. It seems like a lot of people here have Drs. who don’t get too concerned about rising bili levels or jaundice but my husbands Drs always jumped right in to find out what was going on. They have never left him waiting ,in fact have even had him admitted at times if that meant things would progress faster. I have always been grateful for that and I think that is a big part of the reason he has done so well. It is very hard on the body to suffer increased bilirubin levels. I hope things get straightened out soon for your Dad. Best wishes. Mary

Hans/Kris,
So sorry for this setback- but that’s all it is. Kris you are young and strong and can keep up the fight. All of our prayers and positive thoughts are sent your way!! Mary

Hi Vincent,
That is bery puzzling because her bili should be coming down. That exact thing happened to my husband last Oct. He went in to have a stent put in (plastic) and his bili was 3.4. Four days later he was extremely ill and admitted to the hospital with his bili at 9+. The stent had slipped out of place and was actually blocking the ducts. I would definitely question your Dr about that.I don’t know any thing about metal stents. We’ve always dealt with plastic and will continue to do so. I hope they clear up whatever is going wrong because your Mom could get pretty sick if they don’t.I’m actually surprised they are going ahead with chemo. I believe most people on here have had to wait for the bili to come down before they are given chemo.It seems like that would put a lot of stress on her body. I’m sorry you are having ro deal with all of this. It must be very hard for you and your Mom. It gets hard for me to deal with sometimes and I’m 52 so I can’t imagine what you are going through, but your are a wonderful son! Take care and best wishes for your Mom. Hopefully things will clear up soon!
Mary