mbachini

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  • September 5, 2015 at 3:00 am in reply to: Gemcitabine only-No more Oxaliplatin What to expect? #89467
    mbachini
    Moderator

    SGM,
    I did Taxotere after that for about 6 months before it failed as well…..Please keep us posted on your dad’s progress, and keep the Blizzards coming!!
    Melinda

    September 5, 2015 at 2:50 am in reply to: Update on LY2801653 clinical trial #79290
    mbachini
    Moderator

    Kris,
    Hang in there and get that unruly little lymph node back in check!! Scanxiety….no escape! You got this, sending hugs and prayers your way!
    Melinda

    September 5, 2015 at 2:45 am in reply to: MEK 162 #88642
    mbachini
    Moderator

    Diane,
    Congratulations on 20% shrinkage! That is awesome news, keep up the good work!! So happy to hear positive results and thank you so much for participating in this trial.
    Melinda

    September 5, 2015 at 2:08 am in reply to: Advocacy, Public Policy and the Cholangiocarcinoma Foundation #89554
    mbachini
    Moderator

    Great work Marion! I wanted to let you know that I also met with my state (Montana) representative’s office. It was a great meeting! I should have got a picture. I also had phone meetings with the senator’s office. ONE step at a time!
    Melinda

    August 23, 2015 at 5:47 am in reply to: Can you pray for my family ? #89350
    mbachini
    Moderator

    Praying for you and your family! Hoping for good results, please keep us posted.
    Melinda

    August 23, 2015 at 5:33 am in reply to: Gemcitabine only-No more Oxaliplatin What to expect? #89463
    mbachini
    Moderator

    Dear SGM,

    I did Gem/Cis combo and also ended up with severe neuropathy in my feet and hands. I stopped the Cisplatnin and did the Gemcitabine alone and unfortunately my tumors grew. I know that we all respond differently but wanted to share my experience with you.
    Melinda

    August 23, 2015 at 5:00 am in reply to: Update on NIH Trial #78770
    mbachini
    Moderator

    Dear Steven,

    I am so sorry to hear about your mother, and will keep her in my prayers. I hope that the FOLFOX will do some damage to those tumors, without causing her too much havoc.

    Unfortunately, at this time it is true that the trial I am in has not had any responders as successful as the response I have had. They learn from all, and continue to perfect and work around the clock to find more ways to utilize the immunotherapy response. I will let everyone know of any further information that I get from other patients as well as my trial team. …..though I still believe that the number of patients is not really that high and with more patients they will eventually find more responders. I will try and get more factual data and post when I do. In the meantime we keep looking and fighting for what ever new treatments we can. Research is so important for this disease and progress is being made….just never fast enough.

    All my best to you and your mother,
    Melinda

    August 9, 2015 at 11:28 pm in reply to: Dad can have PIPAC!! #89314
    mbachini
    Moderator

    Katia,

    This sounds very interesting, looking forward to hearing of you dad’s progress and how this all works. Way to advocate for you father! I love hearing these kind of stories! Please keep us updated and sending good thoughts and prayers!

    Melinda

    August 9, 2015 at 11:14 pm in reply to: inoperable, but clean scan at 15 months (now 39 months) #86193
    mbachini
    Moderator

    Catherine,

    Wonderful news!!! So happy for you and your mom! Send her my best, and tell her to keep on keeping on!!

    Melinda

    August 5, 2015 at 3:25 am in reply to: Finally ready to talk about my CC #88704
    mbachini
    Moderator

    Kathy,

    What a story you have to tell! I am so happy you were able to have a resection and get rid of that 20lb tumor!! Sending good thoughts and prayers for your chemo tolerance to be a walk in the park. Hang in there and keep us updated on your progress.

    Melinda

    August 5, 2015 at 2:59 am in reply to: Newby in Richmond VA, travels to MSKCC #88468
    mbachini
    Moderator

    Oh how I love all these connections being made! You go girls!

    August 5, 2015 at 2:41 am in reply to: Final Update #89229
    mbachini
    Moderator

    Dear Alex,

    I am sorry for the loss of your father. Sending prayers for peace, strength and comfort for you and your family…..all my best to you.
    Melinda

    August 5, 2015 at 2:37 am in reply to: Update #89178
    mbachini
    Moderator

    Dear Chuck’s daughter,

    Sending prayers to Duke….wrapped in hugs, blessings and much gratitude for all he has given to the great people of this site. We love you Duke!
    Melinda

    August 5, 2015 at 2:22 am in reply to: New Dx: MD Anderson vs. Cleveland Clinic & First Questions to Ask #88879
    mbachini
    Moderator

    Sarah,

    Great news on your FIL! Surgery is what we like to hear. I just wanted to say how much I admire all the research and the approach you took to his care. Way to be proactive and make things happen. Please keep us updated on his progress! Hugs and prayers to you and your family.
    Melinda

    August 5, 2015 at 12:15 am in reply to: Update on NIH Trial #78768
    mbachini
    Moderator

    So happy to see Dr. Rosenberg recognized for his amazing work. He is by far the most humble person I have ever met.

    Thanks Julie…..I would like nothing more than to be posting more great results!! Soon, I hope.

    Melinda

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