nancy246

Dear Peggy, It is with sorrow that I read your post. John and yourself put up a tremendous fight and he surely beat the odds with living 4 years. I am also so sorry to hear that John did not leave peacefully. I hope you can find some peace knowing that he is no longer suffering. Your right, he will be in your heart forever! Much love sent to you and your children. I wish I could ease your pain. Hugs. Nancy

Dear Peony, I have known someone that had one and it worked well. Your doctor must think your husband is well enough to implant one. I have also known people to have medication pumped in via a pic line and the pump sits around your waist in a fanny pack (or while lying down you can hang it on a pole). I had one before but it was to pump antibiotics in me after I went septic.
Did your husband ever have radiation to his spine mets? My husband had spine mets and radiation helped with the pain (though it took a couple of months). I feel for you and your husband; it is so hard to be in so much pain and to see someone in such pain. Sending lots of positive thoughts and hugs for a pain free solution! Nancy

Hi Tiff, What wonderful news and how blessed you are to have such a rare doctor who obviously cares deeply enough for every patient to answer emails!
As for all you guys out there with hot, dry weather please send some to BC where we have been deluged with rain causing floods, highway closures and destruction. Hugs and love, Nancy

Hi Kim, Yes thank you for supporting the foundation. Although cc is still considered a rare disease it seems to be becoming more common; hence you now know your second person with this disease. I am in British Columbia so can’t help in your search for centers or doctors but I am sure others will have suggestions. Wishing you and your friend all the best. Nancy

Hi, I understand your shock and grief. Did they say if the cancer cleared from the lymph nodes your mom could be a candidate for resection? CC has it’s common symptoms and complications but it is individual when it comes to response to treatment. It seems the most common drugs used are gemcitabine and cisplatin, but as you will see on this board many other concoctions have been used as well. Some respond to to one type of chemo , some to others. There have been some to have enough success with chemo to qualify for a resection, that is why I would question about that. Sounds like your mom has half the battle won with her attitude. Stay strong, there have been battles won and there are many on here that the chemo is keeping the disease at bay. Sending you positive thoughts for a positive response to chemo for your mom. Nancy

Hi CM, It’s been 9 months for me. On Father’s day my daughter Tamia, my dog Maggie, and I took Doug ( in a little urn that has the few remaining ashes that were not scattered) for a walk over our new foot/ bicycle bridge that was finished just weeks after Doug’s passing. We had been watching the progress and Doug so wanted to see it finished (he was an avid bicyclist).
I understand why you say you miss David more than ever. I find even though the intense grief has settled, I miss Doug more and more. Maybe because it is becoming more real?
I love your poem Lainy and can relate to sooo much of it. How beautiful. Thank you for sharing.
Deb, I know what you mean about friends and family. I mean, we really want them to go back to their lives and enjoy and be happy but they really don’t understand how we feel unless they have been there. That is why this board is so great because those here understand our pain and they understand cc.
Love to you all. Nancy

Lisa, Saw your pictures on Pam’s blog. You look wonderful! Sending lots of positive wishes for a great scan. Hugs. Nancy

Congratulations Randi! I love reading good news! It does give everyone hope and hope is what we live with. Now relax and enjoy! Life is good. Hugs. Nancy