ronidinkes
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Good Afternoon,
When is time to say enough? That is an individual question, that only the person with the disease; can answer.
I know how you feel, as I wanted my mother to do all sorts of chemotherapy and she was 100% against it, until November 2011, then she did 2 treatments and stopped.
She is now at home, we have full-time live in help – so she does not have to have a rotating hospice nurse, or go into a hospice center.
Try to enjoy each day you have with your dad, each moment is precious. If you ever need to talk please send me an email.
Sending hugs,
Roni
ronidinkes@yahoo.comDear TJ,
My mother just started home hospice within the last few weeks. It has been a challenging time for me and my family. I am here sending tons of love and hugs your way. If you need anything please let me know.
Hugs,
Roni
ronidinkes@yahoo.comThank you everyone for your support and love.
Mom is on dilaudid 4mg a couple of times a day, and medication for nausea, liquid morphine as need for break-through and g-d knows what else.
We call this “new” situation “pain management” not “hospice.”
Mom slept well last night and is meeting with the pain management/nurse today at home.
I hope to visit/drive up tomorrow.
Will keep you posted.
Your unconditional love and support has not only helped me through this difficult and painfull process but, continues to be the backbone of my strength at this time.
Off to see patients.
Everyone have a wonderful and safe weekend
We are at $8930.57. I am doing my best to get people to donate.
Hugs,
RoniWe have full-time 24/7 medical assistance.
Not a nurse, mom creates her own potions…and combinations….
The pain is growing rapidly and I think Hospice will help control that.
I really though I had no more tears, but much to my surprise, I still have many.
I am so thankful to be apart of this family.
Thank you for always being there to listen, for your unconditional support and love.
I will keep in touch, promise!
Regards,
Roni
443-394-6163
ronidinkes@yahoo.comDear LeeAnn,
Keep us posted.
My mother had the Whipple August 2010. She is still here and fighting each day.
She did not have chemotherapy, but she did radiation.
Stay in touch. Sending tons of love your way.
Regards,
RoniLainy,
Hi!
So nice to talk!
Funny my daughter started this whole I love you thing….my daughter hannah signs her camp letters…..I love you “most-est”, forever, till the cows come home, to infinity and beyond….etc.
She always laughs because, I forget many of the words when saying/ writing it.
I am so thankful for this website connecting people all over the world.
This website really guides, helps, listens, laughs, and has a genuine beautiful spirit with wonderful people supporting one another.
Thank you all, will keep you posted on mom.
Warmest regards,
RoniDear Maria,
I am so sorry to hear of the loss of your mother.
I am however so happy, you were able to hold her close and secure, and be there for her in that very special moment when she passed.
My mother is 18 months status post her whipple and diagnosis, she is 89 pounds, intermittently lucid, is slowly losing control of her bowels, and her bile duct is already re-occluding…but not enough per physician to re-stent.
Sometimes she forgets days, times, etc. It makes me sad because she was as sharp as a tack! She keeps asking how the people who make it 5 year are feeling? I fear she will forget me? Her Grandchildren etc.
We always talk at night, before we get off the phone she says: Where do you want to meet? Usually she responds with Paris, Top of the Eiffel Tower, recently she has said the middle of the ocean. Then I say I love you, and she says “I love you MORE” just kills me.
I know time is fast approaching, She is in New York, I am in Maryland, and I find this choking lump in my throat called hysterical fear, and then tears comes to my eyes.
I re-joined my temple, went alone last night, needed to feel grounded, a sense of belonging, around people….it helped.
Please stay in touch and if you need anything you can find me on facebook or email.
Warm Regards,
Roni Dinkes
Ronidinkes@yahoo.comDear Eli,
My husband’s best friend lives near the thousand islands. My mother had a whipple also with a very difficult recovery. My mother just turned 66.
She was diagnosed 8-2010. She was given 1 year or less to live. She is still fighting 12-2011.
She had 2 out of 27 lymph nodes come back positive. Therefore, we went from thinking we got it all to stage 4. Once this disease is out of the box, it a tough.
It is very hard on both the patient, family, kids, and caregivers. Enjoy each day, be strong, knowledge is power.
Wishing you and your family a happy holiday season, many smile and many hugs. If you ever need anything please feel free to email: ronidinkes@yahoo.com
Warm Regards,
RoniDear Becky,
Sending TONS of love your way.
My mother is in this stage as well. My mother is 90 pounds or less, and is eating less and less every day. We have round the clock care, as she refuses hospice. She is taking percocets, dialuadid, and xanax every 4 hours. She is spending more and more time in bed, and is growing weaker by the day. We are hoping she makes it to Thanksgiving. Just praying she will make it. Everyone is stressed out, worried, anxious, and angry. Just trying to take it day to day. I try to call a couple of times a day…..which I know is driving her crazy. Please stay in touch and know I am thinking of you.
Regards
Roni dinkes
ronidinkes@yahoo.comThank you for listening
Mom is a pistol, always has been, she says “if you cannot laugh in a sad situation all you will do is cry, therefore it is better to laugh, joke, and make light of things, she says you cannot take life to seriously.” She really is 1 tough cookie, I hope I have 1/2 the strength she has; to be strong and continue forward with a positive attitude. Time feels so short sometimes, and although I try to be prepare for what is coming, I fear I will fall apart. Thanks for always being there to support me and listen to me.
Regards,
Roni
ronidinkes@yahoo.comPraying for you and your father. Know that we are all thinking of you!
Sending tons of hugs,
Roni
ronidinkes@yahoo.comThinking of you, keep us posted on your test results!
Sending tons of love your way.
-roni
ronidinkes@yahoo.comthanks marion,
her physician did offer her chemo now, i think it is crazy, but true. she has been a the hospital all day in new york, i feel terrible as i have been at work all day seeing patients myself in maryland, therefore i am not physically there. i am doing my best, sometimes i feel like it wil lnever be enough and maybe she will never know jus thow much i love her. but i try and tell her several times a day. i appreciate your kind words marion, they do make me smile
hugs,
RoniDear Nancy,
You are not alone. I am in the same position with my mother. My mother is terrified of hospice. Wont even consider it. The doctor just gave her 6 month-ish…Is palliative care the same as hospice, just a nicer word? I think palliative care and support would help my mother, but am not sure what criteria you need to meet to utilize the service? I hope your mother’s pain is getting a bit better and I am glad you can be by her side holding her hand. She is very lucky to have you. Am here if you ever need to talk.
Hugs,
Roni
ronidinkes@yahoo.com
