ronidinkes
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ronidinkesMemberronidinkesMember
anyone every try this?
http://www.sirtex.com/content.cfm?sec=usa&ID=usaronidinkesMemberronidinkesMemberMy mother had the same situation and was diagnosed with CC August 10.
She had 27 lymph nodes taken – 2 came back positive. She has decided against chemo at this time. She feels good and is enjoying her life.October 24, 2010 at 11:53 pm in reply to: Now 1 day over life expectancy and doing just fine! #42431ronidinkesMemberKeep up the positive spirits!
no one is time stamped with an expiration date. I hate when doctors do that.
Remember how special you are, keep me posted on how you are doing?
ronidinkes@yahoo.com
or on facebookRegards,
ronironidinkesMemberI want to have a CC month…and dedicate it to CC. how do we do this for awareness…..
ronidinkesMembermhelton, please feel free to call my mother to ask any questions you may have her name is susan dinkes 516-764-1647.
ronidinkesMemberMy mother’s only issue was itching. She had an ERCP, it went well.
I would suggest and EUS, CT and PET scan. My mother’s scan were all NEGATIVE and shockingly after the whipple at johns hopkins with dr. schulick
the pathology came back Cholangiocarcinoma stage 4. it has not been an easy couple of months. keep me posted, i am on facebook or you can email me
sending many hugs your way.
ronidinkes@yahoo.comronidinkesMemberTina, I am sorry to hear your news. I feel your pain and anxiety. my mother was diagnosed in August 2010. My mother has decided against chemo at this time. She is still recovering from her whipple surgery in August. stay in touch, sending much love your way.
Regards,
ronidinkes@yahoo.comronidinkesMembersending many hugs your way. am coping as a caregiver with you!
ronidinkesMembermy mother was just diangosed as well, stage 4 in august. she has opted to not have chemo at this time. she is happy with her decision, it is her life and her body, and she is doing well status post her whipple. we take one day at a time. keep me posted, sending many hugs, and best wishes.
roni dinkes (ronidinkes@yahoo.com)
(you can find me on facebook)ronidinkesMembermy mother age 65, was just given < 1 year to live, i find my self hysterical and crying most of the time, especially when i take showers, or after i talk to her on the phone, thinking about not being able to call, i am very bad when i drive home from work, and evenings just kill me…i am turning 40 in october, and just cancelled my party, i just do not feel like celebrating, everyone looking at me all happy, and i would just be crying….i cannot cope…..i start yelling at my family for no reason, and all i want to do is sleep. any good books to read please pass them along to help me get through this journey, and enjoy the time i have left. mom lives in ny and i live in maryland will just adds to my guilt….
ronidinkesMemberam thinking about you, said a prayer for you, and am keeping fingers and toes crossed for a positive outcome! be brave, and we look forward to hearing from you when you are feeling bettter
lots of love,
roni dinkesronidinkesMemberyou can try Dr. Zoe Golberg at Memorial Sloan Kettering, I would suggest hopkins 410-955-5000 call first thing in the morning. They are wonderful people.
My thoughts and prayers are with you, as well cancer centers of america in phili is awesome!
Sending many hugs your way.
roni dinkesronidinkesMemberI have heard of avastin, it is not standard “protocal” but if you can get it covered, I say try it because you NEVER know!!!! it could work! keep me posted!
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