ronidinkes

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Viewing 15 posts - 106 through 120 (of 137 total)
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  • in reply to: Any treatment that works? Please help #27473
    ronidinkes
    Member
    in reply to: Teddy Boy —not doing well #43713
    ronidinkes
    Member
    in reply to: Any bile duct specific cancer survivors out there? #43751
    ronidinkes
    Member
    in reply to: New here. Intro and questions. #43858
    ronidinkes
    Member

    My mother had the same situation and was diagnosed with CC August 10.
    She had 27 lymph nodes taken – 2 came back positive. She has decided against chemo at this time. She feels good and is enjoying her life.

    in reply to: Now 1 day over life expectancy and doing just fine! #42431
    ronidinkes
    Member

    Keep up the positive spirits!

    no one is time stamped with an expiration date. I hate when doctors do that.

    Remember how special you are, keep me posted on how you are doing?
    ronidinkes@yahoo.com
    or on facebook

    Regards,
    roni

    in reply to: Do you have Pink Ribbon Fatigue? #43187
    ronidinkes
    Member

    I want to have a CC month…and dedicate it to CC. how do we do this for awareness…..

    in reply to: just diagonosed and need help with questions #41599
    ronidinkes
    Member

    mhelton, please feel free to call my mother to ask any questions you may have her name is susan dinkes 516-764-1647.

    in reply to: just diagonosed and need help with questions #41598
    ronidinkes
    Member

    My mother’s only issue was itching. She had an ERCP, it went well.
    I would suggest and EUS, CT and PET scan. My mother’s scan were all NEGATIVE and shockingly after the whipple at johns hopkins with dr. schulick
    the pathology came back Cholangiocarcinoma stage 4. it has not been an easy couple of months. keep me posted, i am on facebook or you can email me
    sending many hugs your way.
    ronidinkes@yahoo.com

    in reply to: Hi! – new member #42943
    ronidinkes
    Member

    Tina, I am sorry to hear your news. I feel your pain and anxiety. my mother was diagnosed in August 2010. My mother has decided against chemo at this time. She is still recovering from her whipple surgery in August. stay in touch, sending much love your way.
    Regards,
    ronidinkes@yahoo.com

    in reply to: Introduction for my Dad~ #43257
    ronidinkes
    Member

    sending many hugs your way. am coping as a caregiver with you!

    in reply to: CC & my dad #43275
    ronidinkes
    Member

    my mother was just diangosed as well, stage 4 in august. she has opted to not have chemo at this time. she is happy with her decision, it is her life and her body, and she is doing well status post her whipple. we take one day at a time. keep me posted, sending many hugs, and best wishes.
    roni dinkes (ronidinkes@yahoo.com)
    (you can find me on facebook)

    in reply to: Grieving in advance? #41081
    ronidinkes
    Member

    my mother age 65, was just given < 1 year to live, i find my self hysterical and crying most of the time, especially when i take showers, or after i talk to her on the phone, thinking about not being able to call, i am very bad when i drive home from work, and evenings just kill me…i am turning 40 in october, and just cancelled my party, i just do not feel like celebrating, everyone looking at me all happy, and i would just be crying….i cannot cope…..i start yelling at my family for no reason, and all i want to do is sleep. any good books to read please pass them along to help me get through this journey, and enjoy the time i have left. mom lives in ny and i live in maryland will just adds to my guilt….

    in reply to: Off to the hospital #41958
    ronidinkes
    Member

    am thinking about you, said a prayer for you, and am keeping fingers and toes crossed for a positive outcome! be brave, and we look forward to hearing from you when you are feeling bettter :)
    lots of love,
    roni dinkes

    in reply to: Told today that my dad is in end-state #41988
    ronidinkes
    Member

    you can try Dr. Zoe Golberg at Memorial Sloan Kettering, I would suggest hopkins 410-955-5000 call first thing in the morning. They are wonderful people.
    My thoughts and prayers are with you, as well cancer centers of america in phili is awesome!
    Sending many hugs your way.
    roni dinkes

    in reply to: 43 Year Old Wife and Mother with Stage 4 CC #41769
    ronidinkes
    Member

    I have heard of avastin, it is not standard “protocal” but if you can get it covered, I say try it because you NEVER know!!!! it could work! keep me posted!

Viewing 15 posts - 106 through 120 (of 137 total)