tedpatty

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  • in reply to: My beautiful Patty is at rest #17987
    tedpatty
    Member

    Here is the website to Patty’s tribute
    Ted

    http://videos.lifetributes.com/?id=13054#

    in reply to: My beautiful Patty is at rest #17986
    tedpatty
    Member

    Cathy and Gerry and all my wonderful family here. Patty died three weeks ago today and it seems like three years. My heart aches beyond words for my beautiful love. Patty use to say that God always brings something good from things that seem so terrible at the time. I reminded her how much of a spiritual inspiration she was to everyone that she came in contact with. Through our post, I tried to convey the wonderful strength she was to me and the strength she immulated to all around her. I believe that this was the good that has come from her experience as she knew that we would all meet again. Through it all, she always had that beautiful smile. This year, Christmas is a difficult time for me. Every carol I hear and every Christmas tree I see remnds me of the wonderful times we had at Christmas but I am still drawing strength from her memory and the strength that she had right up until the end. I hope you all have gone to the website that has such a wonderful tribute to my dear sweet Patty. It will only be there for a few more days. She loved you all as I do also. I am wishing all of you a wonderful Christmas. Hold your loved ones close.

    Patty’s Song

    A life is like a song we write

    In our own tone and key,

    Each life we touch reflects a note

    That forms the melody.

    We choose the theme and chorus

    Of the song to bear our name.

    And each will have a special sound,

    No two can be the same.

    So when someone we love departs,

    In memory we find

    Their song plays on within the hearts

    Of those they leave behind.

    And when I hear the sweet birds call,

    Or the whispering of the breeze.

    I know that Patty’s sweet song of love,

    Is whispering her love song to me.

    Ted

    in reply to: My beautiful Patty is at rest #17978
    tedpatty
    Member

    Dear loved ones,
    Today I was alone most of the day with my thoughts and my memories of my precious Patty. The memorial service was beautiful. It was a service that Patty would have been very proud of. I miss her so much already. She is everywhere I look. She is present in every thought. I hear her soft voice telling me that she loved me. I know that time will bring healing. I know that all of you that grew to love her will miss her also and if I shed a tear once in a while when I talk about her, I know that you will understand. Your Prayers and love will always be with me also. Thank you all for being a part of mine and Patty’s life.
    Love and God Bless,
    Ted (and Patty)

    To see a beautiful tribute to Patty, please go to the the link below. It will be on the website for 28 days from this date.
    http://videos.lifetributes.com/?id=13054#

    in reply to: Grape seed extract #17895
    tedpatty
    Member

    Dear UK Wife,
    Your Husband’s experience struck a chord with Patty and I. It has been almost a year now since Patty was diagnosed with cc. She decided to not have any chemo either. We studied a lot of the alternative supplements that are out there and Patty has been on IP-6 and AHCC and several mushroom extracts. Also she drinks fresh carrot juice. We are about to start on another supplement. It is called Avemar. It has some good reports. Her tumour has been contained and several CT scans have shown that there is no mets. We wish the best for your husband as we fight this cc battle together.
    Ted and Patty

    in reply to: Patty is in the Hospital #16957
    tedpatty
    Member

    Dear ones,
    Patty is home now and in the care of Hospice. We are so thankful for them. Now the ascites fluid has been building and they drew off 3 liters last week.
    Today we are thankful for this day, this minute. We tell each other all the time that we have this minute, right now and we thank the Lord for this minute. Patty is weak and eats very little. She has nausea a lot of the time. On the good side, she is able to get up and walk around some and her eyes and that smile are as beautiful as always. She had a really great surprise birthday party Sunday with a cake and candles and a Balloon that sings happy birthday and friends that came over. Thank you for all your birthday wishes.
    Hospice is now on an “as needed” basis. They have been so wonderful. All of you have been so compassionate and loving beyond words. We believe that your prayers are sustaining us. We keep reminding ourselves of that beautiful day when we will all be exclaiming our praises for our Dear Redeemer and Saviour as we make the journey with all the angels on our way to Heaven. We get so homesick for Heaven and as the song says, “We Have Finally Made it Home”. We love you all.
    Love and God Bless,
    Ted and Patty

    in reply to: Patty is in the Hospital #16955
    tedpatty
    Member

    Dear caring loved ones,
    I just want to send an update on Patty. She is still in the hospital and not doing well. She is weak and only gets up for the bedside potty. She has several infections and low potassium and albumin and total Protein. She still has not eaten anything and is living on the IV TPN and Lipids. She did take a few sips of apple juice this evening and kept it down. Dr. Gurino told us today that she could come home anytime she wants to, in the care of hospice. Dear ones, when the way seems the darkest, we are finding strength from the light of God’s love. Heaven is not an alternative, it is everything.
    Love and God Bless,
    Ted and Patty

    in reply to: Patty is in the Hospital #16951
    tedpatty
    Member

    Dear caring loved ones,
    I just left Patty a few minutes ago. Her surgery went well without complications. She was resting comfortably, with the help of pain medication. She was in surgery three hours. The doc said he felt good about the outcome of the surgery. She was coming out of the anethesia pretty well when I left. He said she still won’t be able to eat for several days and might be in the hospital until the beginning of next week. Your love and prayers and support are continuing to help see us through Yet another crises
    Love and God Bless,
    Ted (and Patty)

    in reply to: Husband of 45 years passed away #16803
    tedpatty
    Member

    Dear LD,
    It is so sad to read of one of our “friends” losing the war with this terrible desease. Patty and I count each day that we have together, as a blessing from the Lord. She too, was diagnosed in Feb. She has been getting weaker and it breaks my heart to see her going down hill. LD, there is one bright spot that we, as Christians have. It is the belief that someday we will be together again with our loved ones and live throughout eternity with them where there will be no cc or any other cancer to rob us of our loved ones. Our prayers are with you and your family during your time of sorrow.
    Ted and Patty

    tedpatty
    Member

    Dear Lisa,
    There is one thing for sure, you are among friends here. Friends that understand and care about what you are going through right now. My dear wife, Patty, was diagnosed in Febuary and we have been living “one day at a time”. She is 61 years old. For the first three months, she experienced much of the same things that your dad is going through right now…… unsucessful surgery, nausea, loss of weight. I thought, several times, that I was going to lose her during that first three months. I am happy to tell you that there is still hope that your dad will have some good quality time if he can get the symptoms under control. Patty had the stents placed in march and she began a gradual but steady improvement in her overall health. She decided right from the beginning that she would not have any chemo or radiation. She wanted quality of life rather than quantity of life. I have been behind her completely in her decision. For the last four months her overall labwork has been excellent, except for her CA19-9 which has been steadily climbing. She is on IP-6 and AHCC plus other supplements and lots of carrot juice. We have been enjoying doing regular activities such as eating out and going to church regularly. She has not been to a doctor since March as we would just rather “take it as it comes”.
    I tell you all of this just to let you know that it is possible that your dad could have some good time ahead. Enjoy each moment with him and thank God for those moments. Patty and I put our complete trust in God and know that he is in control. We know where our eternal life will be together.
    Take hope LIse and our prayers are with you.

    Ted and Patty

    in reply to: My dad just diagnosed #16412
    tedpatty
    Member

    Rae,
    Patty was diagnosed Feb 2, 2007. Unresectable CC. From the very beginning, she was against chemo or radiation. Stents were placed in march and since that time, Patty has not been to a doctor nor had any scans or even talked to any medical professionals about her CC. She does not want to know what is happening. She takes lots of supplements including AHCC and IP-6 and lots of carrot juice. She is a vegan vegetarian. She has regained all of her weight and feels well and has a good quality of life. We depend heavily on God for our strength for we do not know what may lie around the next bend in the cancer road. I am a lab tech and I run lab tests on her once a month. They all seem to be improving. Where there is life there is hope. Each person that is fighting this terrible desease must make their own decision as to go with chemo or not. I believe Patty has made the right choice. WE ARE ENJOYING Life and that is what matters. Our prayers are with you.
    Ted and Patty

    in reply to: For those using AHCC #16419
    tedpatty
    Member

    Abigail,
    Patty has been taking 3 grams of AHCC per day. Yes, the healthfood stores are expensive. We found a place that we get all of our supplements, including IP-6. You might want to research that also. Here is the website where we get our supplements.

    Ted and Patty

    http://www.vitacost.com/NSI-AHCC-Immune-Booster

    in reply to: Dendritic cell vaccine therapy #14787
    tedpatty
    Member

    Peter,
    I could not hep but reply to your questions about AHCC. I am sure the you have read some of our posts where we have mentioned AHCC. Patty and I can only use our own experiences with AHCC as a source of comments. I have researched all I can read on the subject and it all sounds good as the research says that there are at least “700 hospitals overseas, (mostly in Japan)” that are using AHCC with a good success record. I can assure you that we are not promoting it. We just would also like to hear of others that might be using it. Patty is taking 3 grams daily taken morning noon and night. The amount taken will be increased if the CA19-9 does not come down. Patty is also taking 16 grams of IP-6 daily. She also takes Shitaki and Reishi mushroom extract. As you probably know from our recent posts, Patty has had no chemo or radiation since her diagnosis and we are relying completely on supplements and lots of carrot juice. This puts her in a unique category as most everyone on this site resorts to chemo and raditaion. She feels good and has a good quality of life. She is in her seventh month since diagnosis. You mentioned the high cost of the supplement. We get ours from Vitacost. We would also love to hear from others that are taking these supplements.
    Ted

    tedpatty
    Member

    Diane,
    Patty was in the hospital four times over a period of two months for unsuccessful resection and to replace stents which had caused numerous infections. During her time in the hospital, she experienced some of the same symptoms that your husband is experiencing. The docs narrowed it down to a high blood ammonia level. She was treated for the high ammonia level and in a few days her mental state returned to normal. I just wanted to throw this out to you as a possibility. May the Lord be with you and your husband as you battle this terrible cancer.
    Ted and Patty

    in reply to: My Wife, Patty, unresectable Klatskin tumor. Trying IP-6 #15416
    tedpatty
    Member

    Kelly,
    No, Patty did not participate in the Davanat trial. She opted to not have any chemo or radiation. She has been on heavy doses of IP-6 and AHCC plus several other alternative treatments. She is feeling well most of the time. She does experience the “unexplained ” fever about once or twice a month that lasts for three or four days and then goes away. Her CA 19-9 has just recently elevated from 550 to 2475. We are just taking it one day at a time. Patty’s quality of life is good. Patty and I pray for the best for your dad.
    Ted

    in reply to: Bob has left us #16209
    tedpatty
    Member

    Bob’s wife,
    Patty and I are so sorry to hear of your loss. We also feel the closeness of this group and there are not enough words to describe the support that we feel, knowing that we all are pulling together. You WILL see Bob again someday when the great Healer comes to take us to that heavenly home where we can live throughout eternity with the ones we love. Please know that we are feeling your grief. May God give you strength to get through the days ahead.
    Ted and Patty

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